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Judy M.

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  1. Like
    Judy M. got a reaction from LexieCat in My Birthday   
    Happy Birthday Lexie and Donna. Hope they were awesome!! 
    Judy M. 
  2. Like
    Judy M. reacted to Donna G in My Birthday   
    Today I am celebrating my 71st Birthday !   I am about to go out to lunch with my good friend Sandy ( who also is long term lung Cancer survivor ) 
    I hope the Red  Lobster serves us something just plain delicious !     
    Donna 
  3. Like
    Judy M. reacted to bacchus in Dad diagnosed Stage 4 lung cancer   
    It's been 48 hours since his first keytruda infusion and so far just mild itching. 
  4. Like
    Judy M. got a reaction from Susan Cornett in How soon did your treatment start?   
    Lexie does have a gift for that. But don't hire her because the rest of us need her too. And she'd just get fired anyway for calling in sick to go to concerts. 
    Judy M. 
  5. Haha
    Judy M. reacted to Tom Galli in You know it's going to be a long day....   
    You know, I’ve been on this lap-of-luxury cruise for so long, I’ve forgotten what it’s like to “have a long day.”
  6. Like
    Judy M. got a reaction from Tom Galli in Surgery done, he's officially a survivor!   
    Like I said.... the reason I have to just tell new members the various things available on Lungevity and wait for you to give them a link. Also the reason Tom had to send 150 messages to help me find the forums. 
    Judy M. 
  7. Haha
    Judy M. reacted to DrBee in Looking for hope and community   
    Judy, thank you for making me both smile and laugh. Everyone of you who is still here months and years out from diagnosis is a personal hero of mine, now.
    And oh my goodness. People are so well-meaning but so clueless, as you say. I definitely saw this when my best friend was going through breast cancer treatment 2 years ago, but it is definitely hitting me even harder now. The particular friend who did this lives in London and I literally want to start making up stories to tell him about the high number of people getting hit by double decker buses or something :-).
      I look forward to seeing you celebrate matching Tom's record in 13 years or so... Except by then he'll be a 28-year survivor or something
    ❤️ Bethany 
  8. Like
    Judy M. reacted to LexieCat in How soon did your treatment start?   
    Dang, I ran out of "likes" for today, but the two of you cracked me up.
    If I'm hard to get hold of from tomorrow-Sunday, it's because I've got two concerts AND (Wait For It)--HAMILTON in NYC for my birthday!
  9. Haha
    Judy M. got a reaction from DrBee in How soon did your treatment start?   
    Lexie does have a gift for that. But don't hire her because the rest of us need her too. And she'd just get fired anyway for calling in sick to go to concerts. 
    Judy M. 
  10. Like
    Judy M. got a reaction from Susan Cornett in NSCLC Round 3   
    Susan
    Have had SBRT on 4 tumors and it is a very good thing! Plus, the easiest treatment I've had so far. 
    Judy M
  11. Like
    Judy M. got a reaction from LOVEMAMA in NSCLC Round 3   
    Susan
    Have had SBRT on 4 tumors and it is a very good thing! Plus, the easiest treatment I've had so far. 
    Judy M
  12. Like
    Judy M. got a reaction from LexieCat in NSCLC Round 3   
    Susan
    Have had SBRT on 4 tumors and it is a very good thing! Plus, the easiest treatment I've had so far. 
    Judy M
  13. Like
    Judy M. got a reaction from LOVEMAMA in Looking for hope and community   
    Bethany
    I can so relate to having someone tell you stories about people being diagnosed with lung cancer then being dead just weeks later. Have had that happen also. You stand there in shock (or I did) thinking, "And exactly why was it you thought that would be helpful to me?" They are just clueless. And I'm here to tell you I was diagnosed at stage IV and am still here 1 year and 7 months later. Track record not as good as Tom's, but I'm working on it. 
    Judy M. 
  14. Like
    Judy M. reacted to LOVEMAMA in Looking for hope and community   
    DrBee, my mother being diagnosed with lung cancer since March 2018, we did 4 chemo then did the first Keytrua PD1 treatment last Friday.
    We all working on it, be strong, your husband need your support. We are here to support you and each other...
  15. Like
    Judy M. got a reaction from Tom Galli in Looking for hope and community   
    Bethany
    I can so relate to having someone tell you stories about people being diagnosed with lung cancer then being dead just weeks later. Have had that happen also. You stand there in shock (or I did) thinking, "And exactly why was it you thought that would be helpful to me?" They are just clueless. And I'm here to tell you I was diagnosed at stage IV and am still here 1 year and 7 months later. Track record not as good as Tom's, but I'm working on it. 
    Judy M. 
  16. Like
    Judy M. got a reaction from Susan Cornett in Looking for hope and community   
    Bethany
    I can so relate to having someone tell you stories about people being diagnosed with lung cancer then being dead just weeks later. Have had that happen also. You stand there in shock (or I did) thinking, "And exactly why was it you thought that would be helpful to me?" They are just clueless. And I'm here to tell you I was diagnosed at stage IV and am still here 1 year and 7 months later. Track record not as good as Tom's, but I'm working on it. 
    Judy M. 
  17. Like
    Judy M. got a reaction from LexieCat in Looking for hope and community   
    Bethany
    I can so relate to having someone tell you stories about people being diagnosed with lung cancer then being dead just weeks later. Have had that happen also. You stand there in shock (or I did) thinking, "And exactly why was it you thought that would be helpful to me?" They are just clueless. And I'm here to tell you I was diagnosed at stage IV and am still here 1 year and 7 months later. Track record not as good as Tom's, but I'm working on it. 
    Judy M. 
  18. Like
    Judy M. reacted to Steff in Not sure what I’m looking for   
    Perhaps the more ornery one is, the less pain they feel????  😉
  19. Like
    Judy M. reacted to Johnny5 in angry   
    You choose your choice. As for me, it is my job to throw a rope into the pit of despair and if necessary climb in. I pray for good traffic and no flats traveling across 3 counties day after day. You need to reach in yourself a find your choice, not your obligation. Otherwise neither will ascend from the pit, no matter who survives.
     

  20. Like
    Judy M. reacted to Johnny5 in Looking for hope and community   
    Its hard enough dealing with personally, but trying read each specific individual situation is overwhelming. It was mentioned about a "notebook". In 2016 it didnt take long before the Drs started saying "No, I havent heard/seen that and it is something I NEED!" You have to be orchestrator of barrels of monkeys in a chinese fire drill. When someone drops the ball you had better learn to dribble QUICK!
    Now If they aint got it, it is handed to them on the spot. Office Depot sells 3 ring zippered binders,- containing calendar (history) calendar (future). Folder or cover (1) "Urgent Pending," and (2) "Pending". CT & Pet Scan DVDs with the written reports. NEVER LET YOUR ONLY COPY GO! be sure it is returned. Be sure each DVD contains a viewer. A calling card holder. Medical power of attorney*, list of meds. allergies, etc.
    Accessories- YES! a composition notebook, Post It Notes, Highlighter (available in colors), extra pens, Flag tabs, clear page protectors, extra file folders, letter and legal enevolpes. As well as copys of reports, 6 Drs=6 copies.
    Experience is, that worrying about what is missing will gnaw at you just about as bad as the cancer. Keep your self from going Postal and/or crazy!
    You will be amazed if and when you have an unrelated procedure, and the comforting calm you will feel having all of your info at your fingertips.
  21. Like
    Judy M. reacted to LOVEMAMA in New life chapter: Reality Check~I have lung cancer   
    We are here to support you, you are not alone
  22. Like
    Judy M. reacted to BridgetO in Not sure what I’m looking for   
    Hi Breste1 and welcome. 
    I'm so sorry to hear about your grandmother' illness. I agree with Tom that, given the state of her health generally, the decision to go with hospice and no treatment is a good one. Hospice should be abl e to keep  her pain free. My mother had metastatic breast cancer. She decided at age 86 to discontinue treatment because it was so debilitatating.  She developed a major blood clot and wasn't a candidate for surgery because of her poor health. She went into hospice, and although the doctors said her death from the blood clot would be painful, it didn't seem to be. The hospice nurses kept  her comfortable with opiate medications and she died peacefully.  I had her health care power of attorney and I was completely satisfied with her care. 
    I  hope for peace and comfort for your grandma and for you.
    Bridget O
     
  23. Like
    Judy M. reacted to Laurel in husbands update   
    After my first chemotherapy in April, my husband and I fought through 5 weeks of pneumonia....struggling to breath...to move. My oncologist prescribed first antibiotics with no improvement.. I, then, put infection care in to my primary doctor's care. I had another round of antibiotics and finally a stronger antibiotics with z pack to knock it out.  3 other chemotherapies completed with no or very low infection.
  24. Like
    Judy M. reacted to Steff in husbands update   
    bes,
    My mom was full of infection and had pneumonia in the middle of her chemo treatments. She was in the hospital for 2 weeks dealing with it and struggled for about a month afterward.  It took awhile, but antibiotics really helped, as well as, low dose steroids.  My mom's pulmonologist and primary doc were the ones to deal with the infection, not the oncologist.  If he is still struggling, perhaps contacting his pulmonologist or primary doc would be helpful.
  25. Like
    Judy M. got a reaction from PaulaC in The Journey Continues   
    Thanks everyone. Have donned my battle rattle, Tom, and ready to go another round with this beast. Hoping this surgery goes a lot better than the Ablation did. And I'm also glad to have that specializing specialist Lexie. 
    Judy M. 
     
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