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C2Morrow

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  1. Like
    C2Morrow reacted to LouT in Atypical Carcinoid Upper Left Lobe Resection surgery   
    Hello Dina.  Sorry you need to be here but glad you found us.  In 2019 I had a resection that turned into a lower-right lobectomy.  The surgery went better than I expected and here I am (almost 5 years later) and still NED (No Evidence of Disease).  A while back I put together some "Thoracic Surgery Tips and Tricks"  and it can be found here.  It can help you prepare for your surgery, get you through the hospital stay and also provides information for the post-op period.
    I can understand how frightened you must be but know that many others (including me) have gone through it and almost universally you'll here us say that it was easier than we thought.  I'm not saying it is fun or that rehab is easy, but it wasn't the tragic experience I once expected it to be.  
    Please continue to come here and read, post any questions or updates and let us help support you through this part of your journey.  Edivebuddy said it well, that LC is no longer the certain death sentence that it once was.
    Lou
  2. Like
    C2Morrow reacted to BridgetO in Atypical Carcinoid Upper Left Lobe Resection surgery   
    Hi Dina and welcome here! I had a lower right lobectomy by VATS about 8 years ago and it was pretty easy, as surgeries go.  I was released from the hospital the next day.
    One suggestion I have is to get a firm foam wedge pillow to use during your recovery. This will help your breathing and make you more comfortable. Your whole upper body needs to be on the slope, not just your head. I tried to accomplish this position with a range of other pillows I had and succeeded only in getting a crick in my neck. The wedge helped me rest and sleep more comfortably. 
    Hang in there! 
    Bridget O
  3. Thanks
    C2Morrow reacted to LouT in Enjoying the bonus years   
    C2Morrow,
    What a great user-name.  Congratulations on your progress and I look forward to hearing more from you and seeing the future updates.  This year's scans will mark my 5th year and if all goes well I can join your 5-year club. 
    Lou
  4. Like
    C2Morrow got a reaction from Pstar in Enjoying the bonus years   
    I’m an adenocarcinoma stage iv  survivor in my 5th bonus year thanks to Keytruda and highly compatible body chemistry. Lucky to have few side effects so far on this journey … I’m 74 and looking forward to another 10 years. 
    This bonus time blessed me with 6 great grand children: 4 boys and 2 girls; few more trips to Europe plus annual visits with friends and family from Seattle to the Keys, Maine to San Diego with stops in between. Gotta go when we can go right? 
    Deeply appreciate your support, empathy, hints, and camaraderie. Hope my own prayers, strength and guardian angels might help others along the way. 
  5. Like
    C2Morrow got a reaction from LouT in Enjoying the bonus years   
    None at all and no headaches. Feeling punk getting over a cold but not even a lot of coughing.  
  6. Like
    C2Morrow got a reaction from LouT in Enjoying the bonus years   
    Edivebuddy, radiologist set it for 90 days instead of 60. I’ll get update end of Feb. No headaches, visual changes. Otherwise okay. TY for asking - you too? 
  7. Like
    C2Morrow got a reaction from Tom Galli in Enjoying the bonus years   
    I’m an adenocarcinoma stage iv  survivor in my 5th bonus year thanks to Keytruda and highly compatible body chemistry. Lucky to have few side effects so far on this journey … I’m 74 and looking forward to another 10 years. 
    This bonus time blessed me with 6 great grand children: 4 boys and 2 girls; few more trips to Europe plus annual visits with friends and family from Seattle to the Keys, Maine to San Diego with stops in between. Gotta go when we can go right? 
    Deeply appreciate your support, empathy, hints, and camaraderie. Hope my own prayers, strength and guardian angels might help others along the way. 
  8. Like
    C2Morrow got a reaction from BridgetO in Enjoying the bonus years   
    I’m an adenocarcinoma stage iv  survivor in my 5th bonus year thanks to Keytruda and highly compatible body chemistry. Lucky to have few side effects so far on this journey … I’m 74 and looking forward to another 10 years. 
    This bonus time blessed me with 6 great grand children: 4 boys and 2 girls; few more trips to Europe plus annual visits with friends and family from Seattle to the Keys, Maine to San Diego with stops in between. Gotta go when we can go right? 
    Deeply appreciate your support, empathy, hints, and camaraderie. Hope my own prayers, strength and guardian angels might help others along the way. 
  9. Like
    C2Morrow got a reaction from LouT in Enjoying the bonus years   
    I’m an adenocarcinoma stage iv  survivor in my 5th bonus year thanks to Keytruda and highly compatible body chemistry. Lucky to have few side effects so far on this journey … I’m 74 and looking forward to another 10 years. 
    This bonus time blessed me with 6 great grand children: 4 boys and 2 girls; few more trips to Europe plus annual visits with friends and family from Seattle to the Keys, Maine to San Diego with stops in between. Gotta go when we can go right? 
    Deeply appreciate your support, empathy, hints, and camaraderie. Hope my own prayers, strength and guardian angels might help others along the way. 
  10. Like
    C2Morrow got a reaction from LouT in Though to find   
    I too was frustrated at first then a contact passed me the link. An App would be great. 
  11. Thanks
    C2Morrow reacted to Karen_L in Though to find   
    @edivebuddy I think you raise a topic of real concern. I suggest you contact Lungevity directly and share this with them. You can call or email https://www.lungevity.org/about-us/contact-us
  12. Thanks
    C2Morrow reacted to edivebuddy in Though to find   
    Jello. July 2020 ER visit led to stage IV NSCLC and SCCHN diagnosis. Remission since March 2021 but I knew well before then.
     
    This forum is impossible to find.  Even from longevity.org homepage you can't find the forums.
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