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EastCoastLadi

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Posts posted by EastCoastLadi

  1. ... I just read your update, and it jolted my mind about something my dad said when he was dying last year. He felt like he "deserved" all the pain he was getting because he had done some very bad things to the family......we told him, that wasn't the case, and we forgave him long ago...but perhaps this is your mothers' way of thinking she deserves it....

    Grace

  2. http://www.cancerpage.com/news/article.asp?id=10188

    Cancer Survival Tied to Season of Diagnosis, Sunlight Exposure

    NEW YORK OCT 18, 2006 (Reuters Health) - The season in which cancer is diagnosed appears to affect survival, as does sunlight exposure to some extent, according to a study published in the October issue of the International Journal of Cancer.

    "Sunlight is essential for the production of vitamin D in the body," Dr. Hyun-Sook Lim, of King's College London, UK, and colleagues write. "Evidence exists to suggest that vitamin D metabolites may have a role in tumor growth suppression."

    The researchers used data from the Thames Cancer Registry to assess survival for cancers of the breast, colorectum, lung, prostate, and all sites combined, in relation to season of diagnosis and sunlight exposure.

    Patients who were diagnosed with cancer in summer and autumn had better survival compared to those diagnosed in winter. This was especially true in female breast cancer patients and both male and female lung cancer patients. The beneficial effect on survival was also observed for cancers at all sites combined in both sexes.

    Cumulative sunlight exposure in the months preceding cancer diagnosis also predicted subsequent survival. However, season of diagnosis was a stronger predictor.

    "Our results add to a growing body of evidence that vitamin D may play an important role in cancer survival," the investigators conclude.

    SOURCE:

    Int J Cancer 2006;119:1530-1536.

  3. I hate that you have to be in this situation! My heart is breaking just hearing what you have been going thru. All I can tell you is that when my dad was in his last weeks, the one thing that we wanted to make sure of was that he wasn't in any pain...

    Of course this is my opinion and everyone may think differently, you know your mom better than anyone else, she really doesn't want to be in pain.

    Her dr. really wants to help you out.....please, I've seen my dad in awful awful pain and I promised him that I would make sure he wouldn't be in pain, it took a little bit, some not so good results, but he wasn't in that agnozing pain.

    Work w/ her dr. if it was me, I'd get him to sign the papers.....I know it is difficult...you want to respect your mom, but you don't want to see her suffer........

    please know we're here for you..

    Grace

  4. Netadmin...sorry about your mom...by all means talk to her onc. also if she is in the hospital, talk to the social workers, they can help you with everything you need to know about hospice, and get you started if you decide your mom needs it. Please know we are here for you.....

    Grace

  5. Jen,

    sometimes it gets just too damn exhausting! my brain gets like mush, and I don't even know if i'm making any sense at all.

    I hate the fact, we wake up with cancer and go to bed w/ it every nite!

    but now the most interesting thing is happening, i'm taking my husband everyday to the hospital for his imrt/rad treatments and coming across new patients and families, and I am sharing our experiences and by that I mean not only my husbands', families, but here! and what i have gone thru here!

    The best part is that I'm educating people that I never thought I would be doing before and it is thanks to all the wonderful people here, your advice, knowledge and experiences......and btw - my husbands' dr ( radiologist - totally harvard u know), very nice....tells his patients and families, I know alot about this!!!

    so. don't worry.....sometimes being in the background is needed, and sometimes coming out of the light is needed too...

    Grace

  6. I think what that may mean is with the "shoulda and coulda" things....

    Years ago a very special person told me that you have to stop "shoulda-ing" all over yourself......

    I think we all have regrets......

    Grace

  7. Chris,

    I'm so sorry that Meg is having problems. I know all too well how much we worry about our children. You know my prayers are going out for her and you and your family.

    I'm going to be sending those "positive vibes" your way......let me know if there is anything I can do.

    Grace

  8. Don't feel that way NB! You're going to come across many people who just don't understand. Don't worry about the job --- sounds like you're a very good employee, you got that to stand by.

    But just in case, keep a small record of when you need to leave early, or use time. For you and your peace of mind.

    Listen, dealing w/ all of this is so overwhelming! to hell w/ the boss if he doesn't understand!

    Also, don't be a mrytr (sp) to your job! If you have vac. or personal time and you need it, take it! Just remember you got more people behind you!!!!

    Take the time for you!

    Grace

  9. Today, my husband finally got some good news! His MRI shows that it seems that the IMRT treatments on his brain have had good effects! Some of his tumors have shrunk. Not NED mind you, but any improvement we'll take!

    Also, it appears that my husband may go back on taking the oral etoposide, which seems in combo with the radiation seem to be doing something! So we're just waiting for my husbands' onc. to call us with his plans. His radiologist wants to continue w/ the low dosage of IMRT, along with low RAD on the lung and liver, and get another PET of the chest and abdomen. He also said that if one or two brain tumors persist, he wants him to go to Boston for GammaKnife.

    So, today there is some hope! I think my mom was the good luck charm! she took my husband for treatment today and I met up w/ them at the hospital. So like I said before, living moment to moment, and this was a good moment today!

    PS - also my husband is going to finally cut way down on the steroids!!! Thank God! ......

    but for all my whining and crying........thank you all for being there......maybe not only will this help my husband but also maybe others can take some hope in this too.

    Grace

  10. (((Shelly))),

    How do I know your pain! I often wonder why? How much more. I'm there in your shoes as well.

    You know what, today I'm taking my daughter to the dentist office, this woman is on the cell phone talking loudly about the problems with her contractor working on her house!....I wanted to go over to her and tell her to shut the **** up!....then this other mother hears her and says shes' having the same problem too.

    Oh how to have those problems!!!! I wanted to go over to them and say, well my husband has terminal cancer and you see these 2 girls, your "problems" are pathetic! I wished mine were as trite as yours!

    I too can't take any more pain, every little thing ticks me off, I'm tired, I can't stand BS, I'm on my 19th nervous breakdown! ....and god help the person who gets in the way of my 29th...

    Shelly, I could say I will pray for you,,,,,,,, but I think we know how we feel about that now a days!!

    just know, I'm here for you and do understand!!!

    Grace

  11. Kim,

    It was my dads' birthday too yesterday, he would of been 66. I remember waking up and just sitting on my sofa and telling my husband, todays' my dads' birthday. I know the sadness, he died at 64, its' still too young. And now having heard that Shirley's dad died yesterday too.....well I'd like to think, he made it to their party yesterday.....

    You take care...

    Grace

  12. Hello,

    I'm asking because a couple of weeks ago my husbands' radiologist decided to add some markers to his weekly blood work. The thing is that my husband was on oral etoposide for about 18 days and stopped temorarily because of his IMRT and rad to lung and liver, also onc. and rad. are debating about giving him temodar.

    Well, there there has been a sharp decrease in the marker that follows the amount of cancer cells ( at least that is what I believe), my husband count on this marker started at 107 and last time it was 4 ( normal range is 3 - 9) so something is happening.

    I guess my questions are, has anyone else dealt with tumor experienced. We're off to see his onc. this morning to talk more ( even through he isn't all that big on markers, but he is pleased with the numbers). What does this mean?

    Also my husband is continuing w/ the rad today and ongoing, and will have an MRI of his brain tomorrow, and I'm betting the onc. will schedule a Chest CT scan too as well.

    I really appreciate any and all info you may all have...

    Thank you,

    Grace

  13. First of all I am so sorry you have to go thru this! Your mom is frightened and of course feels all alone even w/ you and her bf there. My first suggestion would be is to talk to the social worker at the cancer center/hospital she has been treated at. They can help you make all the arrangements or at least point you in the right direction.

    I know when my dad came home to hospice, he wanted to be home, he didn't want to die either and felt being at home would make him better, unfortunately it didn't. But my dads' hosp. soc worker got us all the info. and the bed and medicine and the hospice nurses, social workers, home health aides were set up in a matter of a couple of days. Also we had a pharmacy that would deliver by orders from dr. and nurses any medications, syringes, bandgages, creams whatever he needed it would be delivered.

    Also, are you her health care proxy, because if she is getting to the point where she is unable to make up her mind, you or whomever is the hcp will have to do it, and please if you don't have one. DO IT NOW!, even if your mom is in denial, just tell her you hope not to need it, but just in case, if she had a "moment" ( to put it lightly) that you would help her make her decision, and let her know or talk to her about what her decisions would be....ie. to fight on, more meds....ect...

    Your mom doesn't hate you, remember you always hurt the one you love......she loves you..she doesn't want to hurt you....and pushing you away is her way of doing so.

    Please I'm praying for you and your mom.....please keep in touch.

    Grace

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