Judy-OK
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Posts posted by Judy-OK
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Thanks Stacey .... I posted somewhere that they cancelled it because they felt it was too dangerous. Now scheduled for an MRI on Wednesday with a follow up with the doctor on Friday.
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They have me scheduled for an MRI January 30th at 7:30 a.m. Until then me and my Ativan followed by a possible margarita if we go to the casino shall see me through the weekend nicely. The panic is long gone because it is what it is and fretting about will not change anything except to make me sick. Thanks to each and every one of you for being there. It now appears that it is on the T2 area of the spine but is on the left side by the ribs. Not even going to wager a guess as to why he said a biopsy was to dangerous just going to trust that he knows what he is doing. Again thank you ALL!!! 
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Funny your would mention a curve ball Kasey I just got a call from my insurance folks that the have pre-authorized me for an MRI of my left ribs. What the hey ... is it my spine or my ribs? This is Friday and I hate to be left hanging. I have an e-mail into one doc and a call in to another. Thanks folks I will put the panic on hold for bit.
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Shelley I got your pm and feel free to e-mail me or whatever you need to do. The first time they clamped my tube they said they would be back in thirty minutes to check on me. Within 5 minutes I knew I was in trouble and would have clamped a few of their heads off if I could have drawn a big enoug breath to move. From that time on they never left me when they clamped a tube they stayed right with me and I believe the second time they clamped it I kept my hand on the clamp because I was not going to wait on them to get air to me. Tell your mom to hang in there and things will improve. We have to climb each darn mountain they place in front of us but somehow we manage to do it. Judy
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Shelley ... they collapsed my right lung during the original biopsy and then collapsed my left lung when they put in my port. They used the big chest tube each time with the suction to reinflate my lung. Both times it took a total of 5 days before the released me. They finally quit unhooking me and taking me to x-ray and just ordered the portable x-ray to come to me. I had the big tube in two different locations the first one was put in above my breast in front on the right side and the second was place in my back on the left side. The one in the back seemed to be the most painful for the longest. I do remember the port site hurting some but the tube was a great distraction. Hope you mom is doing better.
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Good for you Rachel you are doing a trial that could help many many people somewhere down the road. I truly hope it is a miracle drug for you. Keep us posted.
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After spending two hours yesterday pre-registering for the bone biopsy scheduled for today at 1 p.m. I arrived to a wide eyed nurse that said ... did the doctor not speak with you. I answer I have not spoken with anyone I have been on road to get here. Long story short the radiologist that was to perform the biopsy looked at my PET scan and said due to the location it was to dangerous and he would not perform the biopsy. The location to my knowledge is the T2 thoracic sping area. So now they are going to do an MRI. That is not going to tell them if this is a primary or is from the lung cancer. If they do not know what it is then how do we approach treatment? Anyone willing to panic with me or can you calm me down again? Thanks folks.
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Thanks to each and every one of you. Not sure if it was your support and responses or the Ativan but for now I am calm. Thanks you are all great!!!!
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FABULOUS!!!!! Hope to see you in chat.
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I am scheduled for a bone biopsy (T2) this Thursday at 1:00 p.m. I am asking for prayers that this is and remains an out patient procedure. I am also looking for anyone that has had a bone biopsy because I want the brutal truth concerning amout of pain involved. Thanks all.
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I think that since none of us can sleep at night we should find a room we could play games in or something. I am thinking maybe two pain pills tonight and I may sleep through it. The best to you Geri ... we know you can beat this beast.
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Rachel my best wishes for you with the clinical trial. Somedays it seems to be a chore to just put the feet on the floor much less manage to put one foot in front of the other but we do because we ARE survivors. I spoke with a friend today and told her I am not ready for any more radiation, chemo or anything else. They just wear us out. You will come through this, I just know you will. Have a blessed day.
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Well poopie is about all I can say. My doctor said the lung still looks stable but there is a bright lit up spot at T2 Thoracic spine. Her suggestion is that we get a biopsy of it so we know what we are dealing with. Have to wait for the insurance to approve it before they set it up until then I am going to believe it was a blip on the radar and there will be nothing there to biopsy. I love the ostrich approach.
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Kasey, I have got to tell you that you have been one my heros for a while now. Geri is another one but she already knows it and we don't want it to go to her head so don't tell her again, okay?? I must say as I was lying stone cold still for my PET scan today I was giggling a little about the "artifact" and was also praying that indeed that is exactly what it is. Wish you would join us in chat some Tuesday night .... Randy is pretty hard to control sometimes. Take care!!!
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Sorry Geri but that was not even what I would consider a whine that was simply a statement of facts. Prayers are with you and I hope you managed to get a good nights sleep .. it can make a lot of difference.
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Hi Corrine and welcome to the board. It sounds like you are undergoing the tests and things can seem overwhelming and the answers do not come fast enough. I thing Maryanne above meant we are here "24/7"!!! Someone is usually around to support and answer questions. Not know all the particular of your situation it would be hard to say about the possibility of an operation. Glad you found us and hang in there.
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Thanks Kasey ... you also Randy.
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On our evening news last night there was a segment on a new treatment for lung cancer that Dr. Nader discovered. I believe it was for use when the cancer was such that the individual was having trouble breathing. It was the injection of cisplatin directly into the tumor follwed by guided radiation. If I can find the segment online I will post an address to it. Dr. Nader is the pulmonoligist at the Cancer Treatment Center in Tulsa, Oklahoma.
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Welcome Val ... this is a great site with great folks. It looks like you and I took the words inoperable and incurable and kept right on walking. Keep us informed.
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I for one would not even wager a guess ... this is EXACTLY why I never want to see my records or any reports. LOL I am an ostrich.
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Hi Sandra and welcome to a wonderful site. I am sure many folks with come along with advice on how the help the kids. My only kid was 36 at the time of my diagnosis and I think he dove into denial ... so I am not the one to speak to that subject. If you fill out a profile with all your information it will help tell us about you and keep you from having to answer the same questions over and over. Do you have non-small cell or small cell cancer? What are your chemo cocktails made of, etc. etc. etc.
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Welcome GranFran .. you go girl. Glad you are a candidate for the surgery. My cancer was inoperable but with radiation and chemo they have deemed it stable. I feel that you will do fine. Prayers for you.
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I always cover the entire LCSC in my prayers but will put a speial one out for you tonight.
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Welcome sweetie.
They have me scheduled for an MRI January 30th at 7:30 a.m. Until then me and my Ativan followed by a possible margarita if we go to the casino shall see me through the weekend nicely. The panic is long gone because it is what it is and fretting about will not change anything except to make me sick. Thanks to each and every one of you for being there. It now appears that it is on the T2 area of the spine but is on the left side by the ribs. Not even going to wager a guess as to why he said a biopsy was to dangerous just going to trust that he knows what he is doing. Again thank you ALL!!! 
FABULOUS!!!!! Hope to see you in chat.
Prayers for test Today
in MEMBER UPDATES
Posted
My oncologist had me take a PET scan every 3 months for a year following treatment. After the first year she switched to every 6 months and wouldn't you know it something somewhere lit up. Has your mother signed papers authorizing you to get information from her doctors? I did that for my son when all this first started.