elki

I have stage 4 adenocarcinoma. Today I got my molecular test results back and I have no targetable mutations. I also have PDL1 expression of <1%, which means although they are gonna gibe me Keytruda, they don't anticipate it working well. I'm starting a chemo doublet of pemetrexed and carboplatin. I've been warned it could be brutal. I've asked not to be given a prognosis/time left unless it's essential and I'm not getting any treatment that is expected/hoped to extend my life. That said, my lung nurse completed the SR1 form, which is a welfare benefit form for people in the UK with less than 12 months left. I'm really, really low. I haven't had any good news since this began, nothing to hang onto at all. It just gets worse. I'm almost symptomless - just a bit of pain from my lymph nodes now and again, but nothing else. No cough, no breathlessness. How do I stay positive? I'm 40, with young children. I don't know how to process this. It feels like it can't be true. I'm frightened and heartbroken to see my family’s pain.

Thanks so much everyone. I'm doing okay, but in a way, I knew it was coming. Everyone around me was in denial throughout the diagnosis process, but not me. My loved ones are having a lot of problems. I'll keep you posted 😊

Hello! I'm Ellen, I'm 40 years old and I was diagnosed with stage 4 adenocarcinoma of the right lung just a week ago. It was discovered when I went to hospital with severe upper right abdominal pain. It's still not clear what caused it, and it never came back, but it put me on the road to my diagnosis. I'm free of symptoms at the moment, so it's very surreal. Waiting for molecular testing to be done so I can get a treatment plan. I have young children and I'm very scared.