MBinOregon Posted September 21, 2018 Posted September 21, 2018 Happy Friday, I've been told (and Google agrees) that the gene mutation I have, ROS1, affects only 1-2% of lung cancer patients. I wanted to see if there are any folks with ROS1 on this forum - out of curiosity regarding treatments and their journey... Thank you as always. MB
Tom Galli Posted September 21, 2018 Posted September 21, 2018 Welcome MB, I saw your post addressing a similar subject sometime ago. I don't have any gene mutation that I know of. My biopsy was in 2003 and in that time, gene mutations were not known about. Therefore, I was hesitant to respond to your post. Anyone on the forum diagnosed with adenocarcinoma ROS1 gene rearrangement please give a response to MB. Stay the course. Tom
MBinOregon Posted September 21, 2018 Author Posted September 21, 2018 Tom, I didn't think you had any gene mutation - none I've gathered from your articles and postings. Thank you always, though, for your response Given how rare it is, I didn't expect (still am not) anyone with ROS1 on this forum, but then there always is "you never know". Trying to stay the course 😁 MB
LexieCat Posted September 22, 2018 Posted September 22, 2018 I checked over at the Inspire forums, and there are a ton of posts about ROS1. Take a look here: https://www.inspire.com/search/?group_id=200101&sec=all&query=ROS1&dd_query=
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