CindyA

Hi Mike, How are you doing? Thinking of you, Cindy

Light a candle in honor or in memory of someone you know. http://www.lungevity.org/su…/light-candle-in-honor-or-memory

It will be nice to see you again too Tom!

Yes, we need support, we need EVERYONE'S support.

"I thought I pulled a muscle..." Please watch this video and listen to Tommieann's wisdom.

Hello, This post was not approved by LUNGevity Foundation. Please contact us first for anything like this so that the content/survey/request can be vetted to ensure it is something safe that we can post on our message boards. This is to protect our members. If you have any questions please feel free to email me calmendarez@lungevity.org

I remember my first time advocating for lung cancer with LUNGevity. I was in the mall and we were giving t-shirts out to people who registered for the Breathe Deep DFW Walk. I knew there was a stigma around lung cancer but I didn't know a lot of facts. Luckily there were fact cards (http://www.lungevity.org/about-us/request-materials) there for me to read during idle time. My jaw dropped. I remember thinking, "Why didn't I know this?" I looked at all of the mall shoppers walking by and was pretty sure they didn't know these facts either! So I turned to Katie and asked her if I could just talk to the patrons and tell them these facts because I was sure they would be stunned too! Of course, she said yes, so I did! The shoppers were shocked, and also weren't sure if they wanted to talk to me about what I just learned. I knew from that moment I really wanted to help in any way I could to make a difference. I talked more about this with Katie and Nikole and from there it's history. Now there are so many ways you can advocate, from your couch, all the way to speaking in front of groups. I am really excited that the Social Media Ambassador volunteer team has really grown! One of the first SMA's is still very active, you can read her story here http://www.lungevity.org/support-survivorship/get-connected/blog/advocate-spotlight-%E2%80%93-jen-edwards Currently accepting applications: http://www.LUNGevity.org/SMA Sign up for the LUNGevity LinkUp Advocacy Alerts http://www.lungevity.org/get-involved/lungevity-linkup Check out the MANY ways you can make a difference here http://www.lungevity.org/get-involved How will you get involved this year?

Hi Rhonda, Welcome to the LCSC message boards fellow Texan! I'd like to personally invite you to the Dallas HOPE Summit that LUNGevity will be hosting February 27th. You will have a full serving of HOPE and talk to others in the area who are going through similar situations. It's free, save your seats by registering here: http://www.LUNGevity.org/DalllasHOPE

Hi Laralyn, Welcome to the LCSC message boards. I know the statistics too, however I know so many people personally who make those statistics seem unreal! Thanks to better treatment options more people are living better with lung cancer. I hope reading and chatting with some of our survivors and caregivers in here will help give you some hope. Please let me know if I can help you with any of LUNGevity's support resources. I look forward to getting to know you more. Cindy

See you there Barb! You may want to bring a warm sweater, or small lap blanket. The temperatures in the conference rooms can sometimes fluctuate.

Video: "10-Year Lung Cancer Survivor Shares Her Optimism" http://www.patientpower.info/video/year-lung-cancer-survivor-shares-her-optimism/

We are here for you. Feel free to post here anytime you feel up to it. I can only imagine how overwhelmed you must feel. Some people like in person support groups, others not so much. LifeLine is just communication through phone or email with someone who has experienced a similar situation as yours. I just thought I would throw that out there. Feel free to roam around these message boards and read what you like. We have wonderful survivor volunteers in here that have so much wisdom and helpful hearts. If I can do anything to support you through LUNGevity's support services, please reach out to me anytime. We care about you, Cindy

Hi Jean, Donna and Tom posted great advice about taking a notebook and being a second set of ears. That's a great plan. Here are some checklists you may want to take with you http://www.lungevity.org/support-survivorship/asking-right-questions Keeping a designated notebook is a great way to document which doctor says what, and great way to reference what answers you received because you may not remember everything.

Hi Ralph, Welcome to the LCSC message boards. I hope Tom's words have helped you feel more at ease with your treatment option that your doctor has recommended. I am just wondering if there is a Nurse Navigator in your support team who can also talk to you more about your treatment plan? We can also connect you with a one on one support partner through the LUNGevity LifeLine Program. Here is the link http://www.LUNGevity.org/LifeLine I look forward to getting to know you. Cindy

It sounds like she may be experiencing chemo-induced neuropathy. I would ask about nerve targeted medication that could help relieve her of that discomfort.

It sounds like she is doing well! How is she feeling? How are YOU doing?

Hi Renee, Welcome to the LCSC message boards. YAY for SHRINKAGE! Please feel free to ask questions or pop in other forums to share your wisdom with others. Cindy

Hi Merilee, Welcome to the LCSC message boards. Here is a link to the HOPE Summit page. As a new attendee, you may qualify for a travel grant. I hope you will register and meet A LOT of our members! http://lungevity.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=583 I look forward to getting to know you. Cindy

Hi Kelly Marie, Welcome to the Lung Cancer Support Community. I'm happy to read that you are feeling well and have a positive outlook. Please feel free to ask questions, or just vent if need be, We are here for you. Please watch these inspiring survivor videos http://www.lungevity.org/support-survivorship/survivor-resource-center/survivor-stories They are full of HOPE! Cindy

Hi MarkWee, I've heard that people try using honey to help with the metallic taste. As far as the foot pain, you may want to ask your doctor about neuropathy. If that is what you may be experiencing I recommend trying to keep your feet up & at a comfortable temperature. Here is a link that has more information about side effects. I hope your ease up soon. Peripheral neuropathy: Sometimes physical therapy and complementary therapies, such as massage and acupuncture, can help. The most common medications to treat neuropathic pain are anticonvulsants and antidepressants. Over-the-counter pain medications may be recommended for mild pain, or prescription non-steroidal anti-inflammatory drugs or analgesics may be prescribed for severe pain.3 http://www.lungevity.org/about-lung-cancer/lung-cancer-101/treatment-options/chemotherapy

Hi Mike, Welcome back. I'm sorry you are having to go through this. I'm definitely sending positive thoughts your way. Please feel free to update us with your results. Cindy

http://www.lungevity.org/about-lung-cancer/lung-cancer-in-news

I love reading good news Allison! I look forward to getting to know you. Cindy

Hi, is there anyone in or near CO who has benefitted from Tagresso? (Formerly AZ9291) Possible advocacy opportunity. Message me or email me (calmendarez@lungevity.org) ASAP.

Liquid biopsies: A $20 billion market ready to explode. By Gary Gately, special to CNBC.com http://www.cnbc.com/2016/01/11/a-revolutionary-blood-test-that-can-detect-cancer.html