Suzanna Posted September 15, 2020 Share Posted September 15, 2020 Hello everyone! First, I need to say how incredibly grateful I am to have found this organization. I don't think anything has provided us as much hope as reading the stories, perusing the forums, and utilizing the many resources available for us. I know where our next financial gift is headed and I know it will be put to good use for so many. That aside, we have had some big ups and downs this week. For the ups - we received a clear brain MRI yesterday, so no metastasis there. For the downs - the PET scan results showed a bit more spread than we were hoping. As of now the spread is to the other lung, an adrenal gland, a lymph node, hip bone, and C3 vertebrae. On the up side, it has not spread to any major organs and none of this changes the prognosis we received last week, it just feels a bit more real. We are still waiting for the results of the genetic marker testing, but have decided to start treatment. Radiation will begin next week to help with pain, and then chemo will follow, finally adding in immunotherapy once the genetic marker tests are complete. I'm planning to join the September 24 caregiver call and I'm looking forward to connecting with some of you there. Part of Adam's treatment plan is to continue working as much as he can. He is the president and CEO of our local economic development corporation and as you can imagine, the pandemic has made his job pretty intense. I know this keeps him going, as does his family. I'm struggling a bit today to manage my own fears and trying to remain positive, but I suspect it's a battle I'll be fighting for many years to come. Thanks to all who have reached out and though I wish we hadn't had to meet, I'm certainly glad we did. BridgetO, Tom Galli and Sabacat 3 Quote Link to comment Share on other sites More sharing options...
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