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EastCoastLadi

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Posts posted by EastCoastLadi

    shoulder and arm pain

    in NSCLC GROUP

    Posted

    Sorry to hear about your husbands' pain, I can tell you with my husband that the platium based chemo drugs such as carbo&cisplatin can reek havoc on the nerve endings..my husband has constant numbness and pins and needles feeling in his feet and hands...(neuropathy).

    Grace

    Chemo delayed due to low platelet level

    in NSCLC GROUP

    Posted

    My husband is also having lots of problems with his platelets. I asked the onc. about the shot of "artifical" platletts and he said that it wasn't any good. So with my husband he's constantly being monitored, and they've gone up a little, cumulative effects of some chemo will do that and will stay in your system for a long time.

    I haven't heard about the peanut red skins, but I have heard that vitamin K can help platelets, you can find that in foods like beef liver, and many of your green veggies...I hope the best for your mom..

    Grace

    Mother Declining

    in CAREGIVER RESOURCE CENTER

    Posted

    Sarah,

    I hate this disease and all that it does to everyone involved. What helps me is that I now take things one moment at a time, I have to, because if I didn't I don't know how good I would be to my husband and children.

    Right now your mom is in a now so good moment, my hope is that this will pass and things will get settled for your mom and then better moments will come.

    Please make sure to take care of yourself...we're here for you

    Grace

    We said goodbye

    in GRIEF

    Posted

    (((Rochelle))),

    I am so very sorry about your mom. I don't know what to say to ease your pain. What I can say is that please know you have many people here who care a great deal for you and we are here for you.

    Grace

    Frank Lamb Update 12/21/2006 // 2 Options //Same Outcome

    in LC SURVIVORS

    Posted

    Frank,

    you're one tough cookie! You've got to luv that wonderful attitude of yours!!! :D

    ** I wanted to tell you my husband also had lots of problems w/ reflux and acid, he tried everything, but what really helped him was/is a new drug called

    Aciphex - it's really great! I don't know if you have tried that, but if you haven't ask your dr., because it has done wonders for my husband..

    Grace

    NEW MEMBER

    in INTRODUCE YOURSELF!

    Posted

    Karla,

    First of all welcome! You'll definitely find many many friends here with lots of advice and experience.

    My husband had the came chemo as your husband and I can tell you that the cumulative effects of the chemo and the radiation on top of it, is going to make him very, very tired.

    The best thing I told my husband when he experienced this, was to do what his body tells him, don't fight it. Also make sure he tries to eat the best he can.....

    Grace

    I need tough advice

    in CAREGIVER RESOURCE CENTER

    Posted

    Melinda,

    My husband knows, but he's sick and tired of people ( meaning me ) who keep on reminding him. So what we've tried to do is look at this as a chronic and ongoing illness, that he will have to always be in some form of treatment, whether it be chemo, or radiation of some sort.

    I also think what really helps is that my husbands' oncologist is a no BS type of person, he tells it to him straight and my husband respects him for it. He doesn't hide things and in fact even told my husband the last time he saw him, that he honestly thought he wouldn't be alive right now with what he has. ( hey, told you he was a no BS guy). Even though my husband may not want to understand it, he knows, it doesn't mean that he has to think like a terminally ill person.

    Hey, my husband talks to me about buying another house, moving from where we are at. Planning on going to Europe in a couple of years. Planning next Christmas. How when he gets back to work. When I hear him talk like this, what can I say or not say? I just listen to him, he has a great attitude, I think it's what has kept him going.

    Does it tear me apart, yes, I know the envitable, like his dr. and I know he knows, but he doesn't want to think about that, but rather, think about living. I can't fault him for that.

    He hates all the treatment he has to go thru, he hates the fact that he can't take a break, I think he's going to have a nervous breakdown. He's the consumate entertainer around everyone, but me, of course, I tell him, he doesn't need to entertain everyone and make them feel happy, when he himself feels so lousy.

    The way I would like to see and believe that the goal is to prolong his life, with some quality, without pain and suffering. We don't use the word "cure", we never have since knowing about ext sclc, it isn't an option.

    Oh Melinda, you know I know, I too hate having to be the strong one, the realist, and yes the pestimistic one. I hate having to do everything, I hate that my once "marriage" with my husband has now become, how do I define it...."caregiver" - buddy.....nag...almost like 2 very old crabby people.

    I hope you can have at least a somewhat peaceful and not so chaotic holiday. I'm here if you need me...

    Grace

    Gifts from Lucie

    in HOPE

    Posted

    (((Don))),

    I know Lucie is above you, looking down and smiling...you are such incredible strong spirit! Surrounded by the love of Lucie, your family and the many many friends you have here...

    Grace

    My brother Darrell Barnes

    in GRIEF

    Posted

    Sandi,

    We were all blessed to having known Darrell, even though we all hoped and prayed for him to stay, it wasn't Gods' will. I know he is at peace up above. He did touch so many lives, even those of us who never got a chance to meet him in person.

    I will never forget you Darrell.....

    Grace

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