Mr Ry
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Posts posted by Mr Ry
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Everyone on the board,
Thank you everyone for your well wishes and concern. I read them all to Ry tonight. I told her that of all my "new posting since my last visit" that the one about her got the most replies and the most viewers.
Thanks again and take care John
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Her doctor told her that sometimes the patient is smarter than the doctor. Rochelle told him that she had endocarditis. He did not believe her until the blood work came back today. Endocarditis is an infection of the heart valve. Anyway, she will be in the hospital for awhile and then come home with a pic line with antibiotics. I’ll let you know how it goes.
John
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When I die, I want to die like my grandfather--who died peacefully in
his sleep. Not screaming like all the passengers in his car."
--Author Unknown
Advice for the day: If you have a lot of tension and you get a
headache, do what it says on the aspirin bottle: "Take two aspirin" and
"Keep away from children" --Author Unknown
Do you know why they call it "PMS"? Because "Mad Cow Disease" was
already taken. --Unknown, presumed deceased
"What do people mean when they say the computer went down on him?"
--Marilyn Pittman
Women complain about premenstrual syndrome, but I think of it as
the only time of the month that I can be myself." --Roseanne
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Tbone,
I used ice cream. It was easy on my stomach.
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Kelly,
The Iressa has worked very well for me. The hope is maybe the Iressa will stop the cancer growth, so your dad can get healthy enough to withstand the standard treatments. I have learned through all this that no one person reacts thae same to the various treatments.
Take care and good luck John M.
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Duck
in JUST FOR FUN
A horse goes in to a bar.
The bartender says why the long face?
John M
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May your beer glass never be empty.
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Rochelle already covered everthing I do to treat the rash. The rash is worst some days more than others. My rash is the worst in my hair. My onc gave stuff for oily skin that really did not help me. I'll let my teenage kids use it. I look at the rash as the way the lung cancer cells are carried out of my body. I always try to make a positive out of a negative. Take care John M.
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Jamie,
My dx is very similar to your dad's. I am 52 and have survived 2 years this June. My health continues to get better. Welcome to the board. You will find lots of information and great support here. The people on this board are the best. My best to you and your dad. John M
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Rochelle told me the women on this board like to use 2X4's. Your attitude is better than any size 2X4 on Ed.
John
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First I would find another oncologist. My dx took two days. I had a windowed ct scan. Then a CT-guided needle biopsy of my lung. all before my dx. No one ever gave me a time limit. I did not ask for one. I know I have out lived my family doctor's expectations. I will have survived 2 years June 13th. Everyone is different on how you react to treatments. I have always hated time limits. Too much stress. Good luck to your uncle in his battle against this monster.
John
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Christy,
I have been on Iressa for a year. There are two things that work for me. One is a moisturizer lotion for my face. The brand I use is St Ives Whipped Silk. It seems to keep the bumps down. It does keep the dry skin confortable. I use it twice a day after washing my face. I have a lot of bumps in my hair and dry scalp. For that area I use a cream rinse. I am not sure about the brand name. Knowing me it is probably the cheapest one on the shelf. My latest PET shows that Iressa is working well for me. I wish your dad the same luck I have had. John
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Jerrye,
I was a programmer when I was dx. For the longest time after I left work I thought getting back to work would return me back to normal. My life since lung cancer has and will never be normal again. I went from short term disability to long term disability to permanent disability from Social Security. When I filled out the forms for SS disability it was hard to give up normal. My family responsibilities became the top priority. Ry and I have three children, 16, 12, and 5. It became easy to get normal from my family.
Also one more similarity is I am artist. Your art maybe a good way back to a new normal. Good luck with all your choices. Take care, John
Question about low blood counts.
in NSCLC GROUP
Posted
Deanna,
I when had low counts I gave my self injections at home. The one drug was procrit. I can not remember the drug I used for the red count. I hate needles. I can not even watch people on TV get shots. It is amazing the things you can do to save your life. It is not really to hard at all. I used very fine needles that do not hurt. Call your doctor if he gets any fever at all. I did not and ended up in the hospital for four days. Later tonight I'll ask Ry what that drug was I used for increasing red blood cells.