Jennedy Posted July 9, 2020 Share Posted July 9, 2020 Hi all, My oncologist called me with the news that I have the mutation EGFR exon 19. He wants to start me on Tagrisso. We will meet with him next week to fully discuss side effects and all the other details. I'm ecstatic! Am I justified? Thanks Jenny Link to comment Share on other sites More sharing options...
Rower Michelle Posted July 9, 2020 Share Posted July 9, 2020 Hi Jenny, Ha. Welcome to the mutant club! You will also find a vibrant EGFR community on Facebook (Lungevity) and the EGFR group. EGFR is one of the most “common” mutation. You might also want to check out the book by Diana Lindsay, “Something More Than Hope” a long term EGFR survivor. Tagrisso has a good track record, there are some side effects but they will be very manageable. Carry on! Michelle Link to comment Share on other sites More sharing options...
Jennedy Posted July 10, 2020 Author Share Posted July 10, 2020 Thanks @Rower Michelle I joined the FB groups. Lots of information to digest. Link to comment Share on other sites More sharing options...
CLM Posted July 11, 2020 Share Posted July 11, 2020 Hi Jenny, I got the exact same call today—EGFR mutation and to start Tagrisso. I was excited, too, it felt like good news in this sea of uncertainty. @Rower Michelle You always have such good advice. I’ll be checking out the Facebook group, too. Thank you! ❤️Christy Link to comment Share on other sites More sharing options...
Rower Michelle Posted July 11, 2020 Share Posted July 11, 2020 You’re welcome ladies. Forward March. Pretty soon you’ll start to feel like your old selves. Link to comment Share on other sites More sharing options...
CLM Posted July 11, 2020 Share Posted July 11, 2020 @Rower Michelle Thank you! I needed to hear that this morning! Link to comment Share on other sites More sharing options...
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