Jump to content

Mally

Members
 View Profile  See their activity

  • Posts

    295

  • Joined

  • Last visited

  • Days Won

    6

 Content Type 

Posts posted by Mally

    Lung cancer

    in INTRODUCE YOURSELF!

    Posted

    I got a copy of the letter my oncologist sent to my gp and it states that i have 111A stage and negative for mutations an i was going to be given 4 rounds of cisplatin and vinorelbine chemo but decided because i have diabetes and heart disease and this combination can cause neuropathy and as a high volume of fluid is required and that can put a strain on the heart so the better choice would be to have 6 cycles of carboplatin and gemcitabine which he said is equally effective....i hope so ..

    Sent from my SM-N920I using Tapatalk

    a question or 600 (lol)

    in GENERAL

    Posted

    I smoked for about 30 yrs with a few give ups but then mum got lung cancer and watching her with surgery and then oxygen at home was enough for me to give up but that was 17 yrs ago and now ive got lung cancer but maybe if i hadnt given up when i did i may have gotten the cancer years ago

    Sent from my SM-N920I using Tapatalk

    Lung cancer

    in INTRODUCE YOURSELF!

    Posted

    Hi tom i had the lower lobe removed and a wedge at the top also on the 5th jan this year and all surrounding tissue was clear except for 7 /20 lymph nodes had cancer in them so thats the reason for the chemo .the oncologist called it adjuvant chemo but im not sure what that means entirely .

    Sent from my SM-N920I using Tapatalk

    Lung cancer

    in INTRODUCE YOURSELF!

    Posted

    I had my first oncology appointment today and my lung cancer is nsclc stage 3 and i will start chemo within the next 2 weeks and it will be with Gemsitabine and Carboplatin and for 6 rounds of day 1 then day 8 then day 22 so anyone had these 2 chemos? I dont get why stage 3 because when i was being booked for surgery i was told it was at a curable stage then told there was cells in 7/20 lymph nodes

    Sent from my SM-N920I using Tapatalk

    Lung cancer

    in INTRODUCE YOURSELF!

    Posted

    19 hours ago, MaryTD777 said:

    OK, I got on my laptop and I'm seeing the same photo I just changed too. Unfortunately i am seeing that my 3 year old 4 mile long profile thing is on every post I make. I better look thru how to tweek that stuff again. Obviously its been a while since i have done much with it. 

    Take care!

    OOH! I tried to attach it to this post & see what happens :-) 

    Jun 2011 hair do shot.jpg

    Now i can see it better ...well done 

    Lung cancer

    in INTRODUCE YOURSELF!

    Posted

    On 24/01/2017 at 2:53 AM, skmcornett said:

    Mally,

    Good morning.  I did not lose my hair during chemo.  The PA at the oncology clinic said I had a 50/50 shot of losing it, but the oncologist said that I likely wouldn't lose it.  I have a friend who took cisplatin for a different type of cancer and he lost his hair.  The PA told me to be gentle with my hair - don't wash it every day, try to minimize use of hair dryers and curling irons, etc.  I hope this helps.

    Its good to hear that i may not lose my hair at least that would be something positive in this journey 

    Lung cancer

    in INTRODUCE YOURSELF!

    Posted

    6 hours ago, MaryTD777 said:

    The photo was easy to change!

    Sorry it's so crumby. My pal took it with her phone in 2011, before camera phones were as good as real cameras!! LOL

    Its dated 6/4 so I got mad at clumps falling out at around the 4-6 week mark. It was falling out before then, but got bad then.
    ?

    Sent from my SM-N920V using Tapatalk
     

    I cant see the photo mary ....what do I do to see it ?

    Lung cancer

    in INTRODUCE YOURSELF!

    Posted

    14 hours ago, Tom Galli said:

    Mally,

    Seeing you are getting some wonderful feedback from Susan and Mary.  This might help you prepare for chemotherapy.

    Keep those questions coming!

    Stay the course.

    Tom

    Yes they have both helped my fear tremendously and i truly appreciate it 

    Lung cancer

    in INTRODUCE YOURSELF!

    Posted

    22 hours ago, MaryTD777 said:

    My lobectomy was done after the treatment. Sorry, I thought I was babbling, so I left off some of the non chemo stuff.

    My tumor was called an apical one, also known as a Pancoast tumor. It is called that because it occurs in the apex - upper tip - of the lung. Mine was in the right lung. I'm right handed... or was. I still am for writing, and often times I reach to do something with right you just to find it can't manage to do what I wanted. Most times its a door knob. Grabbing PLUS turning are too much. I have nerve damage due to the tumor sitting on nerves, or pushing bones onto them. All I know is my three outer fingers are nearly useless and nearly numb, increasing in trouble as they grow shorter.
    The surgery actually took 2 different surgeons, a neuro ortho surgeon started by getting parts of three vertebrae out of the way for the the tumor to be free up there. He then used a small rod to keep the remaining bones in place.
    The thoracic oncologist then took the lobe, tumor, and ribs. It's late and I am forgetting. 2.5 or 3.5 ribs...
    A vertebrae below the rod started to crumble but no matter how much I complained the neuro surgeon said I was fine & the pain docs checked with my hubby to be sure I was taking my pain meds... then upping the strengths.
    A year and a day later Mr neuro ortho surgeon went back in. He took out the tiny rod on the right side & replaced it with bilateral (both /two sides) rods going 2 discs above & 2 or 3 below where the 1st 1 was.
    As I awoke from that surgery I was in so much pain I couldn't breathe, think, move!! I literally begged them to kill me even though I could see my husband and the fear in his eyes. They gave me some meds until they could get a scan, then they put me out. I don't know with what or any of that. I barely remember being told I needed a new surgery in the morning & I would feel 1000% better in the morning. I guess I signed something or maybe hubs did.

    The Dr had bent the rod to match my now very crooked spine... at the end of it, the rod actually straightened itself enough to pull the screw right out of my vertebrae!!

    I really hope the cancer never comes back since I'm pretty sure that the threat of another surgery would send me right up a wall! A discussion about maybe inserting a pain pump had me crying hysterically as much as I think I'd do most anything to get out of the never ending pain.

    Ugh. See? That's what happens when I start babbling.

    I hope for your sake you stopped reading a few dozen lines ago!! Hehehe

    Take care & sorry for the extra long answer.
    Mary

    PS, this was all back in 2011 & 2012.

    Sent from my SM-N920V using Tapatalk
     

    So sorry for the pain you went through because my pain was the worst id experienced and my lobectomy and wedge section was bad enough but sounds like you went to hell and back with what you went through

    Lung cancer

    in INTRODUCE YOURSELF!

    Posted

    46 minutes ago, MaryTD777 said:

    I am SO very happy for you skmcornett that it has gone so well & that this has lifted your spirits Mally!!

    My chemo was different. A round was 6 (week day) days. It was also 2 kinds of infusion via iv. Monday & Friday were both chemos, the rest were just 1. I only had to see the Drs once a week. I was doing radiation at the same time. Radiation was every weekday for 28 days. Mondays and Fridays were soooo long because that 2nd chemo took about 6 hours to drip vs the 2.5 of the first bag. The chemo "had" to be done first, so the poor rad team got lots of overtime on my behalf.

    No one could believe it, but my only side effects of note were exhaustion, loosing 80+% of my hair and nausea if I could smell gasoline. So I stayed away from gas stations! My hubs filled my tank every other day for me. Yeah, I drove from the NJ Shore to Philly for treatment... 90 miles? Yeah. I was still glad it was outpatient! The docs kept asking if I was sure I felt ok because it was "some pretty strong chemo" I was on. Cisplatin & etopiside.

    You just can NEVER tell how anyone will react to any treatment. Most of the people I have spoken to tell of experiences more like what you read above. I always pray that anyone I know of can react more like me. I will do the same for you. Promise!

    Keep your spirits up! I swear it's what helped me!

    Take care,
    Mary

    Sent from my SM-N920V using Tapatalk
     

    Did you have a lobectomy before starting chemo mary ? Or just doing radiation and chemo ? And thankyou for your prayers too

    Lung cancer

    in INTRODUCE YOURSELF!

    Posted

    17 hours ago, skmcornett said:

    Mally,

    For me, one round = 1 day of treatment, and all of my chemo was outpatient.  Chemo days were long, though.  I started with lab work then to the infusion room so that the nurses could start IV fluids.  Once the oncologist saw me and reviewed the lab work, he'd sign off on chemo and they would start the chemo drugs.  Because I had fluids, two different drugs, steroids, and fluids each time, I was usually at the clinic for 7-8 hours.  I had three weeks between each treatment.

    For better or worse, I could predict when the side effects would kick in.  I had chemo on Fridays and felt pretty good until Sunday, when the steroids wore off.  Fatigue and nausea kicked in on Sunday and were the worst on Tuesday.  By Wednesday, I started feeling good again.  The worst one for me was the last chemo - it took a few extra days to feel normal again. 

    I hope this helps.

    I hope i get to have 3 weeks between doses of chemo and did your hair all fall out with your treatment? Ive heard that not everyone loses their hair does that sound right ?

    Lung cancer

    in INTRODUCE YOURSELF!

    Posted

    My sarcoma will be followed for 10 yrs they told me but my lung cancer is a primary so its not related to the sarcoma which strange as it sounds i grateful because sarcoma is harder to treat. How long before my hair will fall out do you think ? Im going to get a wig early on lol

×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.

  I accept