randired Posted September 29, 2004 Share Posted September 29, 2004 My father just told me that the doctor just prescribed this for her. Who's been on this? what are some real side effects? i know my mom took it yesterday and she was vomiting, but anything else? Has it worked for anyone? Thanks[/b] Quote Link to comment Share on other sites More sharing options...
berisa Posted September 29, 2004 Share Posted September 29, 2004 I only know Temodar is targeted to Brain Tumor. I don't know much about this. But I know this med is good for the primary brain tumor. Maybe you could go to google for searching more. Quote Link to comment Share on other sites More sharing options...
randired Posted September 29, 2004 Author Share Posted September 29, 2004 My moms oncologist told us that she is going to concentrate on the tumors in the brain. So right now she is doing radiation to the brain and the temodar. I will do some research, I was hoping to get some first hand expierences. Unfortunately there are people who can actually tell me this. Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted September 29, 2004 Share Posted September 29, 2004 Temodar has become the standard treatment combined with radiation for treatment of malignant brain tumors. A small randomized trial suggested that temodar combined with radiation was more effective than radiation alone for nsclc with brain mets: http://www.asco.org/ac/1,1003,_12-00264 ... 224,00.asp At these doses the drug is phenomenally non-toxic, I've treated even very elderly (late 80's) patients with this regimen with minimal problems. Can rarely effect blood counts and have to watch liver enzymes. Nausea has not been an issue (although radiation of the brain itself can certainly make you nauseous). Having said this, I think this should still be considered investigational, there is a large national trial looking at whether temodar plus radiation really is better, don't know yet what kinds of consequences on brain function with this combination, etc. Quote Link to comment Share on other sites More sharing options...
ginnyde Posted September 29, 2004 Share Posted September 29, 2004 Randi, My husband was on Temodar for a few months. He took 3 a day for 5 days and then no Temodar for 23 days and started all over again. His only side effect was nausea and vomiting after the first pill. With the doctors permission, he took a compazine with the Temodar each time. I think this helped. I wish your mother success on this regime. Quote Link to comment Share on other sites More sharing options...
TeeTaa Posted September 29, 2004 Share Posted September 29, 2004 I don't know a darn thing about Temodar. I just want to tell you how beautiful your baby is and how glad I am that you're sharing that wonderful photo. Praying for us all, TeeTaa Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.