MBinOregon Posted September 21, 2018 Share Posted September 21, 2018 Happy Friday, I've been told (and Google agrees) that the gene mutation I have, ROS1, affects only 1-2% of lung cancer patients. I wanted to see if there are any folks with ROS1 on this forum - out of curiosity regarding treatments and their journey... Thank you as always. MB Quote Link to comment Share on other sites More sharing options...
Tom Galli Posted September 21, 2018 Share Posted September 21, 2018 Welcome MB, I saw your post addressing a similar subject sometime ago. I don't have any gene mutation that I know of. My biopsy was in 2003 and in that time, gene mutations were not known about. Therefore, I was hesitant to respond to your post. Anyone on the forum diagnosed with adenocarcinoma ROS1 gene rearrangement please give a response to MB. Stay the course. Tom MBinOregon 1 Quote Link to comment Share on other sites More sharing options...
MBinOregon Posted September 21, 2018 Author Share Posted September 21, 2018 Tom, I didn't think you had any gene mutation - none I've gathered from your articles and postings. Thank you always, though, for your response Given how rare it is, I didn't expect (still am not) anyone with ROS1 on this forum, but then there always is "you never know". Trying to stay the course 😁 MB Tom Galli 1 Quote Link to comment Share on other sites More sharing options...
LexieCat Posted September 22, 2018 Share Posted September 22, 2018 I checked over at the Inspire forums, and there are a ton of posts about ROS1. Take a look here: https://www.inspire.com/search/?group_id=200101&sec=all&query=ROS1&dd_query= MBinOregon 1 Quote Link to comment Share on other sites More sharing options...
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