z Posted May 5, 2020 Share Posted May 5, 2020 Any long term survivors in the forums? I'd love to talk about long term survivor experiences... Link to comment Share on other sites More sharing options...
Tom Galli Posted May 5, 2020 Share Posted May 5, 2020 Z, I'm here. 16 years from diagnosis. Stay the course. Tom Link to comment Share on other sites More sharing options...
Donna G Posted May 5, 2020 Share Posted May 5, 2020 I was diagnosed with NSCLC Stage 3B in December 1997. I had chemo, radiation, then surgery followed by more Chemo. I am still here 22 and 1/2 years later. Donna G Link to comment Share on other sites More sharing options...
z Posted May 6, 2020 Author Share Posted May 6, 2020 Anyone struggling with long term side effects from therapies? Link to comment Share on other sites More sharing options...
Tom Galli Posted May 7, 2020 Share Posted May 7, 2020 Z, Yes I have a number of side effects from treatment that still bother me. Taxol toes from too many Taxol infusions (18) total. Lesions that form in my scalp that is a residual from Tarceva, a targeted therapy I was given before doctors realized it wouldn't work on Squamous cell. I also have chronic pain along the right side of my body from three thoracic procedures performed within 4 months to remove my lung, and repair fistulas (leaks) in my airway. I also suffer from chronic low blood levels of magnesium. This causes muscle cramping and despite taking 1,000 mg per day, I am still bothered by cramps. But, when all is said and done, I prefer life to the alternative so I am thankful. Stay the course. Tom Link to comment Share on other sites More sharing options...
JLA Posted May 7, 2020 Share Posted May 7, 2020 14 year survivor here, surgery, chemo & radiation. The main issues I still have is nerve damage around my scar and I get muscle cramps that feel as if they are in my ribcage, not sure if its from surgery/treatment or just being older and out of shape. Link to comment Share on other sites More sharing options...
Susan Cornett Posted May 12, 2020 Share Posted May 12, 2020 I'm 4+ years from diagnosis and have some side effects. I have neuropathy, tinnitus, and some residual nerve damage. But as others have mentioned, side effects sure as hell beat the alternative. Link to comment Share on other sites More sharing options...
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