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Nick C

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Posts posted by Nick C

    Few question regarding my mom...

    in CAREGIVER RESOURCE CENTER

    Posted

    Alynn,

    I certainly experienced personality changes with my mom. She got tougher and more insistant. I attributed this to the steroids..as she hadn't started radiation right away.

    My mother also got very fatigued...but I am still not clear what was the radiation and what was the pneumonia...everything kinda happened at once. But that said, the literature I read said the radiation can be VERY fatiguing!!!

    And Katie has a point, I get sick, I digress to being like 8!!!

    Best wishes though for a positive outcome!!

    My dad's 3 years of remission are over.....I'm a mess!!

    in CAREGIVER RESOURCE CENTER

    Posted

    j's girl...I was thinking of the same suggestion!!!

    I had a buddy in the military years ago who did his wedding and did the reception on his 1 year anniversary...because of the complexities of timing.

    Teresa, you could throw on your dress, walk the isle, dance your dance, get pics...all that stuff.

    And then, with Dad, plan the big party. He could very well be there for the party too. And then you get the possibility of the blessing of celebrating not once but twice with Dad.

    I hope all this works as well as it can for you.

    My dad's 3 years of remission are over.....I'm a mess!!

    in CAREGIVER RESOURCE CENTER

    Posted

    First off I am so sorry. I'm sure after 3 years, this news is tough.

    Secondly, I understand the sadness that comes with a life event that you now fear may not be shared with your parent. And a lot of people have A LOT to say about it. And sometimes terribly insensitively.

    Thirdly, I've just prayed that Dad makes your wedding and beyond whatever you decide.

    I don't really have advice on what to do...we'd all do something different.

    That time of year

    in GRIEF

    Posted

    Pat #1, I ache for you!!! I truly do.

    #2

    Now I will give myself a good talking to,pull up my big girl pants and carry on.

    Don't scold yourself. THis is hard, you aren't wrong for saying one single thing that your said (wrote).

    #3 a lot of your other points I get as well in some way shape or form. planning for a future that didn't come. Watching life move but my wheels spin in place. Being lonely (just waiting for that phone to ring!). I so get it.

    #4 I've just prayed that all other things life is throwing at you right now...work...your son...the season. I've prayed that God is present with you and gives you the strength and help you need at this time.

    Helpless and Negative

    in CAREGIVER RESOURCE CENTER

    Posted

    Oh Dar, so sorry.

    Have you called hospice? I know they not only are there to assist the patient, but also the families. We never had the opportunity to call in hospice, but we had talked to Mom about it, and she knew it was a good thing. The day we made the call to start the ball rolling was actually within her final 24 hours.

    So I am not speaking from experience, just what I believe hospice could do for your entire family.

    Here is an idea though just to boost your mom's spirits...is there a time of year she loves? Something she loves to do.

    My mom loved thanksgiving (our holiday) I would have "bumped it up" and say we're doing regular thanks giving too, but let's live every day exactly how we'd like. Mom also loved spring, I would have bought some bulbs, planted some winter indoor bulbs so she could do her "springtime thing".

    Just an idea...again, not personal experience, but if I were face with the challenge, that's what I would have tried.

    All the best to you.

    Nick

    New to the boards

    in GRIEF

    Posted

    Sarah.

    I am SO sorry. My mother was diagnosed Sept 5 and left us October 5th. She was 56, my biggest fan, my rock and my buddy.

    I have struggled with feelings of "nah, can't be, she can't be gone" yet I am not in denial...I know she is.

    And then I realize, 2 months ago, we thought everything was peachy! We haven't adjusted to any of it yet. You were only beginning to deal with this in july...that isn't a long time at all.

    I hope these times find you having faith that she is experiencing the greatest joys now, and that you will see her again.

    I have just prayed for both of us...that we find comfort in this time of loss and for the faith to know that we are only temporarily parted from our mothers.

    ACS Funding letter to Government

    in ADVOCACY

    Posted

    I'm all for increased funding...but is lung cancer high on the NCI's list of priorities?

    I'm not poopooing or anything, but thus far in talking with people, I get the idea the NCI and the ACS don't seem to prioritize Lung Cancer at or near the top of the list even though it is the leading killer.

    Maybe this is a discussion for a different thread...

    Can someone please explain?

    in GENERAL

    Posted

    Also, I did hear back about 2 years ago from the U of MN who is a part of the CT verses X-Ray Study for LC, that they were complaining about the false positives even back then

    Yeah, you think those false positives are bad...those false negatives on the x-rays can kill ya.

    Can someone please explain?

    in GENERAL

    Posted

    This particular scan (as I understand it) is a 20 second scan...low dose radiation spiral CT.

    Maybe it's cheaper than a full scan.

    Or maybe the 300 is a study subsidized number. I can write Dr Henschke with the question. I am writing her this weekend anyway.

    LCA and early detection

    in LUNG CANCER IN THE NEWS

    Posted

    $300.00 Per person for each scan done the insurance companies pay. 300 Million people in this country. smokers and non smokers, old and young , Male and Female.

    In fairness to the study and what they said...the CT scan is not in this case for EVERY AMERICAN. The doctors at the conference are saying that the target group is really the ones at risk. 30 pack years of smoking.

    I now have a "family history", but I would not be someone that this study says to get an annual CT. The kid who smoked in high school and quit, not the person for the scan. The person who smoked two packs a day for 15 years, quit at 35 and is now approaching 50. This person (according to the target group stats) is a person who should get the scan.

    How many smokers/former smokers with 30 pack years in their life are there? That's who the insurance cos' should pay for (or the tax money on cigarettes, but that is a political discussion for another thread).

    But I will still go for a CT chest scan (I've never even smoked a ham much less a cigarette) when I turn 45 and again at 50 just because...better safe than sorry.

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