Andrea
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Posts posted by Andrea
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Suck a duck, not the news hoped for. I was hoping your body was wrong. Not giving up hope though and sending lots of love and prayers your way.
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Thanks!!! I am not too worried about Jacob actually b/c if his biggest problem in life is being small, we are blessed. I just want answers
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Today marks the day my mom was diagnosed 5 years ago. Despite obstacles such as pulmonary embolism, brain anyerusm, and triple bypass, we are blessed to have her here with us today.
We are taking babies to Disneyland for the 1st time today (mom and dad are staying home, going with hubby and Uncle).
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Don you are an inspiration to so many . I am so sorry to hear the news. Sending good thoughts your way.
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I worship the ground my parent's oncologist walks on. Whenver there was a question or issue, we got a call back right away from either a phyisican assistant or nurse. They were wonderful at relaying messages and keeping us in the loop. The onc himself never called back though. There was never a need. However he was always there when we needed him. Like when my mom had issues after her brain anyerusm procedure unrelated to the LC, he rode in on his white horse and made sure everyone was on top of things to stabilize her b/c he cared, other drs didnt as m uch.
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We got lucky once again. Dad is still in remission. Sometimes a cough is just a cough. The cough made us extra nervous this time.
As for Jakey, he is not growth hormone deficient like we were hoping. Going to Cedars Sinai on Nov 25 for more evaluation.
Thanks to everyone for their support!
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Thank you my friends!
Kasey, they are looking to see if he is growth hormone deficient. That would be good news, it would mean shots could help him grow. If that is negative, then we go to Cedars on Nov 25 for a genetic specialist to look at other issues like skeletal dysplaisas (mild forms of dwarfism maybe they said).
I can't complain though, if his biggest problem in life is being "little", then we are blessed
I am not stressed about it, I just want to get to the bottom of it kind of thing. -
Scanxiety time once again.
I find it "funny" that really only my LCSC friends get it. On Facebook the only people who wrote to me were LCSC people. As for Jacob (my 16 month baby), waiting to hear on the growth hormone stimulation test we did last week. I actually got the results myself from the hospital yest (my mom was a little concerned with my methods), but I dont understand them b/c I am not sure what they were lookign for and internet did not help. So I have to wait for the dr to call.
I may not post as often b/c my babies get mad when I am at computer too long, but I read and think of you all!!!
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Sending love your way. I can't even imagine the pain and anxiety you are experiencing. I am HOPING for the best.
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YAY Katie!!!!
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That was a great interview! And glad to hear you had a successful walk
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Suck a duck, that is too much going on. I am so sorry about your aunt
Sending lots of love your way. And hoping for good scan news! -
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So happy to read the news!
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That was beautiful! Thanks for sharing.
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I received the following message from a friend. My gut is maybe it is two primaries. I know not all lung nodules are cancer, but 2cm is suspicous. Any thoughts? Here is what she wrote. Thanks everyone!
So I found out a week ago that my dad has colorectal cancer. Dealing with the oncologist was the most frustrating experience for me. The entire approach to treatment is counterintuative to me. There seems to be more unanswered questions than answered. He has 5-6 weeks of chem/rad then they will remove the tumor which depending on who you ask is 3-8 cm. It seems to have perforated the wall but didn't travel, thus making it stage 2. However, they didn't biopsy during the colonoscopy, endoscopy. They said the lymph and liver is fine but there was a 2 cm tumor on the lower part of his left lung. They tried to biopsy but failed. So its unclear if that is related. They "think" its unrelated. Without any data I find that hard to believe. They will do a PET scan this week which should be more informative.
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Yay baby!!!
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I agree to go for the second opinion
Also I believe it depends on what type of LC you have. Tarceva has proven to be more beneficial for certain types of LC, like I know it is a main treatment in BAC, but with other types of LC chemo is used before Tarceva. -
I understand that there may be studies that say a healthy diet is better, but I can only go by my experience..........my mom eats cookies, cake, lots of bread, lots of fruit (fruit has sugar). Sometimes she has cookies and tea for breakfast or lunch. Sometimes ice cream will be her dinner instead of food. She eats what she wants b/c certain foods make her nauseous still. November will mark 5 years. I personally have not seen her diet play any role and I don't buy into the diet stuff only b/c I haven't seen it have any effect on my parents
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I am a Daysaholic
I am a few weeks behind and I knew she was coughing up blood, but didn't know the diagnosis. It will be an interesting storyline! -
Thanks everyone! I take back what I said though, it is not a shoe dropping. If him being small is the worst thing in the world, we are lucky. Grandparents are not as calm, but I am
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Well I knew another shoe was doing to drop.....it is mid-way in air right now.
Jacob is being worked up for skeletal dysplasia which means the doctors think he has a form of dwarfism
He is such a little hunk, I still am in shock. It is a tricky diagnosis to make. He is very small for his age, but looks normal.Keep us in your prayers if you don't mind. Thanks!
Sending lots of love your way. And hoping for good scan news!
NO WHERE TO TURN
in CAREGIVER RESOURCE CENTER
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I am 36 also and I remember feeling so lost at the time of my mom's diagnosis. I remember feeling like how can people be smiling and acting happy when our lives were in chaos. Your feelings are totally normal. I am sorry about your aunt. It is just never an easy situation for anyone. You are not alone in your feelings though.