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NellW

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Posts posted by NellW

    Radiology Report

    in GENERAL

    Posted

    I have no wisdom either Beth, but my prayers are yours for sure.

    There is lots of sound advice and strength here and I am coming to stand next to you in spirit just like all the rest of us.

    Love

    Nell

    Update

    in GENERAL

    Posted

    Hello my precious cyber family. Today Bob got a hospital bed, and some new meds and got rid of some old meds.

    The hopsice people are truly wonderful. He is not able to walk at all and it is so shocking because exactly a week ago he went up a small flight of stairs to turn his keyboard on for my little grand daughter to play with.

    We spent from 10 this morning to 9 or so tonight there and helped move furniture to get the bed space ready, and such, and visited with them.

    Laughed and cried of course on and off. It was so funny, because Bob and I were sparring about one of his meds. He didn't want to take it, was the liguid morphine for breakthrough pain, and finally I said

    " You are at my mercy, open up" and sick as he was feeling he gets this little smirk on his face and flips me off!!!!!

    I swear we all laughed till he was very short of breath. :?

    The pain is pretty rough, but the hospice nurses are getting it controlled some finally.

    He did not eat a thing today. Was just not up to it he said, and that was hard on all of us.

    His daughter is coming in from Cincinnatti tomorrow and staying till Wednesday. That will be good. He adores her, and she is a sweetie.

    I know you all say we are these wonderful friends to them, but really and truly, we couldn't do anything different. It's our privilege.

    Praying hard for the rough times so many are going through.

    Love you all

    Nell

    Update on Bob, very rough day.

    in GENERAL

    Posted

    He ended up getting several opinions finally, and the consensus is that he would not be able to handle chemo, although the onc said when we were there the other day that it would only buy him a few weeks if at all and none of them reccomended it for his bone mets. They gave him the option of tarceva but he said no because he wants to feel as well as possible in these last months, or weeks and they felt like it wasn't apt to do much for him at this point. It is a bit rough on all of us, because we saw 2 docs that day and I think the one would have tried the tarceva sooner if he had been taking care of Bob, but I don't know if Bob would have done it anyways, he is pretty much feeling he does not want to keep on with hard treatments. The radiaton really was hard on him, which we expected, but he actually got sicker after it, not better. The docs feeled he was so weakend with his ostheoporosis, emphysema, and bone mets that he just can't withstand much. I want to try a million things and borrow Beckys dragon slayer, but he feels it is time to stop. We so very much appreciate all your prayers and good thoughts. I know I will be here a lot in the next days. Hope I am not too much of a drain and not giving back much.

    Love

    Nell

    Lucie Update 02/10/05

    in NSCLC GROUP

    Posted

    Don,

    Prayers for you both coming your way. It sounds like your doc is pretty aggressive at looking for treatment and such. Hoping all is well very soon, and what a great idea to think ahead and plan something nice like that cruise.

    Love

    Nell

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