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bunny

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  1. well it's that time again - my favorite season, where I am especially happy to be a religious mutt. I get the joy and miraculous rebirth of easter in my heart, and the miracles and redemption of passover, too. plus matzoh bri (which I will make for anyone who wants it, it's heaven) AND chocolate.

    so there's this half prayer/half song that occurs towards the end of the sedar which repeats over and over the hebrew word "deyenu" which means "it would have been enough".

    the idea is that any ONE of god's interventions would have been miraculous and 'enough', but we (in the sedar, the jews but to me, everyone) have received miracle after miracle, and there is no end or limit to god's love...

    so here's mine:

    if my mother had only survived LC

    DEYENU!

    if we'd only found one great doctor for mom

    DEYENU!

    if I'd only made one friend here at LCSC

    DEYENU!

    if I'd only been freed of my addictions at such a young age

    DEYENU!

    if I'd only met the man who is my anchor to the world

    DEYENU!

    if I'd only found this job that fills my soul AND pays the bills

    DEYENU!

    get it? :D

  2. hi! my mother's docs all recommended adjuvent chemo. apparently, there is a short window after surgery where it is most effective. in the end, my mom missed the window and was generally too weakened by surgical complications to have traditional chemotherapy. it was planned for her, though.

    she is now on Tarceva.

    good luck!

    xoxo

    amie

  3. here I am!! please let me know if you want to get together. my mom is on tarceva, too, so I am glad they're raising awareness on it. :) listen, I would love to make recommendations - let me know what you have in mind.

    I giggled at Randy's post - from a NYer point of view, the Empire State Bldg, St. Patrick's and Ground Zero are each in TOTALLY different parts of the city (I love St. Patrick's, esp.) ...but I guess, technically, they are not THAT far apart. it just shows you how different things can look to a native versus a visitor.

    my office overlooks Times Square. I can meet you pretty much anywhere for lunch, or whatever, if you're up for it!

    do let me know the details.

    xoxo

  4. mom had a spot of BAC show up in the summer of 2002, which never grew. it was too far in to biopsy without cracking her chest open, so we watched it - the SUV went up and down a bit on her PETs, but it never actually got bigger. another tumor, however, showed up in May of 2005 which was biopsiable (is that a word!?) and turned out to be the same NSCLC-BAC she'd had in 2000. after her pneumonectomy, both tumors were found to be cancerous, along with a handful of lymph nodes.

    so that's a long way of saying that it grows slowly.

    good luck,

    xoxo

    amie

  5. I wasn't on the board when uncle doug was active, but I know Patkid is in touch with him from time to time. the last report was that he did, indeed, have progression of his cancer but I don't know how serious, or what the treatment plan was. maybe drop patkid a PM...

    I think of you often since the loss of jcawork. hope you're as well as can be expected.

  6. well I have been a little slow on the uptake but have settled on November 11 for a NYC lung cancer walk, to benefit Lungevity and the LCSC. I will file for the permit for Central Park this week. since it's veterans day, I'd love to find a "grand marshall" for the walk who is a vet and an LC survivor, so if anyone knows someone who fits the bill let me know...

    yay!!! who's on my New York City team, then!!?!?

    xoxo

    bunny

  7. this sounds so, so hard. of course, I am tempted to tell you to talk your mom out of this and if you're so inclined there are plenty of survivors here to support the position!! whatever happens, I'll keep you in my thoughts.

    xoxo

    amie

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