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Posts posted by bunny
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well it's that time again - my favorite season, where I am especially happy to be a religious mutt. I get the joy and miraculous rebirth of easter in my heart, and the miracles and redemption of passover, too. plus matzoh bri (which I will make for anyone who wants it, it's heaven) AND chocolate.
so there's this half prayer/half song that occurs towards the end of the sedar which repeats over and over the hebrew word "deyenu" which means "it would have been enough".
the idea is that any ONE of god's interventions would have been miraculous and 'enough', but we (in the sedar, the jews but to me, everyone) have received miracle after miracle, and there is no end or limit to god's love...
so here's mine:
if my mother had only survived LC
DEYENU!
if we'd only found one great doctor for mom
DEYENU!
if I'd only made one friend here at LCSC
DEYENU!
if I'd only been freed of my addictions at such a young age
DEYENU!
if I'd only met the man who is my anchor to the world
DEYENU!
if I'd only found this job that fills my soul AND pays the bills
DEYENU!
get it?
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hugs, Peggy. just...hugs. and prayers, too.
xoxo
bunny
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yup, always go with your gut! have a great trip, and keep us posted!!
xoxo
amie
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hi! my mother's docs all recommended adjuvent chemo. apparently, there is a short window after surgery where it is most effective. in the end, my mom missed the window and was generally too weakened by surgical complications to have traditional chemotherapy. it was planned for her, though.
she is now on Tarceva.
good luck!
xoxo
amie
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(((((Carleen & Keith)))))
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I am so thrilled to hear some peace in your voice, and that your mom has a little comfort right now. you're never far from my thoughts, Lori, and Lori-mama.
xoxo
bunny
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sorry, honey. I know what a friend and fellow traveler he was to you.
xoxo
amie
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hey!! I just saw this. I am so sorry you're so uncomfortable and in pain! hopefully, they got it all out and you'll heal quickly from now on.
please keep us posted!
xoxo
amie
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here I am!! please let me know if you want to get together. my mom is on tarceva, too, so I am glad they're raising awareness on it. listen, I would love to make recommendations - let me know what you have in mind.
I giggled at Randy's post - from a NYer point of view, the Empire State Bldg, St. Patrick's and Ground Zero are each in TOTALLY different parts of the city (I love St. Patrick's, esp.) ...but I guess, technically, they are not THAT far apart. it just shows you how different things can look to a native versus a visitor.
my office overlooks Times Square. I can meet you pretty much anywhere for lunch, or whatever, if you're up for it!
do let me know the details.
xoxo
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thanks, all. good suggestions, Ry.
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mom had a spot of BAC show up in the summer of 2002, which never grew. it was too far in to biopsy without cracking her chest open, so we watched it - the SUV went up and down a bit on her PETs, but it never actually got bigger. another tumor, however, showed up in May of 2005 which was biopsiable (is that a word!?) and turned out to be the same NSCLC-BAC she'd had in 2000. after her pneumonectomy, both tumors were found to be cancerous, along with a handful of lymph nodes.
so that's a long way of saying that it grows slowly.
good luck,
xoxo
amie
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I'm just so happy to hear that you're breathing easier. you've been through so much, that's the LEAST you should be able to expect...
xoxo
amie
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sorry you're having this trouble. my mom has never had bone mets, but did really well on a pain drug call neurontin. good luck with this, I hope you get some relief.
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I wish I knew a darn thing to say. I just don't. I just FELT every word you wrote, to my core. I'm so sorry, honey. I'm just so, so sorry.
xoxo
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looks, to me, like it's breathing. takes me back to my grateful dead years, if ya know what I mean...
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metrocard. (couldn't get the picture to post, it's what replaced tokens in the NYC subway...)
and keys, of course.
if I were being 'deep', I'd say I never leave home without inviting god into my day...on the good days.
xoxo
bunny
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I wasn't on the board when uncle doug was active, but I know Patkid is in touch with him from time to time. the last report was that he did, indeed, have progression of his cancer but I don't know how serious, or what the treatment plan was. maybe drop patkid a PM...
I think of you often since the loss of jcawork. hope you're as well as can be expected.
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well I have been a little slow on the uptake but have settled on November 11 for a NYC lung cancer walk, to benefit Lungevity and the LCSC. I will file for the permit for Central Park this week. since it's veterans day, I'd love to find a "grand marshall" for the walk who is a vet and an LC survivor, so if anyone knows someone who fits the bill let me know...
yay!!! who's on my New York City team, then!!?!?
xoxo
bunny
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this is the great news I signed on looking for.
xoxo
amie
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this sounds so, so hard. of course, I am tempted to tell you to talk your mom out of this and if you're so inclined there are plenty of survivors here to support the position!! whatever happens, I'll keep you in my thoughts.
xoxo
amie
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Kasey, this is devastating news for your family, I know, but as the proud daughter of a one-lung-wonder, I am praying the surgery does what it's meant to and CURES her.
xoxo
amie
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oh, honey. I just saw this. you're in my thoughts alot anyway, but I will say an extra prayer.
xoxo
bunny
Alimta so far...
in MEMBER UPDATES
Posted
Ry, I hope John feels better with a break and that there are other options...
xoxo
bunny