Ellen B.
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Posts posted by Ellen B.
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A Dutch member here. Thanks for the link.
Ellen.
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Congratulations, Kasey!!
Henk and Ellen.
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Praying for you. Ellen.
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Thank you all.
Kasey,
congratulations with 6 years since dx today!!
Wow!
Ellen and Henk
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Thanks everyone!
Today we are celebrating 5 years since dx.
Five years ago, Henk docs gave him 6-12 months at most.
Ellen.
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Henk had his 6 month chest X-ray today. All clear, NED.
The doctor congratulated him and said is't highly unlikely that the LC will come back.
It's 4 year and 9 month since diagnosis and 4 year and 4 month since last LC treatment.
Thank you all for your support!
Ellen.
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Congratulations, Donna!!!!
Ellen.
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Henk is IIIB, diagnosed september 2005. Ellen.
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Raney Fleck
in GRIEF
I'm so very, very sorry. Ellen.
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It's more than 2 years ago that Henk had his last (first line) chemo treatment. He didn't have any treatment or meds for his LC since February 2006.
He's feeling well and considered stable but he doesn't get scans anymore. X-rays only. So we really don't know how he is doing 'cancer wise'.
Ellen.
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Praying for great results. Ellen.
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Very good. Love it. Ellen.
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Praying for pain control and suitable trial. Ellen.
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Yes! Very glad with this news. Ellen.
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Thanks Sue! I don't know why, but I missed the good news post. Ellen.
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Connie,
Thinking of you today. Prayers for a successful surgery.
Ellen.
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Praying for successful surgery and a speedy recovery!
Ellen.
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Praying for both of you. Ellen.
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Welcome, Nick.
Being Dutch, I do speak the language. Let me know if I can help you.
Ellen.
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Lisa,
I don't know about adrenal glands, but Henks CT-scan said that his liver was 'suspicious for mets'. The PET scan didn't confirm this (he had both scans before dx) and the docs ordered some extra tests for the liver. They said it was important to know if the liver was involved, because the treatment would be different.
It's good to have a second opinion about surgery.
But even if it's inoperable, there still is hope. Henks dx was more than two years ago and he is doing well without surgery!
Henk was on oxycontin before the radiation. But after the radiation, the pain was gone.
Ellen.
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I agree with Ry. I love to read positive stories! Ellen.
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Can't your mum have radiation for pain relief?
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Prayers for you and your family.
Ellen.
10 year survivor
in SHARE YOUR LUNG CANCER STORY
Posted
Tomorrow it will be 10 years ago that Henk was diagnosed. The dx was Pancoast tumor, adeno, stage IIIB. Inoperable. His doctors thought Henk wouldn’t survive. They advised against a (possible curative) chemo/radiation treatment, because the chances of survival were very small and the chemo and radiation treatment would be very severe. Also, they thought that Henk might be too old to survive the treatment.
However, Henk decided he had to try. The treatment was very severe indeed. But he survived not only the treatment, but also the LC.
At the moment, Henk (81y) has some health problems, but these problems are not LC related.
The input and support we had from this LC forum was very important. It’s here that we found some HOPE. Here we learned that a pneumonia vaccination exists. This was very important for us because at the time Henk had pneumonia several times a year. It’s here that we learned a lot of other things about LC, possible treatments, medication etc.
We thank you, Katie, and all the other people who work and worked to keep this forum on the internet!
Henk and Ellen.