Judy M.

I'm sorry to hear about your upgrade, but glad to hear you can take Keytruda. Have heard of some good results with that. Telling family is very difficult. I also have 4 grown children. We'll keep praying for one another and trusting God's heart. Bless you.
Judy M

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I'm sorry to hear about your upgrade, but glad to hear you can take Keytruda. Have heard of some good results with that. Telling family is very difficult. I also have 4 grown children. We'll keep praying for one another and trusting God's heart. Bless you.
Judy M

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Thank you, Tom. The Oncologist explained it to me as treating each lung as a separate cancer. It's different. Have a brain M.R.I. scheduled end of next week right after start ( or completion-don't know how many treatments I'll have yet) of STBR. P.E.T. in February showed no mets. Praying that's still the case.
Judy M

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Thank you, Tom. The Oncologist explained it to me as treating each lung as a separate cancer. It's different. Have a brain M.R.I. scheduled end of next week right after start ( or completion-don't know how many treatments I'll have yet) of STBR. P.E.T. in February showed no mets. Praying that's still the case.
Judy M

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My words of wisdom are be patient with your recovery.  Whether its VATS or traditional lobectomy, take your time and listen to your body.  Definitely make friends with that danged spirometer.  
I'm cracking up that you named your tumor "Larry".  I named mine "Norman" and now that I have a recurrence in my lymph node, we've named it "Larry".  If we don't laugh, we'll cry!
Please keep us posted on your progress and ask if you can think of any more questions. 

Prayed for clear report.

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Prayed for clear report.

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Tom,
Thank you for your continued support. I belong to 2 public libraries and will check to see if either has your book available. Pretty sure one of them will figure out a way to get it for me if they don't. I feel like I'm overusing the forum right now, but so glad it's here. Not just for questions but to share what I'm learning. None of it may be new to others, but I figure you never know, someone might benefit from it. I agree that the quality of my life is in my hands and I intend to have another good day today. God bless you.
Judy M

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Tom,
Thank you. I found those and have read 1 of the articles. Will read the others. It does concern me somewhat that there seems to have been some disagreement between my Medical Oncologist and Radiology Oncologist on how best to treat me. Seems they brought on another Radiologist to help plan the radiosurgery. The way it was explained to me today is that they're treating each lung as a separate cancer. Rather unique way of looking at it. But I had prayed and decided whatever plan was mapped out I'd accept as God's will. And so far as I can tell there are no guarantees with any treatment plan when it comes to this anyway. You just soldier on. Tried to find your book to read but only found it available on Amazon for Kindle. Is there anywhere I can get another format. Thanks for being there for all of us.
Judy M

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Suzanne
Thank you so much. I'm sorry to hear that you"re sad. It seems the longer time I've had to pray and come to accept my diagnosis the easier it has become emotionally. I'm a big fan of Elizabeth Elliot. She counseled that when something really awful happens you should think of what you'd be doing if it hadn't happened and do that. She called it 'doing the next thing.' That has helped. And doggedly turning my mind to good thoughts each time I start to obsess over the situation. Which is so easy to do. Especially on days that I see a doctor. That doesn't change anything. Just ruins the good time I could have had if I wasn't doing that. And my obsessing won't change anything. I guess I'm saying that I'm just trying to accept the things I can't change and keep a quiet mind. I can't control what the disease may do to my body, but with God's help I can control what I let it do to my mind. I'm going to pray for you every day. Let me know what you learn about your planned treatment.
Judy M

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Judy, I'm glad you have a plan now. God bless you and keep you in His care. Keep updating! I will know more about my plan on Thursday. I am really sad.

Just saw Med. Oncologist. The original plan was radiosurgery on all 3 lung nodules plus mild chemo. New plan is radiosurgery on largest (3cm.) Nodule in left lung and reg. Radiation + mild chemo on 2 small nodules (less than 1 cm.) In right lung. The reason being that the Radiology Oncologist doing the planning didn't think he could do radiosurgery on the 2 in my right lung. Could that be because they're too small? Glad the plan is now in place and should be able to get started next Monday. That's the good news. Not so good news is that the cancer tested negative for all the targeted therapy markers. Immunotherapy testing isn't in yet. Feeling good today and thankful for that. Hope the rest of you guys are also.
God bless you all.
Judy M
 
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Suzanne
Welcome. Our stories are SO similar. Which you know if you've read my posts. I also just recently joined this group and it's been very helpful. I was diagnosed with breast cancer February last year. Had surgery and radiation and everything was going great. Then developed pneumonia in Jan. which eventually lead to disgnosis of stage IV adenocarcinoma in March. Not a spread of the breast cancer, but an actual primary lung cancer. My birthday is also in March and had the P.E.T. scan the day before my birthday. I also quit smoking 17 years ago. Ironically, if my research is correct my cancer is the type nonsmoking women usually get. This certainly wasn't a part of my plan for my life. I'm still waiting to get started on my treatment. See my Oncologist again tomorrow, so maybe things will get rolling then. I've been ( as another member put it so well) freaked out off and on. It's a stunning thing to get hit twice with 2 separate cancers. But my Oncologist's N.P. says both are adenocarcinomas. I didn't know that. Don't know that I have any great advice or info. But I can certainly assure you that you aren't alone. Right now my faith in God is holding me together. It goes like this: I freak out, I run and cry out to Him in prayer, He gives me peace in my heart and mind, repeat. Then repeat again. He knew this was coming and I'm trusting that though it wasn't part of my plan it is part of His and He knows what He's doing. Please, keep us updated on how things are going with you. I'm so glad you've become part of this group! No the reason for joining of course, but the choice to join and share your journey.
Judy M.

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Thank you for the words of encouragement. Judy, yes I did read your posts and instantly realized how similar our stories are. I am definitely looking to my Heavenly Father to give me the strength to battle on. I'm just so tired. This week I have a PET scan and brain MRI. My oncologist said we need to know those results before we can set a treatment plan. But right now it looks like chemo and radiation. I meet with my "team" on Thursday. And thanks Tom you are right about reading statistics. And I am encouraged by your living! 

Suzanne
Welcome. Our stories are SO similar. Which you know if you've read my posts. I also just recently joined this group and it's been very helpful. I was diagnosed with breast cancer February last year. Had surgery and radiation and everything was going great. Then developed pneumonia in Jan. which eventually lead to disgnosis of stage IV adenocarcinoma in March. Not a spread of the breast cancer, but an actual primary lung cancer. My birthday is also in March and had the P.E.T. scan the day before my birthday. I also quit smoking 17 years ago. Ironically, if my research is correct my cancer is the type nonsmoking women usually get. This certainly wasn't a part of my plan for my life. I'm still waiting to get started on my treatment. See my Oncologist again tomorrow, so maybe things will get rolling then. I've been ( as another member put it so well) freaked out off and on. It's a stunning thing to get hit twice with 2 separate cancers. But my Oncologist's N.P. says both are adenocarcinomas. I didn't know that. Don't know that I have any great advice or info. But I can certainly assure you that you aren't alone. Right now my faith in God is holding me together. It goes like this: I freak out, I run and cry out to Him in prayer, He gives me peace in my heart and mind, repeat. Then repeat again. He knew this was coming and I'm trusting that though it wasn't part of my plan it is part of His and He knows what He's doing. Please, keep us updated on how things are going with you. I'm so glad you've become part of this group! No the reason for joining of course, but the choice to join and share your journey.
Judy M.

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Suzanne
Welcome. Our stories are SO similar. Which you know if you've read my posts. I also just recently joined this group and it's been very helpful. I was diagnosed with breast cancer February last year. Had surgery and radiation and everything was going great. Then developed pneumonia in Jan. which eventually lead to disgnosis of stage IV adenocarcinoma in March. Not a spread of the breast cancer, but an actual primary lung cancer. My birthday is also in March and had the P.E.T. scan the day before my birthday. I also quit smoking 17 years ago. Ironically, if my research is correct my cancer is the type nonsmoking women usually get. This certainly wasn't a part of my plan for my life. I'm still waiting to get started on my treatment. See my Oncologist again tomorrow, so maybe things will get rolling then. I've been ( as another member put it so well) freaked out off and on. It's a stunning thing to get hit twice with 2 separate cancers. But my Oncologist's N.P. says both are adenocarcinomas. I didn't know that. Don't know that I have any great advice or info. But I can certainly assure you that you aren't alone. Right now my faith in God is holding me together. It goes like this: I freak out, I run and cry out to Him in prayer, He gives me peace in my heart and mind, repeat. Then repeat again. He knew this was coming and I'm trusting that though it wasn't part of my plan it is part of His and He knows what He's doing. Please, keep us updated on how things are going with you. I'm so glad you've become part of this group! No the reason for joining of course, but the choice to join and share your journey.
Judy M.

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Thank you, Tom. I also have asthma. My lungs were pretty much a mess before the cancer but I was doing all I could to keep them strong. Pulmonary test done last year said I had 45% capacity.  But since it was done at a time when I had a resp. infection and was having a C.O.P.D flare up hope I have a bit more than that. Glad you are still moving as much as possible. You are an inspiration for all of us.
Judy

Hi Carl
I'm also newly diagnosed and freaked out off and on also. It comes and goes. Being a part of this forum has been a great help. Have received hope, info, and the company of those who have stood where we're standing. Hope I can give back and share also one of these days. Happy to see you here.
Judy M

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Hi Carl
I'm also newly diagnosed and freaked out off and on also. It comes and goes. Being a part of this forum has been a great help. Have received hope, info, and the company of those who have stood where we're standing. Hope I can give back and share also one of these days. Happy to see you here.
Judy M

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Hi Carl,
Yes, getting the diagnosis does freak one out. I was diagnosed 18 months ago and even though It was stage 4, it doesn't freak me out any more. The treatments have been amazing and am now enjoying life more than ever. I hope and pray you have a similar experience. Do you know what mutation you have?
Lydia

Hi Carl and welcome here ....i understand how you feel but youve come to a great site here and will learn a lot from other members so ask any questions and you will get answers from long term people that have been where you are .

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Hello, My name is Carl.  I'm a 58 year old male and I was recently diagnosed with lung cancer and a little freaked out by the whole thing.

Hi Carl
I'm also newly diagnosed and freaked out off and on also. It comes and goes. Being a part of this forum has been a great help. Have received hope, info, and the company of those who have stood where we're standing. Hope I can give back and share also one of these days. Happy to see you here.
Judy M

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Thank you for sharing your story.

Cyberknife is a form of stereotactic radiosurgery (SRS). SRS has pros/cons compared to traditional care. It would help to have an honest discussion of the risks & benefits of each with a healthcare provider.

Here is an article for more information.
http://www.medscape.com/viewarticle/869251

Cheers.



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Or ask for referral to someone what has used stereostatic surgery to treat stage IV. Decided to try that. This is my life. Not sure I want to be someone's first effort.

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