MBinOregon 65 Report post Posted September 21, 2018 Happy Friday, I've been told (and Google agrees) that the gene mutation I have, ROS1, affects only 1-2% of lung cancer patients. I wanted to see if there are any folks with ROS1 on this forum - out of curiosity regarding treatments and their journey... Thank you as always. MB Share this post Link to post Share on other sites
Tom Galli 2,357 Report post Posted September 21, 2018 Welcome MB, I saw your post addressing a similar subject sometime ago. I don't have any gene mutation that I know of. My biopsy was in 2003 and in that time, gene mutations were not known about. Therefore, I was hesitant to respond to your post. Anyone on the forum diagnosed with adenocarcinoma ROS1 gene rearrangement please give a response to MB. Stay the course. Tom 1 MBinOregon reacted to this Share this post Link to post Share on other sites
MBinOregon 65 Report post Posted September 21, 2018 Tom, I didn't think you had any gene mutation - none I've gathered from your articles and postings. Thank you always, though, for your response Given how rare it is, I didn't expect (still am not) anyone with ROS1 on this forum, but then there always is "you never know". Trying to stay the course 😁 MB 1 Tom Galli reacted to this Share this post Link to post Share on other sites
LexieCat 1,381 Report post Posted September 22, 2018 I checked over at the Inspire forums, and there are a ton of posts about ROS1. Take a look here: https://www.inspire.com/search/?group_id=200101&sec=all&query=ROS1&dd_query= 1 MBinOregon reacted to this Share this post Link to post Share on other sites
