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LUNGevityKristin

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Everything posted by LUNGevityKristin

  1. The webinar can be viewed here: https://www.facebook.com/lungevity/videos/768066160870003/
  2. Hi everyone! Be sure to join Dr. Upal Basu Roy and Dr. Christine Lovly tomorrow, May 24th at 12pm ET for a special LIVE Q&A during the EGFR Resisters & Researchers webinar. You can watch more information here: https://www.facebook.com/lungevity/videos/354509453442296/ Be sure to head to the LUNGevity Facebook page at 12pm ET 5/24 to get your EGFR questions answered by the experts. Please let me know if you have any questions or need additional information.
  3. A beautiful tribute to Teri. She will be so missed.
  4. Hi Justin, I'm not sure why they wouldn't want to wait for biomarker testing results before starting treatment. If you have an actionable biomarker, that could mean a completely different treatment plan. Did they say when they expect the biomarker testing results to be back?
  5. Hi Justin, I'm sorry to hear about your diagnosis but happy you found this wonderful community. Here is some information on navigating your diagnosis: https://www.lungevity.org/for-patients-caregivers/navigating-your-diagnosis Have you had biomarker testing?
  6. Hi D iane, sending you a big hug. I agree with what LexiCat mentioned above. You are always welcome here. Your experience as a caregiver is so valuable to caregivers now. We do have a LUNGevity Legacy Facebook Group for those whose loved ones have passed away from lung cancer: https://www.facebook.com/groups/51580140634/permalink/10165124375825635/ And if you would like to advocate for lung cancer, there are many different ways you can get involved: https://lungevity.org/for-supporters-advocates Keeping you in my thoughts.
  7. LUNGevity Action Network: A new way for lung cancer advocates to engage. https://lungevity.org/for-supporters-advocates/lungevity-action-network Our community needs to unite to bring about change for people affected by lung cancer. Now advocates can join the new LUNGevity Action Network to take action. Get involved and make a difference! Through the Action Network, you will be equipped with the training, tools, and resources you need to amplify your voice and your impact. Whether you are interested in policy, raising awareness, or both, everything you need to be a successful advocate will be accessible, easy-to-use, and delivered right to your inbox! There is so much you can accomplish by signing up for the LUNGevity Action Network. POLICY Make your voice heard on the issues that affect the lung cancer community. Learn about important issues Sign petitions Complete surveys Comment on regulations and write your legislators AWARENESS Help educate, engage, and empower your community. Create and share social media posts Share your story via blog, at local events, and/or with local media Distribute educational materials at your local hospital, clinical, or support group Exhibit at local events (i.e. health and resource fairs, expos, conferences) It's always your choice whether to take the action; but the more you do, the greater your impact and the more you'll see how powerful your voice can be when combined with others like you. Questions? Reach out to action@lungevity.org.
  8. Biomarker testing results can take up to 4 weeks or longer for the provider and patient to receive. Ideally, treatment should not begin until you receive ALL biomarker testing results so that your doctor has a complete picture of your lung cancer, and can together develop the most appropriate care/treatment plan. However, for some people experiencing severe symptoms, starting treatment immediately may be necessary. LUNGevity would like to know about your experience waiting for your complete comprehensive biomarker testing results. What was that like? How long did you wait? What did your doctor tell you while you were waiting? Did you start on a treatment while you were waiting?
  9. That is amazing, Heather! LUNGevity has two big fundraisers coming up in October. One is the Breathe Deep Together 5K and the other is eRace Lung Cancer Endurance Challenge-this can even be done as a relay! If anyone would like to participate or encourage family and friends to join, all of the information can be found here:https://lungevity.org/for-supporters-advocates/support-our-work
  10. D iane, I am so sorry to hear this. I'm thinking of you and please know we are here for you.
  11. Hi Diane, How is your husband feeling?
  12. Great update, D iane! So glad his stomach and heartburn are doing better.
  13. Happy Thanksgiving, Diane! Enjoy the little break from doctor visits!
  14. LUNGevity has a Clinical Trial Finder and can also match you with a Clinical Trial Navigator. All of the information is HERE if you would like to go that route.
  15. I'm sorry to hear that there are metastases. If you or your husband would like to speak with someone one on one who is going through similar treatment, LUNGevity has a peer-to-peer mentoring program. https://lungevity.org/for-patients-caregivers/support-services/peer-to-peer-mentoring There is also the HELPLine https://lungevity.org/for-patients-caregivers/support-services/lung-cancer-helpline staffed by oncologist social workers that can offer support. Both of these are free services. If you have any questions, please let me know.
  16. Diane, You are welcome to keep this thread going with updates or move into the SCLC forum. Wherever you post, we are here for you!
  17. There also is a small cell webinar coming up soon, here is the link to register: https://docs.google.com/forms/d/e/1FAIpQLScC-JjpjYPv7mQlP847CJFue4igf7zgVnq1PNF1qXyPLJaPYQ/viewform
  18. Hi Diane, I'm sorry to hear of your husband's diagnosis. LUNGevity has a clinical trial finder and can also connect you with a clinical trial navigator if you decide to go that route. The information for both is HERE. Lung Cancer 101 might also be helpful for you. We are here to support you!
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