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Judy M.

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  1. Like
    Judy M. got a reaction from Mally in Simulation?   
    Callie
    Have had a lot of radiation. Before my SBRT radiation I was placed in the position I would be in for my treatment, a sort of stretchy belt was placed around my diaphragm and the physicist stood there being very picky about exactly what position I was being placed in and my not being able to move. This was to track exactly how much the tumors in my lungs or the one on my adrenal gland (had it for both) moved as I breathed in order to accurately plan my Radiation. Never heard it called a simulation but that term would make sense. Is this similar to what they did with your mother and could they possibly be planning to do some SBRT? It's also sometimes called Cyberknife and other things. It's a very precisely targeted radiation. 
    Judy M
  2. Like
    Judy M. got a reaction from Mally in Simulation?   
    , Lexie's article pretty much defines what it is and why it's done. The only reason I can think of why they would do it again was if they were afraid she might no longer be in exactly the right position. If that's the reason then it's a good thing. You want them to be vigilant. Radiation must be very precisely done. 
    Judy M. 
  3. Like
    Judy M. got a reaction from Mally in my mother was diagnosed with lung cancer adenocarcinoma Stage 4   
    LOVEMAMA
    I also have bone mets and will share what little I know. Had a procedure called Ablation and Cementoplasty on a met in my hip. Basically, they drilled into the tumor and placed electrodes and used heat to try to destroy the tumor then injected bone cement (a substance even stronger than bone) into my hip to strengthen it. I'm seeing an Orthopedic Surgeon next week to deal with 2 more mets that showed up on most recent scan. These are also in my left leg. So, I'm thinking some sort of surgery will be done to remove those and strengthen my bone. Also, is your mom in pain? My bone mets have caused me a lot of pain, but this isn't always true for everyone. If so,  radiation can help with the pain. Just throwing out a few options you might want to check into. 
    Judy M. 
  4. Like
    Judy M. reacted to LOVEMAMA in The Journey Continues   
    Hope the surgery goes great for you Judy
  5. Like
    Judy M. reacted to LexieCat in Newbie   
    Has the oncologist gotten the results of testing for molecular markers?  It sounds odd that there are no plans to "treat" the cancer.  
    I think if I were you I'd be looking into eligibility for clinical trials or, at least, getting a second opinion.  It may well be that they can't cure the cancer, but for some people lung cancer can be treated almost as a chronic disease, buying not just a little more time, but potentially decades.  
    When Tom gets back from his cruise I'm sure he will be able to discuss this with you much more effectively than I can--he's like a walking Wikipedia of knowledge of treatments, studies, etc.  And he's personally had just about every complication and treatment type there is--and he's been hanging around for a VERY long time at this point.  
  6. Like
    Judy M. reacted to BridgetO in Newbie   
    Hi Candi,
    You might contact the American Cancer Society. They have some programs to help people get to cancer treatment appointments. You could see if there's one in your area.  The link is:
    https://www.cancer.org/treatment/support-programs-and-services/patient-transportation.html
    Att the best,
    Bridget 
  7. Like
    Judy M. got a reaction from PaulaC in The Journey Continues   
    Thanks everyone. Have donned my battle rattle, Tom, and ready to go another round with this beast. Hoping this surgery goes a lot better than the Ablation did. And I'm also glad to have that specializing specialist Lexie. 
    Judy M. 
     
  8. Like
    Judy M. got a reaction from LexieCat in my mother was diagnosed with lung cancer adenocarcinoma Stage 4   
    LOVEMAMA
    I also have bone mets and will share what little I know. Had a procedure called Ablation and Cementoplasty on a met in my hip. Basically, they drilled into the tumor and placed electrodes and used heat to try to destroy the tumor then injected bone cement (a substance even stronger than bone) into my hip to strengthen it. I'm seeing an Orthopedic Surgeon next week to deal with 2 more mets that showed up on most recent scan. These are also in my left leg. So, I'm thinking some sort of surgery will be done to remove those and strengthen my bone. Also, is your mom in pain? My bone mets have caused me a lot of pain, but this isn't always true for everyone. If so,  radiation can help with the pain. Just throwing out a few options you might want to check into. 
    Judy M. 
  9. Like
    Judy M. got a reaction from Tom Galli in The Journey Continues   
    Thanks everyone. Have donned my battle rattle, Tom, and ready to go another round with this beast. Hoping this surgery goes a lot better than the Ablation did. And I'm also glad to have that specializing specialist Lexie. 
    Judy M. 
     
  10. Like
    Judy M. reacted to Tom Galli in The Journey Continues   
    Judy,
    Hang in there. Lung cancer is persistent and one must muster up large amounts of steadfast resolve to counter persistence. 
    When I read about your recurrence, I think back on my four. Each took the wind out of my sail and with each I had don battle rattle and engage with endured treatment. You know the drill, unfortunately. 
    I hope your orthopedic surgeon excoriates those troubling bone mets. 
    Stay the course. 
    Tom
     
  11. Like
    Judy M. reacted to LexieCat in The Journey Continues   
    Aw, Judy, that sucks.  As you said, though, at least now you know what is causing the pain so you can do something about it.  I'm glad you're being referred to that ortho specialist.
    We'll all be rooting for you, and anxious to hear about the game plan.
    Sending a hug!
  12. Like
    Judy M. reacted to Laurel in The Journey Continues   
    I am so sorry you have more to deal with, but there is a plan. Sending hugs and prayers.
  13. Like
    Judy M. got a reaction from PaulaC in The Journey Continues   
    Well, had my latest bone scan. It shows 2 new bone mets, one on my left hip and one in my left knee. So, I'm being referred to a University Hospital in a larger city and will be seeing an Orthopedic Surgeon who specializes in tumor surgery. I suppose that means he's a specialist specialist. Haha. Certainly not happy with these scan results. But I am thankful to finally know what has caused the severe pain and disability I've experienced since May and to have a possibility of some relief from pain without drugs and the possibility of regaining some of my quality of life. Will be having a PET scan Aug. 2nd to get further input on what else is going on. Since there seem to be few on this site who are dealing with bone mets and haven't seen any who have had surgery for them maybe I'll be able to contribute some new experience. I hope so. 
    Judy M. 
  14. Like
    Judy M. got a reaction from Tom Galli in The Journey Continues   
    Well, had my latest bone scan. It shows 2 new bone mets, one on my left hip and one in my left knee. So, I'm being referred to a University Hospital in a larger city and will be seeing an Orthopedic Surgeon who specializes in tumor surgery. I suppose that means he's a specialist specialist. Haha. Certainly not happy with these scan results. But I am thankful to finally know what has caused the severe pain and disability I've experienced since May and to have a possibility of some relief from pain without drugs and the possibility of regaining some of my quality of life. Will be having a PET scan Aug. 2nd to get further input on what else is going on. Since there seem to be few on this site who are dealing with bone mets and haven't seen any who have had surgery for them maybe I'll be able to contribute some new experience. I hope so. 
    Judy M. 
  15. Like
    Judy M. got a reaction from Tom Galli in Newbie   
    Candi
    It is considered stage IV when it has spread to distant sites like the brain, but it certainly isn't game over. I was stage IV when I was diagnosed a year and 7 months ago. I'm still here and still enjoying being here. And there are many others considered stage IV who have been here longer than I have. But I know how you feel. The first time I talked to my Oncologist I told him I heard him saying, "You're dead." But I wasn't and I'm not. Our fearless leader Tom is a little busy right now, but he would tell you he was once told he had months to live and that was well over ten years ago. We'll each go home when the Lord gets ready to come and get us. Until then I want to stay positive (this group helps with that), enjoy every day, and keep fighting. You'll do well. 
    Judy M
  16. Like
    Judy M. reacted to Candi in Newbie   
    Thank you Bridget and Judy, I look forward to sharing “good news” with everyone and the privilege to meet Tom.
  17. Like
    Judy M. got a reaction from Candi in Newbie   
    Candi
    It is considered stage IV when it has spread to distant sites like the brain, but it certainly isn't game over. I was stage IV when I was diagnosed a year and 7 months ago. I'm still here and still enjoying being here. And there are many others considered stage IV who have been here longer than I have. But I know how you feel. The first time I talked to my Oncologist I told him I heard him saying, "You're dead." But I wasn't and I'm not. Our fearless leader Tom is a little busy right now, but he would tell you he was once told he had months to live and that was well over ten years ago. We'll each go home when the Lord gets ready to come and get us. Until then I want to stay positive (this group helps with that), enjoy every day, and keep fighting. You'll do well. 
    Judy M
  18. Like
    Judy M. got a reaction from Candi in Newbie   
    Thanks for sharing with us. Glad you're feeling good. Oncologist should have a plan of attack. 
    Judy M. 
  19. Like
    Judy M. reacted to Candi in Newbie   
    Thank you suecris and Judy. I did have the PET scan yesterday and an appointment with my dr today. The preliminary report states the cancer has spread in my lung to additional lymph nodes and there are 2 spots on my brain. I see the oncologist tomorrow to see if there is a plan of attack. I’m feeling good (not that that can’t go south quick) but for now I’m doing good.  Thank you so much for asking ❤️
  20. Like
    Judy M. got a reaction from Tom Galli in My mom was just diagnosed with small cell lung cancer   
    Cute Pic!! I understand how your mom could have sounded discouraged after she got results and before her treatment began. To me those are some of the more difficult times. You know it's there and you aren't yet fighting it. That's why the 'further testing' time is so tough. But now sounds like they've got her in the battle and she's rallied to fight this thing. 
    Judy M
  21. Like
    Judy M. got a reaction from Candi in Newbie   
    Me too Candi. Thinking of you and wondering how it went. We're all pulling for you. 
    Judy M
  22. Like
    Judy M. reacted to Faithpower in Introduction   
    Hello,
    My name is Jamie. I am 47 and was diagnosed with stage 4 adenocarcinoma in June 2015.  I am a wife, mother and Mimi. I am currently working 40 hrs a week. I give thanks to the Lord for that ability along with many other blessings. 
  23. Like
    Judy M. reacted to bacchus in Dad diagnosed Stage 4 lung cancer   
    Appt went well.  He tested 60% for keytruda.  Starts it first week of August.  Praying it works! 
  24. Like
    Judy M. got a reaction from BridgetO in New   
    Kay
    Welcome. Don't have a lot of experience with where you're coming from, but will share what I have. My husband had a tumor a few years ago actually in his spine just below where all the nerves who branch off to the rest of the body are located. He was also quite hostile with me at times. I cried over that because I thought it indicated that we didn't have the good relationship I had thought we had. But he was in so much pain I couldn't be angry. That tumor was pressing all of those nerves against the hard bones of his spine. The only time he was out of pain was when they knocked him totally out with I. V. drugs. We talked about this later after all this was past. He told me even though he knew it was unreasonable he was angry because I didn't and couldn't know what he was going through. He'd been given all sorts of heavy pain meds and sleeping pills during our 3 trips to the emergency room and wanted to just keep on taking them when the pain didn't stop rather than take them as directed. I wouldn't let him because I was afraid he'd O. D. Then in the hospital he was amazingly rude and angry with me while I tried to take care of him. Our children even became angry with him watching this. That turned out to be a side effect of the morphine he was being given for pain. Have heard others say they've seen this happen. As soon as he was taken off the morphine he was his own sweet self again. The tumor was benign. We got through that. And he is taking wonderful care of me through this cancer. 
    As far as being angry because he's had all the tests and it's been months and no treatment is happening I'd be angry too. I have great docs and health care providers but sometimes you have to make a little noise and be persistent about it so that you don't slip through the cracks because they are so overwhelmed with patients. My Medical Oncologist actually told me that at the beginning when I couldn't seem to get an appointment with him to get my treatment started. And since I've never been a shrinking violet when it comes to being my own advocate for medical care I've done that when necessary. I hope I haven't been rude with them but I have been insistent and persistent at times. 
    The advice to find a caregiver group in your area is excellent. Hope some of this helps. And we're always here if you need to vent. I'm sure you'll soon hear from some caregivers who have walked in your shoes. 
    Judy M. 
  25. Like
    Judy M. got a reaction from LexieCat in Simulation?   
    I don't know then. Thirty sounds like standard radiation and I only had one set up sort of thing for that. You might just ask them. I ask a lot of questions of all my doctors. The physicists were actually thrilled that I was interested in what they do or even noticed. You'd probably have to go with her and ask her Radiation Oncologist when she visits him as at least my Radiologists don't allow anyone past the waiting room when I have treatments. I find Radiation and what goes into it really interesting. Please let us know when you find out. I'm puzzled about it too. 
    Judy M
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