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Patkid

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Posts posted by Patkid

  1. Try not to assume the worst. I know it is hard.............Brian got a scary diagnosis too, but keep hope and positive thinking in the mix. There are a lot of wonderful stories of folks NOT BEING STATISTICS. Your mom is person and not a number.

    Your family is permantly a part of our prayer concerns.

    We care.

    Brian and Pat

  2. Wow,

    I read and inhaled every word from the link you sent us, Ry. Thank you!!

    This group is awesome.

    Using AA skills really hit home w/ Brian and I, too. Each of us is a recovering alcoholic.........................years and years of sobriety..........but we still use AA skills and had begun applying them to LC. Our experience is reinforced by Cindy's words on the thread you linked us to..............Thank you, Cindy.

    Thank you all.

    We are not as "together" as most of you..........still flailing around and scared to pieces, still like "deer in the headlights" and still wondering if they got Brian's xray and CT scan mixed up with some other person who has Lung Cancer.........

    We are so blessed to have found you...

    Don't give up on us. We need you.

    Brian and Pat

  3. What a loving caring daughter you are. I am sure that you are a comfort to your dad and mom.

    Family is a wonderful gift during hard and scary times. We care and will add your family to our prayer concerns.

    Brian and Pat O

  4. OOOO.......we are so jealous of an opportunity to play slots for a bit..........a guilty (but very rare) pleasure for us, too. Doc recommended that Brian stay away from crowds and smokey places............that certainly describes our casino boat! Enjoy and we are hoping for a Jackpot for you!

    Brian and Pat

  5. Blessings...........Grace............and Good News.

    RE: ER Doc..........They can't all be good...............50% of the doctors graduated in the bottom 50% of their classes!!

    Hopefully you won't meet another dud for a while. I think most of them really really try to care for us.

    Pat and Brian

  6. All,

    Brian and I are so grateful for all of you. It is taking some time to get all of you sorted out and figure out and remember who is who but each of you is already precious to us.

    Brian is weathering his first round of chemo fairly well. We just realized that round two will start on 3/23--- and go through Good Friday........Just in time to feel yucky for Easter...........guess this is the type of thing we shoud get used to.

    Can any of you give advice on how to live TODAY while tomorrow looms so scary? That is our biggest problem We seem to be "on the edge of our seats" all the time............

    Prayer helps, as do you guys.

    Thank you

    Thank you

    Thank you

  7. Hello, sweetie,

    You are a good daughter. Hugs to you!

    I am sure that all this is new and that things will change as you go along. My husband was diagnosed w/ Lung cancer and liver involvement, too.....just last month. It is scary for us, too. Brian and I are just feeling our way through this darkness. We trust our God and know He is holding us close. I am sure there is room in His arms for all of us. God is especially tender with His children who are scared and suffering.

    Try to just support your mom, no matter your opinions. That is what I am doing for Brian.

    If he raises the bet.........I call it

    If he makes a motion..........I second it.

    The patient doesn't have much control and so I try to make sure that anything Brian can make a rule about..............I follow.

    We are adding you to our prayer concerns.

    This board is very supportive. I am new here, but read everyday and gain strength.

    Best to you and your family.

    Pat

  8. Dearest Cindy,

    There are alot of really great things to wait for: birthdays, the mailman, sunrise and sunset, evidence of God's Grace and Love, Planes, Vacations, jackpots, bedtime.................................heart attacks suck. We vote w/ the others. Your WHOLE BODY deserves your concern ........... and ours!

    Much love and support from Brian and Pat.

    (Brian's "car buddies" call us BRAT when they refer to both of us at once :))

  9. Bill,

    We are no experts............we can only speak from experience.....Brian had a fine needle biopsy. It went smoothly and safely. He only had a bit of soreness afterward for a couple days. It was easy-peasy (our grandaughter's favorite word) and he is glad to have had it.

    We are so sorry for your anxiousness. We have all those same feelings of dread and fear. Try to breathe and trust and know there are lots of us in the same boat and we will be praying for you and all of us.

  10. All, Any input will be welcomed. I am having a really odd reaction to Brian's DX................

    In 1993 I was widowed. My then husband had a massive heart attack w/ no warning and died in our living room on a Saturday night.....It was traumatic. I focused on the needs of the children and taking care of all the things that needed taking care of..............I don't think I really realized what happened for years. Then I noticed that I was living w/ a feeling of dread..............every ache or pain or twitch or catch........became a warning of immenent death...........It took a long time to move beyond that..............I never wanted to marry again, but then I met Brian..............He is so optomistic and loving and gentle..........I could only love him.........so I denied my fears and agreed to marry him. He promised he would stay healthy.

    Well, we all know the way that went.........

    Anyway. Today (just a couple weeks into this whole journey) I am starting those old patterns of thinking I am going to die-soon. I can't shake it. I smoked as long as Brian did (we are the same age and quit at the same time), and cancer is in my family, not his..................Now I am convinced I have cancer, too and that I have just not gotten a DX. I have kept these feelings to myself as Brian is being so brave and determined and positive....................I WILL NOT let him know how I am worried.

    Did anyone else have these feelings? I wonder if it is like med students who think they have every disease they learn about........or maybe I am just nuts or.........maybe I am right?

    Thanks for listening and I welcome any help or advice, input or opinion. Thank you for being here.

    T

  11. Welcome, Pam,

    I am very new, also. My husband is dx w/ nslc. We were completely shocked by the incidental finding on an Xray.

    I have only posted a couple times so far, but eveyone has been lovely, and so supportive. This site is a gift of God's Grace.

    Hug your sister for us.

    I lost my younger sister at age 50 to SCLC in 2001 . She was very very sick before she was diagnosed correctly and only lived 18 months after the dx.

    Brian (my husband) is very healthy and I am hopeful that he will be able to put up a good fight. So far chemo is going fairly well.

    Next round starts 3/23.

    We all care................count on us.

  12. Thank you

    Thank you

    Thank you.

    I am just reeling. Today, instead of sad I was angry all day. Everything - large or small - set me off.

    I am praying to do better, but am so scared.

    Brian, is so determined and so good hearted. I am so angry that this happened to him on top of him being a good sport about not having a right hand.

    I am really really trying and will do much better tomorrow.

    Thank you for being here

  13. Brian and I feel so much less alone! Thank you for all the kind words. The vocabulary is new to us, but here is what we know.

    Brian was fine.

    He was working 10 hours per night.

    He had a little cough that the docs always attributed to the Monopril he was on.

    His medical hx was a dx of Mitral Valve disorder (controlled) and an Industrial Accident in 2001 that took his right hand and wrist. We thought we had weathered the storm...........................Then the cardiologist wanted to give him a thorough check up and decided to do an angiogram after the echo cardiogram. During the pre testing for the angio they did a chest xray.

    Brian's primary doc called on 2/7 and told us to come in on 2/8 that the xray showed something he wanted to double check. The angio was cancelled. Brian had a CT scan that confirmed the mass on his lung and showed liver concerns, as well. He had a brain CT that was clear. I think they found a brain.................just no mets.

    Primary sent us to Onc. He ordered needle biopsy and PET Scan We have not had the big talk yet: Here is what we know:

    Poorly differentiated Lung CA with 2 spots in the middle of his chest..Lymph? I did not get that........I just saw them on the PET scan he showed us. and another large tumor on his liver.

    ONC said Brian is not a candiate for surgery. Said he is not a candidate for radiation since the liver needs to be treated w/ high dose of chemo that would not be possible if we radiate the lung.

    So last Wed. Brian had 8 hours of chemo (Cisplatin and VP16.) All new to us. Then Thurs and Friday he has VP16 for about 2 hours.

    He will not go back till 3/23 and then they will repeat the cycle. After the following 21 days they will rescan and make new plans.

    We are completely overwhelmed. Doc did not talk about any alternatives to chemo and Brian says he is completely satisfied with the direction we are taking. He trusts both the ONC and his primary. He likes the sense of urgency he picked up and the fact that they did not act like there was not a reason to treat him.

    I am not sure what any of this means..........I don't understand staging or prognosis or what we are in for.

    I am praying and praying and praying for the strength to do what is right. We are scared to death. doc told Brian not to go to work and to apply of SS Disability..............Don't forget ...Brian did not miss a beat when he lost his right hand!!!!!!!!!! He even ties his shoes and still runs his DeVlieg Machine the same as he did w/ 2 hands. He is incredible.

    I am so scared. I don't know what to expect or if this means that Brian is a little sick, pretty sick or very sick.

    My sister died of lung cancer (small cell) when she was 50. But she was very sick when they finally diagnosed her.

    Brian is 56 and was in robust health at the time of his dx.

    Please offer any help or advice or anything and thanks for being here!!

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