OhioKat

I think you should go ahead with having the ovaries taken. They might be the cause of your flank pain, as pain often travels to the strangest places. As for pretneding you're ok when you're not, I think that does a great disservice to yourself. No one could ever be "ok" with what you've been diagnosed with and while I'm certainly not advocating just giving in or giving up, it's just unrealisitic for others to think that you're not going to have periods of times where you're not little mary sunshine. You are allowed to feel horrible and sad and depressed, don't let anything make you think that you're not. You're also allowed to feel good, and joy and to feel hope.

Many prayers and good thoughts for you.

I think that you answered that beautifully. You definetely handled it in a much nicer way they I would have. Especially the line about the food stamps and cigarettes. Those two things have absolutely nothing to do with each other, and the fact that they tried to connect the two just speaks volumes about that persons prejudice against persons who require assistance from food stamps. I was a smoker and I quit after in between the time of finding the mass in my lung and actually having the diagnosis confirmed. It was one of the hardest things I've done in my life. I have no doubt I could pick it back up in an instant. I've actually told many people that if my cancer would ever get to that "this is the end" kind of point I'll stop off & pick up a pack on my way home from the Drs. Congrats on handling this person with grace and dignity.

I wondered about that, well actually I wondered if the chemo might have had something to do with messing with the thyroid if that is what it is. Hadn't even thought of the radiation. I did have the PCI, interesting thought. I really have been trying to be very careful about what I eat, and even taking some diet aids but all I do is gain, and I tried to tell him that, plus I'm as fatigued now as I was when I was on chemo. All he saw my my ever expanding behind though. *sigh* Thanks for the support & responses

They are calling for 6-12 inches here in NW Ohio.

I was thinking it might be that too. Now if I can just get my dumb a** Doctor to listen and not just give me a line about not eating so much. I swear he thinks I eat out of a trough. Thanks for the reply.

I've only had one Mets so far & that was to my pelvic area, specifically my left ovary. I was told it's fairly rare for it to go there. So far I'm 1 year clean. Next CT scan is set for June.

I have just recently started watching House, and really liked it except for the jerk off hospital admin. I was actually going to stop watching it because of that whole thing, but hopefully after last week he'll be gone. I much prefer the medical stories to the "I think I'm god because I'm rich" Admin story line. I admit to almost feeling like I'd been hit in the gut when they diagnosed that woman with SCLC. I think that is the first time I've ever actually heard it specifically mentioned on TV. Speaking of TV: Has anyone heard just what kind of lung cancer Peter Jennings has?

I'm wondering if anyone here has experianced a lot of weight gain, especially while out of treatment? I swear to God, it is like breathing is making me gain weight. I've joined Curves, I'm going 3-5 times a week, I have cut my intake, trying to keep my intake to about 1000 calories a day (not always perfect on that one but it is also not much over that) I literately go to bed more often then not feeling kind of nauseated in hungry kind of way. I'm eating less and excersizing more then I have in my entire life and I'm gaining weight, 2 lbs in the last week alone, and 40 in the last year. I'm really starting to worry that something else is wrong here. My doctor of course just blows me off and tells me not to each so much. 1000 calories isn't all that much, so just how much less can I eat? Everyone's first assumption is depression or just eating like a pig. I can't deny being a bit depressed on and off,mostly now because I'm blowing up like a thanksgiving day parade balloon. But my eating habits are not that out of control.

All I'm getting is a "bad gateway" error when I try to follow a link for the wristbands

Thank god you posted that, here I've been sitting here thinking that something was wrong with me but what you've written here describes its about as perfectly as anything could. I get that feeling from everyone. After the first round of chemo & stuff before I even had a chance to start feeling really better it came back & I was tossed right back into surgery, & treatment. Now thats over and I just feel, unsure or something.

Darn I'm sorry to hear I missed a party. I would have loved to come. Maybe I'll catch it next time

Ground Control, this is OhioKat, checking in. I got a little note on my website guestbook. I've been a naughty girl I know, by not checking in. Things here have been ok. I've been NED since June. I have some more CT scans scheduled for the 29th of this month. I'm feeling fairly good, still a lot of pain from the neuropathy (side effect of the cisplatin). Quite a bit of pain in my left breast too, but a Mamm & ultrasound both came back clean in September so I guess the pain is in my head or something. If it wasn't for the bouts of anxiety and depression I'd be doing just great. Just trying to make it through the holidays with at least a little bit of my sanity intact. Hope every one has a great Holiday!

Jen, I'm so sorry about the hearing loss. I had the ringing in my ears but thankfully, yes it did do away. ((hugs))

I'm so very sorry for your loss Beth. (((hugs)))

I was getting dizzy spells quite a bit towards the end of my chemo. Just to be on the safe side they had a brain CT scan done and sent me to an opthamologist. Thankfully everything came back clear. I guess its just a side effect of the chemo for me. Some of the dizzy spells might have been because of the whole standing up too fast but quite a few of them happened totally out of the blue, even while I was laying down, which counts out the orthostatic bp type spells. So far I've not had but a couple since ending chemo a couple of weeks ago. *keeping fingers crossed* that they don't come back

That would be so awesome to be able to just jump in an RV and take off for parts unknown with no set time frame for returning!

I think that it sounds like your doing great with it, although I know you probably don't feel like you are. Hang in there sweetie (((hugs))) Kat

I was about to say that procrit is for something different then the neupogen but then I noticed that Rick already had. Just wanted to add my good thoughts to ya that you don't have a problem and be in need of this. I had procrit my first round of chemo but didn't need the meds for the white cell counts. Made it through this most recent chemo without needing either of them

I've had some "muffled" hearing & some ringing. The ringing seemed to happen more the first time I had chemo with the Cisplatin. The nurses said it should go away on its own and it did, although since this last bout of chemo I've had that muffled feeling a bit more often. Hopefully it'll go away soon too. (((hugs))) Kat

Glad to hear that its not too bad on you so far I would get that after chemo insomnia too, made me nuts cause I'd be sooo tired but couldn't fall asleep. ((Hugs))

excellent news Hope today went easy on you and that your nurses were as nice as mine

((((hugs))))) Just breathe, I know its scary but the others are right, wait till you have the results. Sending prayers your way.

This came up when I went through chemo the first time, I was half joking when I said to one of the nurses that I thought I might like to go out for some margaritas. She told me to go for it, but then also suggested that in the actual week I was getting the chemo I might want to avoid it. At that time I was getting one week of chemo then 3 weeks off. She said if I wanted to drink in the non chemo weeks that would be fine. I'm not really much of a drinker anyways so it didn't really come up, although once in this regimine some friends and I went out to a comedy club and I had a marg with no ill effects. (((hugs))) Kat

My days with the cisplatin were 8 hours days because of the extra fluids they infuse. My first Onc did the extra fluids too, but not as much as my current Onc. So it was a lot shorter my first time through chemo, but with both of them the big thing was making sure you were hydrated enough.