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laurie2020

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  1. Like
    laurie2020 got a reaction from Tom Galli in let the Summer begin   
    Scan results are in and no new growth or changes in the remaining mass. Such great news when you know your life depends on it. Now I begin again living through the next three months with my goal remaining for no changes with the tumor and no further growth with my next scan. This Has been quite the journey for the past 2 1/2 years. My life expectancy was projected for 3 - 6 months and yet I continue to live and make more memories with my family. Feeling so blessed with every day that passes.  I continue to work from home. So fortunate that my job allows this. My goals this year are to attend a vacation week at the cape withy family. Eat fried clams while at the cape. Watch all my grandchildren fly kites I purchased for them while at the cape and to ring in New years with my family at the Coventry house we rent out for New Years. Any time I can get with my family becomes memory time for all of us. The grandchildren have grown so fast. It's been over a year now since the last two grandbabies were born. The babies bring us lots of laughs at Sunday dinners. Such blessings. I can't believe we have been living in the new house for over a year now. I do believe downsizing added a little more time to my life by making it easier. I am enjoying the peaceful surroundings the new house has to offer as well. Forward I go while it is still possible making as many memories as I can with my family I love so much.
  2. Like
    laurie2020 got a reaction from Scruboak in summer time   
    Scan results are in and no new growth or changes in the remaining mass. Such great news when you know your life depends on it. Now I begin again living through the next three months with my goal remaining for no changes with the tumor and no further growth with my next scan. This Has been quite the journey for the past 2 1/2 years. My life expectancy was projected for 3 - 6 months and yet I continue to live and make more memories with my family. Feeling so blessed with every day that passes.  I continue to work from home. So fortunate that my job allows this. My goals this year are to attend a vacation week at the cape withy family. Eat fried clams while at the cape. Watch all my grandchildren fly kites I purchased for them while at the cape and to ring in New years with my family at the Coventry house we rent out for New Years. Any time I can get with my family becomes memory time for all of us. The grandchildren have grown so fast. It's been over a year now since the last two grandbabies were born. The babies bring us lots of laughs at Sunday dinners. Such blessings. I can't believe we have been living in the new house for over a year now. I do believe downsizing added a little more time to my life by making it easier. I am enjoying the peaceful surroundings the new house has to offer as well. Forward I go while it is still possible making as many memories as I can with my family I love so much.
  3. Like
    laurie2020 got a reaction from Livin Life in let the Summer begin   
    Scan results are in and no new growth or changes in the remaining mass. Such great news when you know your life depends on it. Now I begin again living through the next three months with my goal remaining for no changes with the tumor and no further growth with my next scan. This Has been quite the journey for the past 2 1/2 years. My life expectancy was projected for 3 - 6 months and yet I continue to live and make more memories with my family. Feeling so blessed with every day that passes.  I continue to work from home. So fortunate that my job allows this. My goals this year are to attend a vacation week at the cape withy family. Eat fried clams while at the cape. Watch all my grandchildren fly kites I purchased for them while at the cape and to ring in New years with my family at the Coventry house we rent out for New Years. Any time I can get with my family becomes memory time for all of us. The grandchildren have grown so fast. It's been over a year now since the last two grandbabies were born. The babies bring us lots of laughs at Sunday dinners. Such blessings. I can't believe we have been living in the new house for over a year now. I do believe downsizing added a little more time to my life by making it easier. I am enjoying the peaceful surroundings the new house has to offer as well. Forward I go while it is still possible making as many memories as I can with my family I love so much.
  4. Like
    laurie2020 got a reaction from LouT in let the Summer begin   
    Scan results are in and no new growth or changes in the remaining mass. Such great news when you know your life depends on it. Now I begin again living through the next three months with my goal remaining for no changes with the tumor and no further growth with my next scan. This Has been quite the journey for the past 2 1/2 years. My life expectancy was projected for 3 - 6 months and yet I continue to live and make more memories with my family. Feeling so blessed with every day that passes.  I continue to work from home. So fortunate that my job allows this. My goals this year are to attend a vacation week at the cape withy family. Eat fried clams while at the cape. Watch all my grandchildren fly kites I purchased for them while at the cape and to ring in New years with my family at the Coventry house we rent out for New Years. Any time I can get with my family becomes memory time for all of us. The grandchildren have grown so fast. It's been over a year now since the last two grandbabies were born. The babies bring us lots of laughs at Sunday dinners. Such blessings. I can't believe we have been living in the new house for over a year now. I do believe downsizing added a little more time to my life by making it easier. I am enjoying the peaceful surroundings the new house has to offer as well. Forward I go while it is still possible making as many memories as I can with my family I love so much.
  5. Like
    laurie2020 got a reaction from Tom Galli in summer time   
    Scan results are in and no new growth or changes in the remaining mass. Such great news when you know your life depends on it. Now I begin again living through the next three months with my goal remaining for no changes with the tumor and no further growth with my next scan. This Has been quite the journey for the past 2 1/2 years. My life expectancy was projected for 3 - 6 months and yet I continue to live and make more memories with my family. Feeling so blessed with every day that passes.  I continue to work from home. So fortunate that my job allows this. My goals this year are to attend a vacation week at the cape withy family. Eat fried clams while at the cape. Watch all my grandchildren fly kites I purchased for them while at the cape and to ring in New years with my family at the Coventry house we rent out for New Years. Any time I can get with my family becomes memory time for all of us. The grandchildren have grown so fast. It's been over a year now since the last two grandbabies were born. The babies bring us lots of laughs at Sunday dinners. Such blessings. I can't believe we have been living in the new house for over a year now. I do believe downsizing added a little more time to my life by making it easier. I am enjoying the peaceful surroundings the new house has to offer as well. Forward I go while it is still possible making as many memories as I can with my family I love so much.
  6. Like
    laurie2020 got a reaction from tgif i guess in summer time   
    Scan results are in and no new growth or changes in the remaining mass. Such great news when you know your life depends on it. Now I begin again living through the next three months with my goal remaining for no changes with the tumor and no further growth with my next scan. This Has been quite the journey for the past 2 1/2 years. My life expectancy was projected for 3 - 6 months and yet I continue to live and make more memories with my family. Feeling so blessed with every day that passes.  I continue to work from home. So fortunate that my job allows this. My goals this year are to attend a vacation week at the cape withy family. Eat fried clams while at the cape. Watch all my grandchildren fly kites I purchased for them while at the cape and to ring in New years with my family at the Coventry house we rent out for New Years. Any time I can get with my family becomes memory time for all of us. The grandchildren have grown so fast. It's been over a year now since the last two grandbabies were born. The babies bring us lots of laughs at Sunday dinners. Such blessings. I can't believe we have been living in the new house for over a year now. I do believe downsizing added a little more time to my life by making it easier. I am enjoying the peaceful surroundings the new house has to offer as well. Forward I go while it is still possible making as many memories as I can with my family I love so much.
  7. Like
    laurie2020 got a reaction from tgif i guess in let the Summer begin   
    Scan results are in and no new growth or changes in the remaining mass. Such great news when you know your life depends on it. Now I begin again living through the next three months with my goal remaining for no changes with the tumor and no further growth with my next scan. This Has been quite the journey for the past 2 1/2 years. My life expectancy was projected for 3 - 6 months and yet I continue to live and make more memories with my family. Feeling so blessed with every day that passes.  I continue to work from home. So fortunate that my job allows this. My goals this year are to attend a vacation week at the cape withy family. Eat fried clams while at the cape. Watch all my grandchildren fly kites I purchased for them while at the cape and to ring in New years with my family at the Coventry house we rent out for New Years. Any time I can get with my family becomes memory time for all of us. The grandchildren have grown so fast. It's been over a year now since the last two grandbabies were born. The babies bring us lots of laughs at Sunday dinners. Such blessings. I can't believe we have been living in the new house for over a year now. I do believe downsizing added a little more time to my life by making it easier. I am enjoying the peaceful surroundings the new house has to offer as well. Forward I go while it is still possible making as many memories as I can with my family I love so much.
  8. Like
    laurie2020 got a reaction from LouT in Clear scan   
    Agree I see so many positives with it's use. I am thankful to have lived so much longer than projected.
  9. Like
    laurie2020 got a reaction from LouT in Clear scan   
    So thankful for the immunotherapy. It seems to be a game changer for treatment. It only makes sense as chemo an radiationteeaar down thee system.
  10. Like
    laurie2020 reacted to Livin Life in Clear scan   
    Soooo happy for you, RJN!!!  Thanks for sharing.
  11. Like
    laurie2020 got a reaction from RJN in Clear scan   
    So very happy for you with your great results. Keep up the great work.
  12. Like
    laurie2020 got a reaction from Livin Life in 2024 scan results   
    moment with this disease. As usual my wonderful support system is available to help when ever I need them. In the meantime I continue creating goals to live for and experience with my family. Non are exotic or from any made up bucket list. However every goal I reach becomes a memory for me and my family to hold on to forever. They provide me the will to go forward and face the days I can survive knowing what this disease is known to do to many of us with this diagnosis
  13. Like
    laurie2020 got a reaction from LouT in Clear scan   
    So very happy for you with your great results. Keep up the great work.
  14. Like
    laurie2020 reacted to Karen_L in Update   
    Great news! Finishing treatment is so great! But I also remember being a little nervous when I drove away from the cancer center that last time. I hope you find your way to some daily pleasures and lots of peace. 
     
    Karen
  15. Like
    laurie2020 got a reaction from LouT in scan results   
    Totally agree which is why I maintain minimal google researching and rely on the Lord himself and my want to live. I am the red baron I'll
  16. Thanks
    laurie2020 got a reaction from Pstar in Scan results   
    Wonderful news and your stay is. The best medicine ever. Enjoy andrlax with the great news you received.
  17. Like
    laurie2020 got a reaction from Tom Galli in 2024 scan results   
    moment with this disease. As usual my wonderful support system is available to help when ever I need them. In the meantime I continue creating goals to live for and experience with my family. Non are exotic or from any made up bucket list. However every goal I reach becomes a memory for me and my family to hold on to forever. They provide me the will to go forward and face the days I can survive knowing what this disease is known to do to many of us with this diagnosis
  18. Like
    laurie2020 reacted to edivebuddy in scan results   
    You should have had a PET/CT at the 2 year mark or within 6 months of finishing immunotherapy. 
    There will always be a lesion in your lung.  It's extremely rare for a tumor not to leave a scar.  Like brain tissue damage is usually permanent.  If the lesion has smooth edges and is not hyper metabolic  it's most likely scar tissue.
    Also after scanning through some of your blog, I have zero idea why your doctor would tell you remission is impossible. There are thousands of stage IV NSCLC patients in complete remission.  You yourself are at a minimum in partial remission.  This is not a made up term like NED.  It's a clinical term with a medical definition that your and every  oncologist should know.
    A partial remission of cancer , some, signs or symptoms have disappeared.  You no longer have a growing lesion so A sign of cancer has disappeared, meaning at a minimum you're in partial remission.  
    In a full remission from cancer all signs and symptoms have disappeared.  This does not mean you don't have evidence your body has been savaged by cancer.  It just means it's not currently so.  The presence of sequela is not a sign of cancer but the sequel to cancer treatment.  Permanent peripheral neuropathy is a sequela of chemotherapy not a sign of cancer. The hole in my brain is not a Sign of cancer but the result of treatment.
    Cured is not the definition of remission.   
    And no reason why you can't roll up a score like the Red Baron.
    10 20 30 40 50 or more!
     
     
  19. Like
    laurie2020 got a reaction from LouT in 2024 scan results   
    Thankyou. I am blessed with a great family that Haas been by my side since the day I was diagnosed. They arey life.
  20. Like
    laurie2020 got a reaction from LouT in scan results   
    Thanks Lou. Will do. Appreciate your help.
  21. Like
    laurie2020 got a reaction from LouT in scan results   
    This was a cat scan. I have them every 3 months.  Scans of head to pelvis.
  22. Like
    laurie2020 got a reaction from LouT in Scan results   
    Wonderful news and your stay is. The best medicine ever. Enjoy andrlax with the great news you received.
  23. Like
    laurie2020 got a reaction from LouT in Clear scan   
    So very 😁 for you. Enjoy your great news.
  24. Like
    laurie2020 got a reaction from RJN in Clear scan   
    So very 😁 for you. Enjoy your great news.
  25. Like
    laurie2020 reacted to RJN in Clear scan   
    Ahhh, for some reason I was a nervous wreck before my scan results yesterday. Kept thinking it felt like being in a participant in Squid Game, where each new hurdle is potentially lethal. I don’t normally suffer from scanciety, but it is my first result of immunotherapy and 7 months since my adrenalectomy, so felt like relatively big risk. But my smiling oncologist reassured me before we even reached the room that I was good, and right now classified as having a complete metabolic response. I asked if it was fair to assume that this meant the surgeon had got everything (he wasn’t sure at the time and there were positive margins), and he agreed that if there was still something left it would have grown by now. So another 3 months of normal life!
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