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Jana_W

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Posts posted by Jana_W

    7/6 Happy Birthday, Daddy-I remember

    in GRIEF

    Posted

    Debbie, that was amazingly beautiful. Sitting here with tears down my face at work. Colleagues think I am crazy, for sure.

    The love you shared with your Dad shines through in your beautiful words. The memories are yours forever. No-one and nothing can take them away. They are for keeps. Not much in life is, so continue to treasure them as you do.

    with love

    Jana

    xxxxx

    Brain radiation necrosis?

    in INTRODUCE YOURSELF!

    Posted

    Hi

    I am really sorry to read about your Mum. I have no knowledge of radiation necrosis. I agree with Elaine that the attitude of your doctor doesn't sound great. I would definitely be at least getting a second opinion. Is it possible that your Mum's symptoms could be due to something else like a stroke, or something similar? It seems weird to me that all her other vitals are OK if the whole brain is sufferring from a necrosis. Please keep us posted on how things are going.

    With love

    Jana

    xxx

    A BIG Thank You

    in GENERAL

    Posted

    Hi all

    I just wanted to post a big thank you, especially to all of you wonderful people who sent us thoughts of encouragement and were thinking of us whilst waiting for Mum's PET scan results. It really means alot to Karen and me to have such support whilst anxiously waiting for results. And then to be able to share the news of stable disease with you all was just the best (well, nearly the best......NED visiting would be THE ABSOLUTE BEST). Maybe he'll visit next scan......I hope so........for my Mum and for all of you.

    Thank you, thank you, thank you :):)

    Sending you all love

    Jana

    xxxxx

    My mother was a hero...

    in GRIEF

    Posted

    Oh Cindi I am writing to you with tears in my eyes. Your Mum sounds like the most amazing and beautiful woman. How lucky you were to have her as your Mum. The fact that she defied all those obstacles and battles when the doctors and nurses didn't believe she could. Wow!

    I don't know what to say to you. I don't know if or when things get better. You are living my nightmare so I can only hope that it does get better, and that the pain diminishes a little bit as time goes by. I don't know what else to say. My heart is breaking for you. I am so, so sorry you are going through this. You are not alone. There are at least 1200 other people here who care about you and will be sending you millions of prayers and thoughts to help ease your pain. I am so sorry. :(

    Jana

    xxxx

    SOS preparing for surgery & in lousy mood :-(

    in LUNG CANCER IN THE NEWS

    Posted

    Hi Cat

    I don't really have any information to help you with, sorry Cat, but I agree with what Hebbie wrote and others suggested in that you NEED to have all the information and make sure that they have explained it to you sufficiently, and not just given you bits and pieces of information. This sounds like it is all getting very confusing (I know that I am definitely confused) and it isn't fair on you.

    It sounds fabulous to me that they are thinking of you for surgery and you have every right to be excited about that.

    Cat, I am thinking of you and really hoping this gets sorted out soon.

    As always, sending you a zillion positive hugs and thoughts and smiles and especially plenty of calm vibes.

    Jana

    xxx

    my sister now has cancer

    in GENERAL

    Posted

    Oh Shellie, my heart is breaking for you. This is awful and sooooo, sooooo, wrong. I do not believe in God, I have never really prayed, but I will be saying a prayer for you tonight, just in case.

    Sending you love

    Jana

    xxx

    Stable

    in MEMBER UPDATES

    Posted

    No sis, I thought I'd let you beat me to it this time.

    Relieved that there are no new spots. Annoyed it hasn't all gone away :D

    Love to all of you, and thanks for your thoughts and wishes

    Jana

    xxxx

    Question for all

    in GENERAL

    Posted

    Hi Jane

    Good news that the other tests showed clear. Please let us know after he has his followup with the ENT. I will be sending alot of positive thoughts your way that the polyps clear up and there is no need for surgery. Hope you find out soon.

    Take care sweetie

    Jana

    xxx

    Mixed News for Lucie

    in MEMBER UPDATES

    Posted

    Don

    I am sorry to read about the results of the latest PET scan. That's not what we were all hoping and praying for :(

    BUT I am glad that she is finding some relief from the radiation treatment. That is really important.

    Thinking of you

    Jana

    xxxx

    MY ONCOLOGIST..............

    in GENERAL

    Posted

    And perhaps the results will turn up on Saturn.

    The slides could have been sent via a verbal request from the brother (a verbal over the phone request), hence it appears that they physically came from hospital lab, but were really sent from MD Anderson (as that's where they were for second opinion). Or of course the hospital isn't very good at recording things and made a slip up or of course they got their via that meteor storm. You really have to watch out for those things!!!!

    Have a good sleep and maybe it will all make sense tomorrow :)

    Jana

    xxxxx

    MY ONCOLOGIST..............

    in GENERAL

    Posted

    If the onc's partner's brother is a pathologist at the hospital lab I guess it would make sense that he would request the third opinion on the slides. I know from when I used to work in the histology labs that the reports were always addressed to the pathologist who sent the slides on, and not the treating doctor.

    This is what it sounds like to me....

    Original biopsy taken in December and analysed at hospital lab (where onc's partner's brother works).

    These slides were recently sent on to MD Anderson for second opinion.

    And then after the results came back and the onc didn't like them, he contacted his partner's brother at hospital lab and asked to get them sent on to US labs. There is no record of this at the hospital lab as the slides were sent on from MD Anderson and not the hospital lab. Maybe if you contacted MD Anderson they would be able to tell you if they sent some slides on to US labs from your December biopsy. This might clear up HOW the slides got to US labs despite being no record at hospital lab!!!!

    So the report comes back addressed to the onc's partner's brother as he was the one requesting the slides to be re-examined at another path place.

    That makes some kind of garbled sense to me. But I fear I may have confused you even more. :? I hope not. But from when I work in the histology labs what I wrote seems to be a possible explanation.

    Take care

    Jana

    xxxxx

    MY ONCOLOGIST..............

    in GENERAL

    Posted

    Hmmm.......I see. Thanks for explaining. Of course I am still confused!

    I was thinking that perhaps MD Anderson sent the slides on to US Labs themselves, at a request from your onc (or onc's partner's brother), rather than the slides being returned to the local hospital lab and then sent out again. Does that make sense? It's the only thing I could think of.

    RU changing oncologists?

    Jana

    xxxx

    MY ONCOLOGIST..............

    in GENERAL

    Posted

    Hi Cat

    I have worked in path labs for several years so am trying to understand what has happened (although Australia may be quite different from USA).

    Have I got this right?........You had a biopsy in December last year and for a third opinion it was apparently sent to US Labs, where your oncologist's partners brother works. Is he a pathologist?

    Then, when you rang US Labs they had NO record of a report on these slides?

    And now, when you go to see your oncologist, he can produce a report of these slides from December last year?

    I think I am as confused as you now :?:?:?

    MY ONCOLOGIST..............

    in GENERAL

    Posted

    Cat

    Sending you heartfelt wishes and positive thoughts to help you through this difficult time. I can see why you are so mightily confused. Doesn't make sense to me about the lab not knowing about the slides?!?!?! :?

    Take care sweetie

    Jana

    xx

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