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Jana_W

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Posts posted by Jana_W

    is this great news or what???

    in NSCLC GROUP

    Posted

    Jamie

    :D:D:D

    What wonderful news that is. You must be the most excited person in the world. I also do not know the answers to your questions regarding restaging. However I would think it is possible, given that people are re-staged when further metastasis are found, why not re-stage when less cancer is present. The important thing to remember is that when you look at statistics presenting data on survival for the different stages, that is referring to stage at diagnosis! BUT!!! I think it is so important to remember that there is not a single cancer out there (that I know of) that kills all people with it. So, certainly it seems your Dad has a fantastic chance of beating this. I wouldn't worry about thinking you shouldn't get so excited now in case there is bad news later. You'll deal with that IF and when it happens. I say go with the good feelings while they are there. Enjoy them and cherish them.

    I hope you have lots more good news to follow. How is your Dad going with the one lung?

    Thinking of you

    Jana

    xxx

    Things that make me go hmmmmm.......

    in GENERAL

    Posted

    Hi, just me again. In my last post I mentioned that I was not certain about the survival advantage of having chest films done. I didn't really write that correctly. Of course we know that the earlier a cancer is picked up the greater the chance of survival. I meant that on a population level, mass screening for lung cancer using chest x-rays has not been shown to be a cost effective screening program (unlike cervical cancer for which pap smears have been shown to be a cost effective screening program). Sorry for that!!!!!! Hope that bit makes more sense now.

    Jana

    xxxx

    In a peace now

    in GRIEF

    Posted

    Berisa

    I am so saddened to read your post :cry::cry: It sounds like your Dad passed on without sufferring at the end, and I am glad for you that it was like that.

    What the others wrote I agree with.......he would already be so very proud of you.

    My heart goes out to you.

    Take care

    Jana

    xxxxx

    Things that make me go hmmmmm.......

    in GENERAL

    Posted

    Hi Andrea

    From my knowledge, the survival rates for lung cancer are so poor due to the fact that the disease is predominantly diagnosed at a late stage. People are able to have lung cancer for several years before having any symptoms, so there is really no way of knowing they have it. My mum's cancer was picked up on a routine chest film, and to this day she remains symptom free, despite being a Stage IV.

    I am not certain that extensive routine chest x-rays have shown to provide any survival advantage for lung cancer patients. I know this has been studied in Australia and it is NOT recommended as a screening tool for lung cancer (unlike Pap smears for cervical cancer). I am not certain of the reasons.

    I worked for eighteen months for the Cancer Foundation of WA as a project co-ordinator for the WA Cancer Staging Project and I will see if I can find any articles which explain in greater detail why mass screening for lung cancer using chest x-rays is not recommened.

    Hope this has helped you somewhat

    Jana

    xxx

    Sorry I have been MIA

    in GENERAL

    Posted

    Melinda

    Sorry to hear you've been so unwell. I had strep throat once and it really is horrible. I do hope you're on the mend now and have been taking that much needed rest.

    I will be thinking of your family on Friday and hoping for some good test results from that CT scan.

    Jana

    xxx

    New to this nightmare

    in INTRODUCE YOURSELF!

    Posted

    Hi Debbie

    Welcome to the forum, and sorry you have had to join. I am sorry for what you and your husband are going through. Like everyone else I also think that you should try to find out why your husband is needing so much tranfusing, especially if it started before the chemotherapy (which to me implies that the chemo is not the causal agent).

    I am hoping your husband responds well to the chemo and am thinking of you both right now.

    Jana

    xxxxx

    Mum's x-ray coming up

    in MEMBER UPDATES

    Posted

    Thank you to everyone for your thoughts and prayers. Mum's x-ray showed "no apparent change". Good in one way, as it means it's not getting worse, but not terribly exciting as it shows no improvement either. Hard to know how to feel about that really.

    Thanks again for your thoughts.

    Jana

    xxx

    Mum's x-ray coming up

    in MEMBER UPDATES

    Posted

    Hi

    Mum is having an x-ray either tomorrow or Saturday to see what's going on with that pesky cancer. I hope you can send some prayers and thoughts our way. I know you all have lots of people you do this for already :wink: so appreciate any thoughts that can come our way!

    Jana

    xxxx

    Dr says only chemo no radiation???

    in CLINICAL TRIALS

    Posted

    Hi Lauralou

    I can't help you with your query, but can tell you that my Mum (who is a Stage IV NSCLC) was also never offerred radiotherapy. The doctors told her that chemotherapy was her only option. I know that Mum was not keen to have radiotherapy on her primary lesion in her lung, for fear of damage to the lung tissue. I suspected that if there is tumour in multiple sites radiotherapy is less often used, but then I have read of many cases of brain secondaries being treated with radiotherapy?????? I hope you find the answers you are looking for and that the shrinkage continues.

    Jana

    xxx

    New to Board

    in INTRODUCE YOURSELF!

    Posted

    Hi Kelly

    Nice to meet you and welcome. Reading your post reminded me so much of my family and what we are going thru. My Mum was diagnosed in August of last year, unfortunately her stage at diagnosis was a Stage IV. She has a tumour in her left upper lobe, positive mediastinal lymph nodes and some bone secondaries as well. My family are also very close and have been a great support to each other, and we also refuse to believe the prognosis of incurable. Really, how do they know that? They don't, so we don't have to accept it. The hurt your feel being scared about your children not remembering your Dad I can also relate to, as I am trying to get pregnant myself at the moment (I have no children) and I am devastated at the thought my children would never meet my Mum. I try not to think about that too much. I also relate to what you say about how life seems so different since the diagnosis, and I totally agree. I do so wish that I could wake up one morning and not have to think about the fact that my Mum has cancer. That would be wonderful. I have recommended to other people to research "Ian Gawler" on the internet.. Ian was given about two weeks to live by doctors and is alive 27 years later. He tried multitudes of different therapies and there is alot to be learned from him I believe. I hope you can look it up and find some information that may help your Dad.

    I will be thinking of you, your Dad and your family and hoping for some good news on the next scan.

    Jana

    xxxxx

    New to Board - Greetings All

    in INTRODUCE YOURSELF!

    Posted

    Hi Carolyn

    Welcome! You will find all sorts of support and encouragement on this message board. My Mum was diagnosed with Stage IV NSCLC in August of last year. It sure is one rollercoaster of a ride, but it is nice to know everyone is here for you.

    Keep in touch. Let's hope for more shrinkage in the next scans.

    xxx

    update on my father

    in GENERAL

    Posted

    You are SO welcome and I am so glad you found it inspiring. It truly is an amazing story. I wish everyone wish a diagnosis would read it. It just proves that people DO beat the odds. Thanks for the info. on the book you mentioned. I'll look into it. My Mum is trying alot of different things, so if you ever want to have a chat please feel free to PM me.

    Jana

    xxx

    Hello...I'm New

    in INTRODUCE YOURSELF!

    Posted

    Hi

    Welcome to the board. You will find alot of love and support in this group. I am very sorry to hear about your sister, and then your Mum. My Mum is also living with Stage IV NSCLC. Keep in touch. Let us know how the test results go.

    Thinking of you

    Jana

    xx

    update on my father

    in GENERAL

    Posted

    Hi

    I know my sister, karenl, has mentioned this before but if you are interested in alternative treatments I would recommend you use the internet and put the name Ian Gawler into a search engine. He was diagnosed and after failing several treatments was given 2 weeks to live. Well, 27 years later he is still alive. There are alternatives, always.

    Wishing you well

    Jana

    xx

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