NellW
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Posts posted by NellW
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Lisa, I am so sorry you are going through all this. Prayers coming your way for good scans for both of you.
Love
Nell
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What a wonderful blessing those girls must be to you. I know mine are, and they have hatched us the sweetest grandkids ever! As everyone says, just wait for those blessings to multiply again when they get kids of their own, its awesome!!
I agree with Katie, so glad you can all celebrate together in good health!
love
Nell
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Wow, FINALLY!! You must be so relieved to be in that house!!!
Now you can just relax and nest there and have a really great Christmas with lots of good memories.
Love
Nell
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Hi Elaine, Prayers coming to you from me, as always, and hug for comfort. Hope the tests are not hard to endure and that the news is quick and good. I will call you soon.
Love
Nell
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Paddy, The memorial sounds so beautiful. My heart aches for you. You are in my thoughts and prayers.
Love
Nell
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Wow Muriel, lots to think about! It seems like it might be good to get the surgery in Orlando, and recover in your new home, like Ry said. Praying for you here too, that the onc will have good advice to give you on this.
Love
Nell
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Hi Dr. Joe! You can come here and whine all you want, shoot, we do!
I think, like Katie said earlier that we get a real glimpse into the kind of guy you are because you come here simply because you care about your patients, and wage war on the disease you fight everyday on behalf of others.
Thanks for what you do and who you are.
Nell
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What a wonderful time to celebrate! Your post made my day. I just saw it!! It occurs to me that Bob will be having one of these to mark very soon, in January. It sure is a new normal, but life is good.
May you have many more of these anniveraries to celebrate.
Hope we can be of some support if the new person posts !
Love
Nell
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James, I am so sorry to hear this. Praying for you and your family.
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Oh Peggy, I have sure been in that place! I live in MI. and one of our daughters moved to Albuquerque several years ago. It felt like someone yanked my heart out even though I knew it was a good move for her and her family. She is happy there, and we see her fairly often, but I do know how it feels to hate having all those miles between you.
Praying for you to be brave and for his trip to be good and for his new adventure to be a blessing.
Love
Nell
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Just saw this Elaine! I sure hope too that this is our answer to prayer. Lots of them coming at ya!
Love
Nell
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Geoff and Melinda, What a wonderful Mom she must have been. I am so sorry for your loss. I know she will be with you always though, and you and your family are in my thoughts and prayers.
Love
Nell
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Gosh, Rich, that's a scarey sounding experience! Hoping that pain can be managed and that nothing new turns up.
Nell
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Karen, Don't ever hesitate to ask for prayers. I'm adding mine right now, and will be waiting to hear how it goes!
Love
Nell
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Karen and Paddy, I am so sorry to hear this. Praying for God's comfort and presence to surround you.
Love
Nell
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My Dear Friend, I am sooo mad!!!!! I agree with Cindi and Fay, let some of us advocate for you if that would work. I am a great communicator and can write to anyone you think would help us.
And.. I think if that pain does not seem at least a bit better by morning you need to go to ER.
Praying for you and Gary
Love
Nell
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Elaine Dear, I am just sick to hear this!
Constant prayers
Love
Nell
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He is going tomorrow to get his marking.
Can some of you tell us what to expect with this round? It's all new to him.
He will have a 3 week round of Mon. thru Fri. with an evaluation every Moday, whatever that entails.
Then the doc will decide if more is needed. I won't be surprised if chemo follows.
Also, for some reason the onc feels he has one kidney that is not functioning right.
There was no new stage or prognosis given, but that did not surprise me either, since neither Bob or Jo would ask for that I am sure.
Tomorrow night we are listening to both doc visits on tape, and Jo has asked us to take notes for them to go over together after we hear what was said. I think they feel overwhelmed.
He is also not doing well with slowing down the prostate cancer as far as the onc can see. PSA is still rising.
Any hints on doing well with rad. are welcome. I think Art and I are going to take him to some of those appts.
Thanks
Love
Nell
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You've been in my prayers and on my mind too. Glad to hear from you.
Sheesh, I hate incompetence in docs. Bob has gone through so much of that with his primary.
Keep us updated
Love
Nell
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Muriel, Darn! Hate it when there is a goblin lurking and of course it is always necessary to have to wait to shoo them out! Praying for you lots for a good PET.
Keep us posted
Love
Nell
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Bruce, I am so happy to see your post. Was thinking last night it had been awhile and hoping things were ok.
That is terrible about the insurance stuff! It's such a nasty thing to put someone through that fight when one is so busy battling a disease!
Love
Nell
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This is sad news, and I am sure this is a rough time for you, with trying to get there soon and all.
I am so glad you have good friends there who will keep in touch.
Praying for you family.
Love
Nell
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It is as we thought, sadly. The onc said today he has bone mets to spine, and he also said , and I quote, "there is no reason for you to endure this kind of pain!"
He sees the radiation onc tomorrow. The onc is just beginning to treat him, and is ordering all other tests to be sent to him as well.
Bob and Jo taped this visit and we are going there later to listen. They sound really weary.
Bob told the doc he has no strength to fight at all, and his answer was that the pain is a major contributing factor to that, and that he will be able to reduce it quite a bit. He says Bob will be pretty tired with the radiation and the pain meds.
Not sure what all else he said but I will know more after hearing the tape.
Thanks for all you prayers for Bob and Jo, and please pray for the radiation to help!
Love and prayers to all
Nell
Update on Bob..
in GENERAL
Posted
Good morning my dear friends! Wanted to check on all of you and give an update on Bob.
He has finished 3 weeks of radiation to L4, and is on Lupron for the prostate. Sees the medical and radiation oncologists both first part of January.
His pain is much less right now, just kind of a shadow of what it was, but he has lost a bit of weight and is very worn out.
All in all though he is feeling much better because of the pain reduction.
I am hoping Jo and Bob will have a little rest before they deal with much more. He is scheduled sometime in the next week or so for a ct of his kidney, there is a new spot there.
Prayers for you all, and thanking God for Bob's respite from pain!
Love
Nell