cathy Posted May 6, 2003 Share Posted May 6, 2003 Hi friends...Heres a little update.....seen dads onc last week.. He said that he didnt want to put dad on any chemo because he is so weak that it could kill him (because of the fibrosis). He has some activity on the bottom from where they did the lobectomy. I had asked him about any vaccine trials that are not as toxic as convential chemos, and of course he knew of none...I gave him a few that John had found for me and he didnt seem interested.. He said in order to be in a clinical trial you had to have a high performance level, which means be able to walk around or whatever...Well dad cant walk 3 steps without loosing his breath.... He seen that I wasnt going to stop so I think to pacify me he said, maybe we can try Iressa if dad gets stronger. I mentioned going somewhere else at least to get him breathing better, like a teaching facility. well he had no idea..Then I suggested what about U of Mich... He had no idea if they had anything there for him..With very little research I found it was rated in the top ten for respiratory disease I believe by the New York times...How come he doesnt know any of this its only about an hour from us... Anyway we went to see dads Pulm..today and here is the good knews..We are going to U of M.. I told his pulm I tried to get an appt.and it would take 2 months without a dr. referal...He is getting right on it and hopefully will have an appt. within 2 weeks...I will let you know what happens there...sorry so long.....cathy Quote Link to comment Share on other sites More sharing options...
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