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norme

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Posts posted by norme

    I'm a bigger mess than I thought

    in GENERAL

    Posted

    Fay, I have it. Take all those beautiful Easter eggs and circle your bed and you get in the center. Ed won't cross thru because he can't destroy beautiful things.

    I hold my rosery in my hand through the nite. I wrap it around my wrist and put the cross in the palm of my hand and it gives me comfort. Be glad to send you one if you would like. Ed would be gone forever.

    Much love....

    Rad treatments

    in NSCLC GROUP

    Posted

    Hi, I am a little late at posting but thought I would just put in my two cents for what it is worth.

    Radiation is very hard on the body. It really zaps one of strength. She may find that it also zaps the mind a little. May make her think slower for awhile or forget things more often. For the chest radiation, she may find it hard to swallow and if so, come back on here and ask what meds there are that can help her swallow. I would ask here before asking the radioligist. These great people have been through all this and know what works and what does not. I know my husband had a very hard time swallowing after the chest treatment and after the whole brain radiation. He went for a few months with such little in him. He did try and drink Carnation Instant Breakfast but could not stomach the Boost and there is another on that is on the market. He said they were just to sweet. Anything is better then nothing to try and hold ones strength.

    Will add your wife and yourself to my prayers.

    My friend Gerry

    in GENERAL

    Posted

    Hi Everyone,

    Sorry, haven't been answering much lately. Am still trying to heal (it is really hard). Have been reading the board though and trying to keep up with each and everyone of you. A lot of new members since Buddy passed on. Oh, when will this nightmare end for everyone and John Q. Public take notice of how many cases there are day after day, month after month of lung cancer.

    A good friend that I worked with for 18 years before my retirement has found out that he has lc. I gave him this sight and told him he will find the best of everything here for here is where the knowledge and friendship lies.. Also told him to have his wife get on for she will need the education and love also from all of you.

    I just finished talking to him and he has found out that he has at least two masses in the lung and 4 tumors in the brain. He will be going for gamma knife this coming week and he needs all of your prayers. Also his wife Angie will need a lot for all of us caregivers knows what is ahead for her too. I told him he must believe with all his heart that he can beat this for that is how all you survivors are still hear and kicking. One must fight and continue to fight in order to survive.

    He has not logged on yet but I know when he does, he will find all you wonderful people to help him get through the rough times ahead.

    I will do whatever he and his wife might need from me to help him also.

    Love to all of you...miss each and everyone of you very much but always know I am not far away. I am hearing you....

    Cat scan results

    in GENERAL

    Posted

    My dear friend,

    I don't like the idea that you are not getting anything right now. Saw you stopped Iressa in April. Why not start getting the new med now? Anything is better then nothing......I do believe that....

    my father is gone

    in GRIEF

    Posted

    Shellie,

    I know this is hard to take right now but I know that your father is so at peace being with the woman he loved now. When one looses a spouse, it is just horrible. No one can describe how it is and how it affects the remaining survivor. I was at the grocery store yesterday and in front of me was a man somewhere around my age. He got himself a cart and started through the store not putting anything in it. He went through the produce dept, then the canned goods, then the meat and there he picked up a package of hotdogs. He looked so very lonely. I asked him if he just recently lost a spouse and his answer was yes. He never went shopping by himself before so I helped he get some fruit, milk, bread and butter then told him to eat out a lot until he could focus again. He thanked me and we parted.

    I know you will miss him very much but as we all hear time will heal. I know the time healed for me when I lost my mom and dad so close to each one with the dreaded lc. Loosing Buddy is a lot harded this time though. I look forward to the day I will meet him again and he will hold on to me ever so tightly. Please understand, I am sure he is where he really wants to be...

    Basic Living Expenses

    in GENERAL

    Posted

    The Social Security phone number is 1-800-772-1213. If she has Cobra then evidently she worked. Has she worked 5 out of the last 10 years before she became disabled and had jobs that she paid into Social Security. If so, and she is fully insured, she should most definately file for benefits.....

    Medicare question

    in GENERAL

    Posted

    Donna,

    From what you are saying it sounds like he became eligible for payment of benefits Dec.1.02 and if that is correct he will be elig for Medicare Dec.1, 2004.

    Medicare has two parts, part A and Part B. Part A is free and mainly covers most hospital cost and some nursing home costs after a deductible is met. Part B mainly covers Drs, medical supplies, etc and it to has a deductible one must meet each year. I believe it is $100 per year for the deductible but Part B also has a monthly charge which now is somewhere around $55 per month or thereabouts. If your husband is getting Medicaid then usually medicaid pays the monthly Part B charge and also the deductibles for both Part A and Part B but you will have to talk to them about that issue. There is a lot more regarding Part A and Part B to learn. I am just hitting the high points. Call 1-800-772-1213 and ask the operator to send you a medicare hand book so you can see what it is all about...

    YOu husband will receive the Medicare card in the mail about two months before his eligibility date. If you find his award letter it will tell you if Dec 1, 2002 is correct so you know 12/01/04 is right.

    You asked about high cost prescriptions and testing covered. Up until this year meds were not covered and now the drug stores have a medical card they are pushing for Medicare to help with lowering the meds one uses. I am sure you have read about this for it has been all over the papers. Not until somewhere around 2006 does the new prescription coverage take effect through Medicare at a higher monthly charge to most people.

    Hope some of this helped you....

    Getting my Port removed!!!

    in GENERAL

    Posted

    David, between your good news and Bobmc posting, this is all just so terrific. I have been down and sad today but you boys have really lifted me up. I am so very happy for you......you are truly a wonderful and caring individual and I am so happy to be able to call you my friend even though we only know one another through this great computer invention....love

    Still Alive and gettin better !!!!

    in NSCLC GROUP

    Posted

    Oh My Dear Bob,

    This is really freaky. I haven't been on the board for a few days but just a little bit ago I said to myself, and this is reallllly true, "I need to see if Bobmc is on for I miss his posts so much" and there you were. I am two days late but hey, THIS IS TERRIFIC, YOU HAVE MADE NOT JUST MY DAY BUT MY WEEK, MONTH, AND YEAR."

    You can now only get better for we all Love you very much and missed you something terrible. Next go for chat.....Much love,

    Update

    in GENERAL

    Posted

    Francine,

    I am praying real real hard that that da@#$%^tumor finds a home in the chemo or whatever means they are going to fight it with.

    Will pray for you a little extra each nite my friend...

    missing my hubby

    in GRIEF

    Posted

    Shirley, I sure hope and pray you can do this.

    I wish with all my heart I could but am finding it is getting harder each day rather then easier. I went to a memorial that Hospice gave and that brought back all the memories of Buddy's illness. I have not been able to let go of that pain since then. I told myself not to go and I should have listened to myself. It sure did not help as hospice had hoped I suppose.

    I am glad for one thing, I am glad that Buddy went first for he could not have stood the pain and the missing of one's partner. I am finding it almost impossible anymore. I cry as much now as I did after he passed. Oh, maybe not as much but a lot. Surely this has to get better.

    I will say some prayers that it works for you. Maybe another 3 months and I might be able to think that way...God Bless

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