Judy-OK
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Posts posted by Judy-OK
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Hello Anne and welcome aboard.
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Geri ... so glad to see this post. Darn it girl I am going to have Ry write a citation on you because you have been MIA to often. Get home for the Easter bunny
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SSD and SSI are two totally different things. SSI is for very low income and most likely not taxable and should be accomapnied by Medicaid I would imagine. I was approved for SSD which is Social Security Disability a portion of which is taxable and after two years I was placed on Medicare and I kept a senior health plan. The first year I was approved for SSD I got a lump sum check with no taxes withheld and ended up paying a huge hunk the following April. I then was wiser and went online and instructed them to start withhold federal taxes out at a set percentage.
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I was unaware of buddy/buddy list. That is good thing and I will check it out but I also think this list is a wonderful idea and thrilled that Connie has taken on the initial task of compiling the necessary information. When battling the beast I think the more buddies we have the better off we are. Thanks to all. Judy
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Connie sounds great and I have already sent my information to you. Now who is going to know how to track you down? ROFLMAO
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I am truly interested in pursuing gathering information to be utilized as a contact list for folks that become M.I.A. With nearly 4000 members world wide I am not even sure where to start or how to divide stuff up. Did I understand that at one time somebody actually attempted to accomplish this task? If so would be interested in what derailed the project or if it ever even got off the ground. Thanks to those that have been around any length of time and are now setting back giggling at me with a mere two years of hanging around.
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Spring 2008
in GRIEF
Teriw I do so look forward to your posts. When Bill posted I know his was the first post I always looked for and you, my dear, are a great word wizard and just as eloquent as Bill. Thank you.
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Sorry I know nothing about Marie but would truly be interested in a list somewhere with names and phone numbers or contact names for members that may go MIA. If I can help someone to accomplish this task I would be more than happy to do so. Let me know. Judy
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The timeframe question comes up time and again was we battle this beast. My understanding both times was that the radiation continues to work for several weeks after the last treatment is received. Possibly they want it to shrink the tumor as much as possible before the perform anything else.
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And we know we are all different. My first round of Zometa I had terrible chills and ran a fever starting about 12 hours after the infusion and ending in about 48 hours. With my second infusion I experienced a few muscle aches and pains but none of the chills. I have been told that the reactions lessen with each monthly infusion and so far I have found this to be true I expect next month to sail through with absolutely no problem.
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Ellen well those that have posted ahead of me have already said it ALL!!! Welcome to the board and now get ready to fight ... I had chemo and radiation on inoperable lung cancer and though not a walk in the park it was very very doable. I have searched my body (do not want to know what is in the places I can not see) and have found no tags or stamps with an expiration date. Only one knows when I will be called home and he is not telling anyone else. Keep us informed of what you decide to do.
Judy
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Welcme to a great web site. Let us know how things are going. Judy
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This probably has little to do with nothing but I was hospitalized with a collapsed lung after they installed my port. For the 5 days I was in there they would come up and get me with all my appartuses in tow which included the machine that was letting my lung reinflate plus the oxygen that kept me breathing along with all the hoses and cords and take me down for my radiation treatments. My chemo was administered in the same building as my radiation but they were not concerned about me missing my chemo like they were about my radiation. They could have simply walked to my room inserted the needle and hung my chemo bags but they said is was not a critical thing. It seems like once they start the radiation they are pretty adamant about not missing it.
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Hi snappy!!! I had carbo/taxol once a week and radiation 5 days a week for over 7 weeks so it sounds like your hubbie and I were on the same treatment plan. I drove myself for every single radiation treatment and actually think maintaining some of my independence helped me through the process. I was NEVER to tired to drive but the walk from the car to the radiation area took me awhile to accomplish near th end of treatments but I just took a lot of short breaks and allowed myself time. I drove myself to my first chemo and they requested I have a driver so I had to call someone to come and get me. They said I could drive myself if I did not want the Ativan in my chemo cocktail ... I wanted it so I got a driver. I never took any type of anti-nausea medication before, during or after tretment and did just fine. I even managed to keep my hair. The radiation caused quite a nasty burn on my skin and some internal scarring that I deal with still. I think Joe will do just marvelous and don't hover over him unless he is the kind of person that thrives on that kind of attention.
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Hey Mary, you seem like an old friend of mine. I had the exact same treatments as your hubby. I think I actually tolerated the chemo drugs better than I did the 37 radiation treatments. Glad you found the site and I am sure you will gain a lot of information.
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Okay, the radiation to the spine is done for this round. My first Zometa treatment KICKED my rear for a couple of days. Everyone said that Zometa was a snap which shows how different we all react to different treatments. I thought the carbo/taxol was a lot more tolerable than the Zometa. I thank the lord it is only once a month. Not sure when I will be poked, prodded or scanned again. I escaped from my sons house and am now back out in the country with my dog and myself in our own bed. Having cancer is not enough pressure and stress ... so I decided to put my house on the market and see what happens. If I sell it then I will move in closer to the kids or depending on the outcome of my treatments I may move in with them. Time and situations will dictate which path I travel. It is out of my hands and when things are supposed to happen they will. Thanks for letting me ramble a bit. Glad to be back and will never be able to catch up on the posts.
Judy[/b]
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My son and his family arrived during the Pro Bowl game yesterday and loaded up my cats, their litter, my dog and his food, and a bunch of my clothes and meds. Told me I was going to stay with them for a few weeks. Therefore not sure when I can be on line or in chat. With the weather possibly turning nasty again and me lined up for daily radiation it will be a much shorter drive to get there.
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JB, I never played ice hockey because I hate cold but I did manage a few years are roller hockey. Good luck!!!!
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Well dang just when I need you ... you are nowhere to be found.
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Add my best wishes to those above and welcome aboard.
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WooHoo ............. way to go Geri. Rest up and feel better soon.
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Welcome to a wonderful place Manifest. It sounds like you are going to be receiving the same treatment plan I had. I had 6 weeks of carbo/taxol along with 37 radiation treatments. I do remember being very tired by the end of the 6 weeks but I experienced no other bad side effects during that treatment period. Keep a good attitude, eat well and drink lots and lots and LOTS of water to stay hydrated.
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Well BEAR POOEY!!!! I will start radiation on the spot on my T2 thoracic area spine in the next week or so and will also begin receiving a monthly injection of Zometa. There are a few more smaller spots in the lumbar area and we will be doing more frequent PET scans to keep a watch on them. Thanks folks.
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Way to go Bucky!!!!
Very confused.
in INTRODUCE YOURSELF!
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Welcome to the board Burnese. Let us know the results of the biopsy. Best wishes.