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Judy-OK

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Everything posted by Judy-OK

  1. Hi Jeanette. I can not add much to what has already be sid above. Just wanted to welcome you from one small town Okie to another. Judy
  2. Welcome Jeanne!!! Maybe I should look for a phone buddy. Hmmmmmmm.
  3. Just a short note to let you know I am still around just not online much anymore. Hopefully that will change. I will receive one more chemo treatment in about two weeks and then they will be giving me a break to recuperate. Maybe then I can return to my chat friends and more frequent visits to the message board. Hang in there everyone and you are all in my prayers.
  4. ((Lynn)) my deepest sympathies ... you are in my thought and prayers.
  5. My first round chemo was carbo/taxol with 37 radiation treatments my scan following treatments showed the disease as "stable" and it remained that way for almost 2 years.
  6. Hi friends had my first round of the above mentioned chemo a week ago Thursday and this has been the first day since then that I have had enough energy to set at the computer. I was suspect of the Taxotere but my Oncologists nurse said it was probably the Avastin that was kicking my hiney. I will only receive this treatment every 3 weeks. They wanted to give me a Neulasta shot the day after chemo but my insurance would not cover it because my white count was still within an acceptable limit. I guess I have not asked a question but if any of you have had similar treatment, or are the caretaker of someone that is then, please share experiences or glimmers of light. I was finally able to manage to eat a little bit today so perhaps the energy level will pick up in a day or two.
  7. Deb: You know my thoughts and prayers are with you at this time.
  8. Hey Sandra a good friend of mine had the cement procedure and did VERY well with it and she is a whiney bag as a general rule. So that is a positive things that she sailed through it.
  9. Welcome to the board Burnese. Let us know the results of the biopsy. Best wishes.
  10. SSD and SSI are two totally different things. SSI is for very low income and most likely not taxable and should be accomapnied by Medicaid I would imagine. I was approved for SSD which is Social Security Disability a portion of which is taxable and after two years I was placed on Medicare and I kept a senior health plan. The first year I was approved for SSD I got a lump sum check with no taxes withheld and ended up paying a huge hunk the following April. I then was wiser and went online and instructed them to start withhold federal taxes out at a set percentage.
  11. Judy-OK

    Contact List

    I was unaware of buddy/buddy list. That is good thing and I will check it out but I also think this list is a wonderful idea and thrilled that Connie has taken on the initial task of compiling the necessary information. When battling the beast I think the more buddies we have the better off we are. Thanks to all. Judy
  12. Judy-OK

    Contact List

    Connie sounds great and I have already sent my information to you. Now who is going to know how to track you down? ROFLMAO
  13. Judy-OK

    Contact List

    I am truly interested in pursuing gathering information to be utilized as a contact list for folks that become M.I.A. With nearly 4000 members world wide I am not even sure where to start or how to divide stuff up. Did I understand that at one time somebody actually attempted to accomplish this task? If so would be interested in what derailed the project or if it ever even got off the ground. Thanks to those that have been around any length of time and are now setting back giggling at me with a mere two years of hanging around.
  14. Judy-OK

    Spring 2008

    Teriw I do so look forward to your posts. When Bill posted I know his was the first post I always looked for and you, my dear, are a great word wizard and just as eloquent as Bill. Thank you.
  15. Judy-OK

    Marie Check in

    Sorry I know nothing about Marie but would truly be interested in a list somewhere with names and phone numbers or contact names for members that may go MIA. If I can help someone to accomplish this task I would be more than happy to do so. Let me know. Judy
  16. The timeframe question comes up time and again was we battle this beast. My understanding both times was that the radiation continues to work for several weeks after the last treatment is received. Possibly they want it to shrink the tumor as much as possible before the perform anything else.
  17. Judy-OK

    Zometa help

    And we know we are all different. My first round of Zometa I had terrible chills and ran a fever starting about 12 hours after the infusion and ending in about 48 hours. With my second infusion I experienced a few muscle aches and pains but none of the chills. I have been told that the reactions lessen with each monthly infusion and so far I have found this to be true I expect next month to sail through with absolutely no problem.
  18. Ellen well those that have posted ahead of me have already said it ALL!!! Welcome to the board and now get ready to fight ... I had chemo and radiation on inoperable lung cancer and though not a walk in the park it was very very doable. I have searched my body (do not want to know what is in the places I can not see) and have found no tags or stamps with an expiration date. Only one knows when I will be called home and he is not telling anyone else. Keep us informed of what you decide to do. Judy
  19. Welcme to a great web site. Let us know how things are going. Judy
  20. This probably has little to do with nothing but I was hospitalized with a collapsed lung after they installed my port. For the 5 days I was in there they would come up and get me with all my appartuses in tow which included the machine that was letting my lung reinflate plus the oxygen that kept me breathing along with all the hoses and cords and take me down for my radiation treatments. My chemo was administered in the same building as my radiation but they were not concerned about me missing my chemo like they were about my radiation. They could have simply walked to my room inserted the needle and hung my chemo bags but they said is was not a critical thing. It seems like once they start the radiation they are pretty adamant about not missing it.
  21. Hi snappy!!! I had carbo/taxol once a week and radiation 5 days a week for over 7 weeks so it sounds like your hubbie and I were on the same treatment plan. I drove myself for every single radiation treatment and actually think maintaining some of my independence helped me through the process. I was NEVER to tired to drive but the walk from the car to the radiation area took me awhile to accomplish near th end of treatments but I just took a lot of short breaks and allowed myself time. I drove myself to my first chemo and they requested I have a driver so I had to call someone to come and get me. They said I could drive myself if I did not want the Ativan in my chemo cocktail ... I wanted it so I got a driver. I never took any type of anti-nausea medication before, during or after tretment and did just fine. I even managed to keep my hair. The radiation caused quite a nasty burn on my skin and some internal scarring that I deal with still. I think Joe will do just marvelous and don't hover over him unless he is the kind of person that thrives on that kind of attention.
  22. Hey Mary, you seem like an old friend of mine. I had the exact same treatments as your hubby. I think I actually tolerated the chemo drugs better than I did the 37 radiation treatments. Glad you found the site and I am sure you will gain a lot of information.
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