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Mally

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  1. Like
    Mally got a reaction from LaurenH in Last chemo infusion   
    Thanks tom and i think of your Stay the course everyday and it helps believe me

    Sent from my SM-N920I using Tapatalk


  2. Like
    Mally got a reaction from Fred G in Last chemo infusion   
    Thanks tom and i think of your Stay the course everyday and it helps believe me

    Sent from my SM-N920I using Tapatalk


  3. Like
    Mally got a reaction from Susan Cornett in Last chemo infusion   
    I have my last chemo infusion at 9am next wednesday and ct scans of chest and abdomen in the afternoon and get results the following Wednesday so that will be a fearful week of waiting ...fingers crossed and prayers please ?
     
    Sent from my SM-N920I using Tapatalk
     
     
  4. Like
    Mally got a reaction from Judy M. in Chemo Underway   
    The nausea is the pits ...i feel for you... and i might have to try the peppermint candy because same here that i take the nausea meds but still have to put up with it for a couple of days ...

    Sent from my SM-N920I using Tapatalk


  5. Like
    Mally reacted to Judy M. in Chemo Underway   
    Lemon water helps also. Both have backed it off for now

    Sent from my SM-J100VPP using Tapatalk


  6. Like
    Mally got a reaction from Julie in SoCal in Chemo Underway   
    The nausea is the pits ...i feel for you... and i might have to try the peppermint candy because same here that i take the nausea meds but still have to put up with it for a couple of days ...

    Sent from my SM-N920I using Tapatalk


  7. Like
    Mally reacted to Judy M. in Chemo Underway   
    Had scans last Wednesday and started chemo on Thursday. Doc is wanting to keep scans his little secret until I see him on Wed. I may let him. Lol. Not too bad until this morning when nausea hit in spite of meds. Lemon water and peppermint candy is helping, so thought I'd pass that along. Hope all you guys are doing well.
    Judy M
     
    Sent from my SM-J100VPP using Tapatalk
     
     
  8. Like
    Mally reacted to Helpingmom in Mom just diagnosed   
    So found out today the cancer is in one lung and just the tiniest spot in her liver. The doctor is running tests on the biopsy tissue because his hope is to start her on keytruda instead of chemo. If anyone can share some experiences with this treatment ,  I would be very grateful . everything I have read about it sounds promising . 
  9. Like
    Mally reacted to Tom Galli in Mom just diagnosed   
    Helpingmom,
    From your mention of Keytruda, I conclude your mom's biopsy reported NSCLC (non small cell carcinoma lung cancer) with her tumor showing high level of PD-L1 expression.  The link gives you some information about this new immunotherapy treatment, and it is fortunate that your mom's PD-L1 level allows her to receive Keytruda as a first line treatment. With tumors in the lung and liver, your mom's cancer stages at IV, but what type of non small cell carcinoma does your mom have - Adenocarcinoma or Squamous cell?
    Letting us know the type of cancer will help folks who have a similar type with Ketytruda treatment give you feedback about their experience. 
    You'll likely have more questions and you may want to invite your mom to take a look at our forum and read into the disease.  Here is a good reference for both or you to start your reading.
    Stay the course.
    Tom
  10. Like
    Mally reacted to Tom Galli in Mom just diagnosed   
    Helpingmom,
    The large tumor in the lung points to the origin of her cancer I'd venture. I'm glad she's stopped smoking. Let us know how the immunotherapy treatment progresses.
    Stay the course.
    Tom
  11. Like
    Mally reacted to Helpingmom in Mom just diagnosed   
    Thanks so much for your response. I will take a look at the information you have suggested. She has Adenocarcinoma. She has 1 small spot in her lung and one in her liver that is barely visible on the scan. She was until a few weeks ago a very heavy smoker and drinker, so it's not really all that surprising unfortunately. I asked her if they knew where it originated and she said no. is this something they can tell? Does it matter?
  12. Like
    Mally reacted to Tom Galli in Confirmed   
    Carl,
    Also happy to learn your surgery is complete.  I hope your recovery is rapid and your leg surgery follows as quickly as possible.
    Stay the course.
    Tom
  13. Like
    Mally reacted to Cheryncp123 in Confirmed   
    Glad your surgery is over and am sorry you are having so much pain. Praying it will get better very soon.
  14. Like
    Mally reacted to Tom Galli in CT Screening Question   
    Chixter,
    These activities may indeed have caused the small nodules.  If the next scan shows no growth, then you can assume these nodules resulted from your past smoking or work related activities.  If not, then you'll be very interested in learning about lung cancer treatment and this is the place to do so.
    I hope you abide by your wife's suggestion about wearing breathing protection while navigating craw spaces or doing hobby activities.
    Stay the course.
    Tom
  15. Like
    Mally reacted to Tom Galli in CT Screening Question   
    Gcirillo,
    Welcome here.
    First, understand I'm not a doctor but have 13+ years surviving late stage NSC Squamous Cell LC so I've encountered my share of CT scans and reports.
    My recollection from discussion with other survivors is numerous small nodules that are metastatic often result from a larger primary tumor.  But, I've also know folks who are diagnosed with many small nodules and after a period of growth have biopsies that show metastatic lung cancer.  Most of your nodules are 2 mm and that is very small.  Even 3 and 4 mm are very small and normally associated with a lung infection or pneumonia.  Your diagnosis radiologist's indication of "post-infectious or inflammatory" and the 3 month followup CT appears to me to be a good call.  Moreover, if it were me, I'd have for CT scans every year (because of your reported history and this finding) to keep track of things.
    So I agree with your radiologist for a 3 month followup CT scan and add the recommendation of annual scans to keep track of the situation.  Hope the future scan shows no nodules.  By the way, have you had a recent bad chest cold or lung infection?
    Stay the course.
    Tom
  16. Like
    Mally reacted to BridgetO in Last chemo infusion   
    Great that you're almost done!  I understand the stress of waiting for results.. Best of luck, fingers crossed.  
  17. Like
    Mally reacted to LaurenH in Last chemo infusion   
    Hi, Mally,
    I hope all goes well next week!
    Lauren
    --
    Digital Community Manager
    LUNGevity Foundation
  18. Like
    Mally got a reaction from Tom Galli in Last chemo infusion   
    Thanks tom and i think of your Stay the course everyday and it helps believe me

    Sent from my SM-N920I using Tapatalk


  19. Like
    Mally reacted to Tom Galli in Last chemo infusion   
    Mally,
    I have fingers and toes crossed for a NED scan. 
    Stay the course. 
    Tom
  20. Like
    Mally reacted to Tom Galli in WHAT CAN i EXPECT AFTER LEFT LUNG REMOVAL ?   
    Edna,
    My right lung was removed in 2004. Here is what I can recall from my experience. 
    Pain: they put a morphine injector on an IV and I was instructed to use it when I felt pain. It was removed after 2 days and pain was controlled with oral meds as needed. I felt no pain!
    Mobility: they had me doing laps around the ward the first day I was admitted to the ward. A physical therapist assisted me and pushed me to go further each time. 
    Respiration: I was shown how to use a spirometer and coached to keep the ball high three or more times per day by a respiratory tech. 
    Drainage: I two chest cubes installed after surgery. The first was removed after recovery room discharge. The second the day before hospital discharge. Both were pain free procedures. 
    Discharge: My first surgery discharge from was five days after surgery. 
    Problems at home: Comfortable sleeping. I had to buy two angular elevating pillows to sleep. A flat bed didn't work. Buy these now. Audition candidates at a local mattress store, they buy on line. I used two 15 degree pillows to get a sleeping angle that was comfortable. You will be a back sleeper for a long time. Getting out of bed will take some practice. You'll need to learn to slide and roll. Lifting by elbows and hands won't work. You may need to take a look at your room furniture because your favorite chair may not be usable. Don't count on lifting any think heavier than a tooth brush with your left hand for 15 days. You may need up to three weeks off of work depending on your recovery. 
    Aerobic Capacity: after recovering you should return to pre-surgery activity. I was able to do most of the things I could do before surgery. Running is out of the question as is climbing more than 3 flights of stairs. 
    Airline Flights: you may need to avoid flying in a commercial airliner for quite a while. Ask your surgeon about this. The cabin pressure is normally 6,000 ft and that lower pressure causes you chest and abdomen to swell. Thirteen years later, I still feel substantial pain when flying. But, I didn't have one surgery, I had four because of unusual complications. 
    Stay connected with us because you'll likely have more questions. 
    Stay the course. 
    Tom
  21. Like
    Mally reacted to Helpingmom in Mom just diagnosed   
    Thank you. I wish my mom would let me or someone go with her, but she won't allow it which makes it much more difficult for those who care about her. I will keep your mom in my thoughts as well. I'm getting married in a few months and I want so much for my mom to be there and be healthy . 
  22. Like
    Mally reacted to Laney in Mom just diagnosed   
    Hi Helpingmom,
    I can't answer your question, so glad KatieB could help.  But my mom was diagnosed last Fall with NSCLC - stage 1. It's been a rollercoaster since then. I have went to many appointments with her to ask questions and to be another set of ears because it's over whelming.  I pray for the best outcome for your mom. As "excited" as we were for my mom to be stage 1, we also know there is a higher chance of return do to it being Squamish cell. The fear will never go away! She has a follow up CT scan in a week and it's weighing on us all!! But on a positive note we are planning a family vacation to help us look forward to the near future!!
  23. Like
    Mally reacted to Helpingmom in Mom just diagnosed   
    Wow. Thank you so much for the quick response. I will check on all of those things. I am so glad I found this site. It is frustrating as my mom doesn't ask many questions and no answers are given voluntarily. she had a CT and biopsy last month. They did her PET scan finally just a few days ago. she can see the results online and it it doesn't say anything different that the CT. This is all so new and I've been trying not to Google too much, but it's hard when she doesn't ask for more info from her doctors.
  24. Like
    Mally reacted to Helpingmom in Mom just diagnosed   
    Hi. My mom was recently diagnosed with lung cancer, well, they did a biopsy and found cancer in her lung. we don't know yet the stage or origin. she is a long time smoker, but only 53. I am really hoping they found it early, even though I know that is rarely the case. My question today is she has an appointment set and it lists 3 different departments she is meeting with. Radiation/Oncology, Hematology/Oncology, and behavioral medicine. the radiation oncology is obvious ,  but can anyone tell me what roles the other 2 have in treatment of lung cancer ? 
  25. Like
    Mally got a reaction from Fred G in Last chemo infusion   
    I have my last chemo infusion at 9am next wednesday and ct scans of chest and abdomen in the afternoon and get results the following Wednesday so that will be a fearful week of waiting ...fingers crossed and prayers please ?
     
    Sent from my SM-N920I using Tapatalk
     
     
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