AleHondaa
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Posts
125 -
Joined
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Last visited
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Days Won
4
Reputation Activity
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AleHondaa got a reaction from Justin1970 in My updates (22 Years old, NSCLC)
Hey guys,
I got my results and it’s not good. Severe brain mets, I’m at the hospital rn so they can put on steroids and see a radiation oncologists see what I can do. I feel like I’m in the endgame now. But we’ll see what happens.
Ale
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AleHondaa got a reaction from Tom Galli in My updates (22 Years old, NSCLC)
Probably cause it spread a good amount
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AleHondaa got a reaction from Tom Galli in My updates (22 Years old, NSCLC)
@LilyMir it straight from mri, I’ve Been fine til now. I can’t speak that well but that’s it
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AleHondaa got a reaction from Karen_L in My updates (22 Years old, NSCLC)
Hey guys!
I hope you guys a great Christmas and have a happy new year as well! I’ve been okay I guess, better than I have before and I now have a full time job so I’m working again. Keeping myself distracted from everything, I’m still having major financial problems but that will resolve within time I guess. I been having headaches like migraines lately like everyday for the past couple days. Is this to do with the keytruda? I heard that it’s a side effect from it but I’m not entirely sure. I’ll be seeing my doctor in the next week so if it’s needed to brought up I will. @Karen_L thank you for the advice I just saw it recently but a lot of what you said has been helpful. It’s what I’ve been trying to do since everything has happened. If anyone can help out that would be great! I really hate to think of the worse but that what immediately comes to mind with all this.
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AleHondaa got a reaction from Izzy in My updates (22 Years old, NSCLC)
Tom and Lou,
Thank you guys for the clarity. This has been a tough road and it’s clear that it will have a mark on our mental health at one point. From what I’m seeing, it’s fatigue from the battle really, and our mental health is a cost to this if we let it. I will continue to better myself as much as I can as I go through these struggles in life. But what’s important is that I’m still here, still around and I should be grateful for this. I tend to spend a lot of time in the past, trying to realize what I could’ve done differently but really that’s most likely what has been dragging me down. I didn’t have control back then and I definitely don’t have control later on from now.
Thank you,
Ale
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AleHondaa got a reaction from Tom Galli in My updates (22 Years old, NSCLC)
In Philly right now they gonna some procedures tomorrow hopefully it helps
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AleHondaa got a reaction from Tom Galli in My updates (22 Years old, NSCLC)
Hey guys,
I got my results and it’s not good. Severe brain mets, I’m at the hospital rn so they can put on steroids and see a radiation oncologists see what I can do. I feel like I’m in the endgame now. But we’ll see what happens.
Ale
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AleHondaa got a reaction from LouT in My updates (22 Years old, NSCLC)
In Philly right now they gonna some procedures tomorrow hopefully it helps
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AleHondaa got a reaction from LouT in My updates (22 Years old, NSCLC)
Probably cause it spread a good amount
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AleHondaa got a reaction from LouT in My updates (22 Years old, NSCLC)
@LilyMir it straight from mri, I’ve Been fine til now. I can’t speak that well but that’s it
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AleHondaa got a reaction from LouT in My updates (22 Years old, NSCLC)
Hey guys,
I got my results and it’s not good. Severe brain mets, I’m at the hospital rn so they can put on steroids and see a radiation oncologists see what I can do. I feel like I’m in the endgame now. But we’ll see what happens.
Ale
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AleHondaa got a reaction from Izzy in My updates (22 Years old, NSCLC)
In Philly right now they gonna some procedures tomorrow hopefully it helps
-
AleHondaa got a reaction from Izzy in My updates (22 Years old, NSCLC)
Probably cause it spread a good amount
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AleHondaa got a reaction from Izzy in My updates (22 Years old, NSCLC)
@LilyMir it straight from mri, I’ve Been fine til now. I can’t speak that well but that’s it
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AleHondaa got a reaction from Izzy in My updates (22 Years old, NSCLC)
Hey guys,
I got my results and it’s not good. Severe brain mets, I’m at the hospital rn so they can put on steroids and see a radiation oncologists see what I can do. I feel like I’m in the endgame now. But we’ll see what happens.
Ale
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AleHondaa got a reaction from Justin1970 in My updates (22 Years old, NSCLC)
In Philly right now they gonna some procedures tomorrow hopefully it helps
-
AleHondaa got a reaction from Justin1970 in My updates (22 Years old, NSCLC)
Probably cause it spread a good amount
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AleHondaa got a reaction from Justin1970 in My updates (22 Years old, NSCLC)
@LilyMir it straight from mri, I’ve Been fine til now. I can’t speak that well but that’s it
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AleHondaa got a reaction from LilyMir in My updates (22 Years old, NSCLC)
Hey guys,
I got my results and it’s not good. Severe brain mets, I’m at the hospital rn so they can put on steroids and see a radiation oncologists see what I can do. I feel like I’m in the endgame now. But we’ll see what happens.
Ale
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AleHondaa reacted to LouT in My updates (22 Years old, NSCLC)
Ale,
Hand in there my friend. Worry can't change the outcome of the test and until you know there is something wrong can only rob you of peace. I know that going through this is hard, but you can do it and if you need any other kinds of help then reach out for them. And you are added to my prayer list.
Lou
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AleHondaa got a reaction from Justin1970 in My updates (22 Years old, NSCLC)
Hey guys!
I hope you guys a great Christmas and have a happy new year as well! I’ve been okay I guess, better than I have before and I now have a full time job so I’m working again. Keeping myself distracted from everything, I’m still having major financial problems but that will resolve within time I guess. I been having headaches like migraines lately like everyday for the past couple days. Is this to do with the keytruda? I heard that it’s a side effect from it but I’m not entirely sure. I’ll be seeing my doctor in the next week so if it’s needed to brought up I will. @Karen_L thank you for the advice I just saw it recently but a lot of what you said has been helpful. It’s what I’ve been trying to do since everything has happened. If anyone can help out that would be great! I really hate to think of the worse but that what immediately comes to mind with all this.
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AleHondaa got a reaction from Justin1970 in My updates (22 Years old, NSCLC)
Hey guys
So continuing off my last posts, doc Ordered an MRI of my head. Which is really concerning me bout spread to my brain. I’m really scared for health and future. So let’s pray it’s nothing like that.
Thank y’all
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AleHondaa reacted to LilyMir in My updates (22 Years old, NSCLC)
Try to pull back from negative thoughts for now, hoping it is nothing and just stress related but very happy your doctor was proactive. Even if there was something, there is much they can do usually so stay hopeful. I know how it is, I often catastrophize every symptom I feel but it is quite detrimental and I try to learn to pull back from such thoughts quickly.
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AleHondaa got a reaction from LouT in My updates (22 Years old, NSCLC)
Hey guys!
I hope you guys a great Christmas and have a happy new year as well! I’ve been okay I guess, better than I have before and I now have a full time job so I’m working again. Keeping myself distracted from everything, I’m still having major financial problems but that will resolve within time I guess. I been having headaches like migraines lately like everyday for the past couple days. Is this to do with the keytruda? I heard that it’s a side effect from it but I’m not entirely sure. I’ll be seeing my doctor in the next week so if it’s needed to brought up I will. @Karen_L thank you for the advice I just saw it recently but a lot of what you said has been helpful. It’s what I’ve been trying to do since everything has happened. If anyone can help out that would be great! I really hate to think of the worse but that what immediately comes to mind with all this.
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AleHondaa reacted to RJN in My updates (22 Years old, NSCLC)
A Happy Christmas to you too! (And everyone else on here).
Re your headaches. I have been on Keytruda for 15 months now, and haven’t experienced headaches. But in the various immunotherapy FB groups I am in, people have 100s of different side effects so it wouldn’t surprise me. One thing I would recommend is that you stay super hydrated as it seems to decrease many of the side effects from Keytruda. And of course tell your medical team.