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CharlieD

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Posts posted by CharlieD

    Get the Kids and Dogs Indoors - CharlieD is Back On Steroids

    in CLINICAL TRIALS

    Posted

    Thank you all for your comments and concern. I feel like a new man tonight. I Took the Zofran and Decadron at 10 AM and by 12 Noon I felt remarkably better. Was hungry and had some Oyster Stew and an Ensure Milkshake with Chocolate Marshmellow ice cream. The Oyster Stew is an annual thing on Christmas Eve, but Thelma bought the oysters early in hopes they might entice me. They did, along with the steroids. I realize that this medication is merely masking the cause and I only got two days of Zorfan and I'm going to try to stop them both after the two days.

    Ry, I remember what you said John did about drinking lots of fluids so I really pushed the water which I think was the reason the achy feeling and leg cramps subsided so quickly. Fay A sugggested the same thing. Really lucky to have all you trail blazers out there making the road so much easier for those of us following.

    Frank, the chocolate donuts are on my shopping list for tomorrow. The Bud Lite also but this acid reflux prevents me from consuming stuff that burns going down. (Incidentally Frank, are you old enough to remember a beer named Dubois-Budweiser?) Bloody Marys and Mimosas Christmas morning will be the exception. And Cindi, Snowshoe Grog Indeed. That sounds like what we call Tractor Gas, but to each his own.

    Thanks again everybody and God Bless.

    CharlieD

    ED ZACHERY DISEASE

    in JUST FOR FUN

    Posted

    A middle aged rather plain Spinster was complaining to one of her friends that she was lonely and somewhat bored. Seems that men paid very little attention to her and she rarely was asked out on a date. Her friend responed that she knew of this famous Korean Doctor that dealt in this type problem. She immediately made an appointment and went to see the Doc.

    After explaining her problem at length, the Doc told her to "take off crose and get down on hands and knees." Somewhat puzzled, she complied. The Doc then said "crawl berry berry fast to other wall and then back to me". Again, she complied.

    Extremely anxious, she asked if the Doc knew the problem, to which he replied "Yes mam, you have berry berry bad case of ED ZACHERY DISEASE. Worse case I ever saw."

    She stated that she never heard of it and ask for an explanation to which he replied, "It is a situation where your face look ed zachery like you *ss."

    (It's the decadron)

    Get the Kids and Dogs Indoors - CharlieD is Back On Steroids

    in CLINICAL TRIALS

    Posted

    This Clinical Trial is flat kicking my butt. Five hours after the Gemzar Infusion Tuesday, it hit me like a freight train. Been in bed since with flu-like symptoms (chills,nausea, achy,fatigue). Talked to my Doc this AM and she put me back on Decadron and Zofran. I feel pretty confident that this will do the trick. Just took the pills so gotta wait and see.

    After we get through this crisis, gotta figure out if I want to continue in the Trial. Got next week off as planned, so got some time to consider it. I would really like to stick out through the next three week cycle and then look at a CT Scan, but she wasn''t too sure it would be worth it.

    And soooo, the Decadron problem. I am no longer responsibe for what I say or do. So Kasey, how about giving me a break. I promise I won't be any raunchier or filthy minded than Frank

    God Bless You All, and Merry Christmas

    CharlieD

    The Preachers Pay

    in JUST FOR FUN

    Posted

    There was a preacher whose wife was expecting a baby

    so he went before the congregation and asked for a raise.

    After much discussion, they passed a rule that

    whenever the preacher's family expanded, so would his paycheck.

    After 6 children, this started to get expensive and the Congregation

    decided to hold another meeting to discuss the preacher's salary.

    There was much yelling and bickering about how much the

    clergyman's additional children were costing the church.

    Finally, thePreacher got up and spoke to the crowd. "Children are a gift from God," he

    said.

    Silence fell on the congregation. In the back pew, a little old

    lady stood up and in herfrail voice said,

    "Rain is also a gift from God,but when we get too

    much of it, we wear rubbers."

    And the congregation said, "Amen

    How much is too much?

    in GENERAL

    Posted

    Terri,

    No my Dear, you are not thinking too much tonight. You are pondering the same question that has gone through the minds of many of us. As you know, I too have had a considerable amount of Chemo and have asked myself many times "when is enough enough?" I just started back on Chemo in a clinical trial that I had posted about. It is no fun to have this achy, chilly, pukey and fatigue feeling. I felt great for 7 months without chemo. My 5 month CT showed some small progression and the 7 month CT was stable. I'm thankful that my ONC Doc believes very strongly in giving the body a chance to fight this monster. That is why she waited two months and did another CT. She was going to suggest that we wait another 2-3 months to see what the body would do when this clinical trial became available.

    Anyway Terri, I wanted to let you know that you are not alone in your thinking. Our cases have many similiarities, so I can appreciate your feeling. One good thing about being back on Chemo is that you know you will at least feel better when you go off it. It's very tempting to stop it, but there is always the chance that it will work and give you some more quality time.

    I've rambled enough so hang tough my dear friend and God Bless.

    CharlieD

    Phooey

    in NSCLC GROUP

    Posted

    Jimben,

    Sorry to hear the news. That is worth more than a Phooey. At least a Holy Crap. Sure hope the new regimen does the trick. Hang tough my friend.

    God Bless.

    CharlieD

    CharlieD Hall Pass Update

    in MEMBER UPDATES

    Posted

    Sure was a long three days at Roswell Park. Drove out Sunday, 13 hours Mon (Paricalcitol Injection), 11 hours Tue (Gemcitabine IV), then a quick blood draw Wed AM and back home Wed Nite. Haven't felt much like posting last night or today but feeling a little better tonight. Mon and Tue were so long due to a myriad of blood draws until 8 hours after drugs were administered.

    Felt ok until about 4 hours after Gemzar on Tue. Had the regular Gemzar side effects of flu like symptoms ie, Chills, Achy feeling all over, fatigue and SOB. Still got it tonight but it appears to be subsiding a bit. Been taking Compazine and drinking lots of liquids. Don't feel like eating but force myself like before with 4 or 5 small meals and drinking Ensure blended with ice cream.

    The long days are over. Now I just go back Mon for the Paricalcitol and Tue for Gemzar then back home. Get a week off over Christmas then back at it Jan 2.

    All and all, not too bad. Just hope the side effects let up a bit. Got a CT scan after next cycle to see whasup. Just gotta tough it out. Git R Done

    Keep you all posted. God Bless.

    CharlieD

    Phase I Clinical Trial - Day One

    in CLINICAL TRIALS

    Posted

    Had the first treatment of the Clinical Trial Tuesday, Gemzar only the first day. Only took 1 hr 20 minutes for the actual infusion, but had to hang around for 8 hours for blood draws. They took about two gallons throughout the day. Don't know where it all came from. Gotta go back Sun for 7AM start Monday for day two, consisting of the Paricalcitol and another 8 hours of blood draws. Then Tue 7AM for another round of Gemzar and eight more hours of blood draws. Wed just one blood draw and then back home. After that, the following Mon and Tue for infusions only, no blood draws. Then a week off over Christmas and start again Jan 3 with just the infusions weekly for three weeks and then a week off and a CT Scan. This really sounds like fun, don't it?

    The biggest problem of this whole deal is that Thelma (Wife) found three shopping malls in the immediate vicinity of Roswell Park. The nurses and even my Doc were very accomodating to her and drew maps of how to get to each of them even after I threatened them. (b**ches) She's anxious to get this thing going with just two weeks of shopping till Christmas. And so it goes. Git R Done!

    I'll keep you all updated. God Bless.

    CharlieD

    Clinical Trial Hall Pass

    in MEMBER UPDATES

    Posted

    Had to delay trip home for a day due to snow. Had the first treatment of Gemzar. I somehow forgot how great it was to be on Chemo but got the rude reminder today. Flu symptoms, chills, achy all over and the works. Just the beginning of what's to come I guess. Git R Done.

    CharlieD

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