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kimblanchard

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Posts posted by kimblanchard

    Darn

    in NSCLC GROUP

    Posted

    Well, last week was not a good week, tests showed that the tumors had started growing again and I have also exhausted all the treatment options available from Medical University of South Carolina (I've lived too long :lol: ). So my options were to just accept palliative care to be kept as comfortable as long as possible or try and get into a Lung Cancer Trial at Duke.

    I opted for a trial at Duke and it looks like they have one that may benefit me, nothing will cure me, only hope of prolonging my existence. Which I will do as long as I am comfortable and able. The trips to Duke will be a pain (5hours)and I do not know what the schedule will be. This will start in about a month.

    I want to work as long as I can…it keeps my mind occupied and pays the bills, but I am sure I will have to cut back closer to 30 hours per week.

    I have a cough that is worsening all the time, this weekend I had a coughing fit and lost my voice, so I can not speak very loudly. I still feel fair, but the emotional roller coaster ride has really drained me.

    Thanks and love to you all

    jim

    So Mad

    in CAREGIVER RESOURCE CENTER

    Posted

    NO ONE wants cancer and no one deserves it. Your mom would give anything to not have have cancer...did the cigarettes cause it...Maybe...MAYBE NOT.

    GET OVER IT!!!!!!!!!!!!

    You mom deserves and needs your love and support and you don't need these feelings!

    jim

    CALLING ALL FORMER CAREGIVERS/ FAMILY MEMBERS

    in CAREGIVER RESOURCE CENTER

    Posted

    Hello everyone! I am now a lurker because I still care for each and everyone one of you that are dealing with or with someone who is fighting this terrible disease. I send my prayers to all of you! I don't have much to report after so many years since my DH passed away, so much has gone on. My daughter has graduated high school and going off to college. I've met and I am engaged to a wonderful man and I feel blessed to have found someone who is as caring and understanding of my situation as he is. Anyway, I am always with all of you in spirit even though I don't speak up very often. My thoughts and prayers for all of you, you should all be proud of your bravery and good spririt! Kim B.

    Port Question

    in GENERAL

    Posted

    After a few days you won't even know it's there. Mine never hurt much and seat belts were never a problem. Mine is on my right upper breast. I don't give it a second thought and Ohhhhhhhhh it makes chemo so much easier!!

    jim

    So much, so fast

    in INTRODUCE YOURSELF!

    Posted

    Thanks Cindi, you took the words right out of my mouth and said them prettier...as usual. :D

    Please do not listen to the prognosis and don't ask...NO ONE can predict life expectancy and treatment options are getting better all the time. I asked once and will never do it again.

    I am stage IV and was given one year, that was over three years ago. I have not missed a day of work and overall have felt pretty good.

    I ain't saying it's easy, but normal life isn't easy.

    Keep hope and live one day at a time. Don't worry about tomorrow until you wake up.

    jim

    At a loss

    in NSCLC GROUP

    Posted

    Welcome to the club, what you are experiencing is perfectly normal. Each of us handles it in our own way.

    It is OK to let your emotions out in a controlled manner as best you can. Go to the rest room or your car and yell, scream or cry.....just let it out. The hard part is not taking your emotions out on others.

    Seeing a counselor may be the answer if it continues to build and is beyond your control.

    I find that the One Day at a Time philosophy works for me. I don't let emotions build....I handle them quickly and don't think about what happened yesterday or might happen tomorrow.

    And, we ALL get scared just prior to our next ONC visit!!!!!!

    Whew....

    in NSCLC GROUP

    Posted

    Met with the ONC today and got the results of latest CT scan. The news was GREAT, Tarceva is doing its thing....all Tumors Nodules decreased slightly or disappeared. Next checkup in eight weeks.

    I still look like a teenager, but I feel absolutely wonderful. I really never thought I would feel this good again....life is good.

    Lets hear one for Tarceva and hope for a long relationship.

    Oh yeah next week is my 3 year anniversary, two years past my prognosis. You all have meant so much to me and helped me thru my tough times...Thank You.

    I did something at the Clinic today that surprised everyone and it surprised me that it surprised them. I offered to talk with/counsel any lung cancer patient that may need some extra help. I was surprised to learn that no peer support existed. I have you guys and hope to pass that on.

    ur pal

    jim

    JIMBEN

    in GENERAL

    Posted

    :) What a nice surprise.....thank you so much. But I am a bit selfish too...it has been so rewarding to see you change and fight, such a change from when you first joined us. You are a great example of what one can do when they set their mind to it....so for me, it's a thank you to you.

    luv

    jim

    Ever have a "bad brain" day?

    in GENERAL

    Posted

    I walked out into the garage for some unknown reason....as I was standing there, trying to figure out why I was there, my wife walks out. She sees me, upsetting her train of thought.....now you have two people standing in the garage staring at each other, both wondering what in the hell they are doing there. :D

    jim

    newbie

    in INTRODUCE YOURSELF!

    Posted

    Welcome: you're among friends who have walked the same path. I am somewhat claustrophobic and the PET scan bothered me. It is a bit tighter than the CT machine and mine took 45 minutes each. I took a CD player and listened to soothing music or you could listen to a talking book. After a few minutes I relaxed. No discomfort, just kinda tight.

    You can do it, we all did

    jim

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