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Mendy

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Posts posted by Mendy

    more surgery

    in MEMBER UPDATES

    Posted

    A bulla usually occurs when someone has emphasema. The damaged lung tissues traps air and it can become large enough to press on the good lung causing difficulty to breathe.

    Hopefully I will have a chance to talk with the surgeon. I don't think my husband wants to ask why no chemo recommendation. He is thrilled at the prospect of no further treatment. It must have been a pretty bad experience that he doesn't want to have to repeat.

    Mendy

    Forgive Me

    in CAREGIVER RESOURCE CENTER

    Posted

    Leslie,

    I feel your pain and am so sorry you have to watch one of the most important people in your life suffer. I feel the same about my parents. I will say a prayer for your dad to find relief and to find the right treatment to work.

    Hugs,

    Mendy

    more surgery

    in MEMBER UPDATES

    Posted

    We have yet another hurdle to get through. Last week my husband met with the head of of thoracic surgery at Emory to get started with his new set of doctors now that we are in GA. He had my husband get a PET and CAT scan this past Monday. The scans show that he has a lymph node on his good lung lighting up big time. That is the only spot that shows any cancer. His left side is clear. He also has a bulla on his right lung that his surgeon in MD wanted to fix and so does this new surgeon. So in a couple of weeks he will have the bulla and all his lymph nodes on the right lung removed. He will be in the hospital 3 days post op day.

    What confuses me is that the surgeon met with a review board and they all agree that he will not need any adjuvent chemo or radiation. How can they make that determination pre-surgery? If his lymph node is collecting cancer cells, couldn't there still be some stray cells?

    I am also frustrated because he just started a new job this week and we don't know if he will have it when he is ready to go back. It feels like it will be impossible to get ahead.

    The good news is that he should be breathing much easier with the bulla removed and he is staying positive with that in mind.

    Anyone else had a bulla removed?

    Mendy

    365 days later........

    in HOPE

    Posted

    Rachel,

    Let me add my positive wishes to all who posted before me. I truely hope you have great results. I know what you mean about it being a fast year. May you continue to count them up.

    Hugs,

    Mendy

    Avoid children during chemo?

    in GENERAL

    Posted

    At the time of chemo, we had a 3 and a 5 year old who were in daycare. My husband just stopped kissing them on the lips, washed his hands frequently, and had the neulasta shot with each treatment. He was fortunate and didn't catch anything.

    Mendy

    Joel's Ct results

    in MEMBER UPDATES

    Posted

    Oh Maryanne,

    I am in the same wait and see mode and trying not to worry. It is so hard to live care free when you wonder what is lurking.

    I am sorry the report wasn't clean. But maybe there is nothing to worry about.

    Hang in there!

    Mendy

    The Good/The Bad

    in GENERAL

    Posted

    Nyka,

    I am so sorry for all the stress. Sometimes it can seem overwhelming. You should be entitled to Cobra benefits. Let your friends and family know how bad things are and that you need help. My experience has been that friends want to help but sometimes you need to be direct in telling them what they can do.

    I hope you start to have more good than bad events soon.

    Mendy

    Shingles

    in GENERAL

    Posted

    I have been so proud and impressed with my husband since we moved to Georgia. Afer being out on disability for 9 months and then unemployed for a month, he started a job with a construction company as an assistant engineer. He has pushed himself working 60 hour weeks in this punishing heatwave in temp up to 105. He spends his day off sleeping a good part of it and is exhausted at this point. Last week a rash appeared and got progressively more painful so today he stayed home to go to a doctor and it turns out it is shingles. I feel so aweful that I didn't recognize it immediately. I thought it was a heatrash. Thank goodness he had enough sense to seek out treatment.

    Can you believe after what he went through this past year that he now has to deal with painful shingles?

    I am not sure how much longer he is going to last at this job. The money is great but it is taking such a toll on his health. He did send out a resume for an inside job today so we shall see.

    By the way, we do like it down here. It would just be nice to have some down time to have daddy come along to explore with us.

    Take care,

    Mendy

    TracyD Update

    in MEMBER UPDATES

    Posted

    Thank Kasey for reporting on Tracy. I often wonder how she is doing. I think we all can understand the importance to take a break and not think about cancer but rather enjoying family and life in general.

    Mendy

    Finally told what the "white spots" are on the MRI

    in CAREGIVER RESOURCE CENTER

    Posted

    Steph,

    It sounds like your mom is responding very well to her treatment plan. I know it is tough to deal with the uncertainty of this disease and it is normal to have low moments and wish life were back to what it was before you knew your mom had lc. You will probably surprise yourself with your strength in helping your mom. I see you have a baby so don't forget being tired can make you more emotional too. Try to get some rest if you need it and recharge your batteries.

    Mendy

    Georgia bound

    in MEMBER UPDATES

    Posted

    Just wanted you all to know that we will be disconnecting our computers in the next day and will not be reconnected until next Monday. We begin our journey down to Georgia bright and early Friday morning! I hope everyone has a safe and pleasant week.

    Mendy

    Georgia here we come!!!!

    in HOPE

    Posted

    Maryanne-the subject was for you. :D

    After four very long days of waiting, I received my offer for the job in GA. They were very generous in their offer and we are so excited to relocate to a very nice place to raise our kids. We will also be near my brother who will be within an hour drive.

    I did it!!

    Ned, you were absolutely on the money with your observations. We were definitely meant to go.

    We will probably make the move after the 4th of July.

    Mendy

    No Lung No Cancer

    in HOPE

    Posted

    Heather,

    I am so glad that you had a successful surgery and now you can begin to heal. Be patient as it does take longer than you would like to recover. Make sure you walk and if you have trouble sleeping in a bed try sleeping in a recliner chair. Stay on top of the pain medicine-don't let it wear off. Please let others care for you kids. It will be enough that you are home and they will understand that mommy doesn't feel well and needs to rest. My kids were very close in age to yours when my husband had his surgery. They most difficult part for us was my daughter, who was 3, didn't understand why daddy couldn't hold her and we did have lots of meltdowns over tiny things but we got through it. You will round the bend probably between 4-6 weeks post-surgery.

    I am proud of you for being such a warrior.

    Mendy

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