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Jyoung20

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Posts posted by Jyoung20

    radiation burn

    in NSCLC GROUP

    Posted

    Hey Don,

    I know I am a little late with response but I wantd to let you know what we did during radiation. My mom was very diligent about treating the radiated area. We used Aquaphor and she would apply every day after radiation. Not before because we were instructed to wait until after. I never got burned on the outside, just really bad on the inside. I did get a little tan.

    GOD BLESS!!

    Jamie

    Tarceva and a media opportunity

    in ADVOCACY

    Posted

    Here is the note about the media opportunities.

    I wanted to get your thoughts on whether you feel like any of these folks would be interested in working with us in their local areas to possibly do media outreach (of course provided their physician would be willing to speak along with them.

    If you are doing well on Tarceva this could be an opportunity to spread the word to others who may not know about the drug. I realize this is also a great benefit to the drug company but I keep thinking of where I might be without them. Needless to say, an opportunity to promote awareness in your area about lung cancer.

    No pressure---just wanted to let you know this opportunity exists.

    GOD BLESS!!

    Jamie

    Tarceva and a media opportunity

    in ADVOCACY

    Posted

    As you may know, I just got home from a trip to New York. It was a press conference presented by Genentech, the maker of Tarceva. I just received a request from one of the directors. She asked if I knew any other survivors currently taking Tarceva. I told her about this site and she wanted me to ask if any of you that are currently taking Tarceva would be interested in being contacted by the media in your area. I told her I would let you know. If this is something you are interested in, you can pm me or e-mail me and I will forward it to her.

    I know that my trip was an opportunity to bring awareness to a number of journalists from various magazines.

    GOD BLESS!!

    Jamie

    Want the most people to see this

    in GENERAL

    Posted

    Here is the response I received.

    Thank you for contacting Coldwater Creek. We are glad that you wrote and are pleased to have the opportunity to respond.

    We appreciate your great comments regarding our support for the Susan K. Komen Foundation. We have forwarded your note and your suggestion to the appropriate department.

    Porta Cath.

    in NSCLC GROUP

    Posted

    The port made everything so much easier for me. I get my flushed about evey two to three months. If it doesn't want to work, they use heperin (SP). I couldn't have made it without the port. The first time they tried to set an I.V. at the beginning of chemo, I was stuck 11 times. That was the end of that. Now it's only one stick and if you have chemo every day, it can be acsessed for up to 5 days I think. Good luck.

    The only thing I would do differently is to ask for I.V. anesthesia during the procedure to put it in. Not just localized anesthesia.

    Hope this helps,

    Jamie

    tarceva confusion

    in NSCLC GROUP

    Posted

    Hi Magic,

    I have been on Tarceva now for almost a year and have been very fortunate in that it has kept my cancer at bay. This was a first line treatment and I began as soon as raidation and chemo were finished. In comparision to the chemo and radiation, the side effects for me have been minimal. Dry skin that I battle all of the time. Rashes on my arms and face sometimes.(they do go away). Very sensitive skin and very, very dry skin around my extremities. The skin on my fingers will just split open. I have also found that it takes longer to heal those areas.

    I know this sounds like alot but these are only minor issues. I am just letting you know all of my side effects. People are affected differently as they are with most medicines. So, the side effects that I have may not be the same for someone else. I have found ways to deal with these side effects. Change in diet, fish oil, all-natural and/or organic skin products. So far, it has been very tolerable

    Hope this helps!!

    GOD BLESS!

    Jamie

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