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cindi o'h

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Posts posted by cindi o'h

    thoracentesis time

    in MEMBER UPDATES

    Posted

    Hello All,

    I don't know how I missed all of these posts on the good advice regarding the GVAX. That is something that I had not heard of before. I will definitely keep my ears and eyes and most importantly mouth in gear for this.

    I have been having troubles. The surgeon is unwilling to do the VATS due to the Plavix, ( my heart med) and recent stent placement. And also the thoracentesis is out for the same reason. So, I have to wait until the 18th for my next CT to check any changes.

    I see the cardiologist in the morning to see if all of my SOB is originating in the pericardial effusion or what. I get shuffled from one doctor to the next and nurse to the next and it is all so difficult to put it all together. But, I have an above average understanding of the lingo and methods so in many ways that helps but I also find that it has it's disadvantages as well.

    All in all, I am handling all of this pretty well. I have a support group here in town that I really like a lot. I am the only lc person in it. And it is just made up of pretty sick and wonderful people with all kinds of illnesses. So that helps. And I am pretty sure this board is helping my nerves too.

    I went to my old boss' retirement party and got lots of good squeezes there. You can't have too many of those.

    Thanks for all of your encouragement and words of advice. I will try to keep you posted on my progress. I don't think that the cancer is back, though. I "feel" like the lung effusion is resolving on its own...The CT will give me a better idea.

    Cindi

    Tumor Measurements

    in NSCLC GROUP

    Posted

    Bill,

    That was also a conern that I had in my early experience with NSCLC. Each time the CT scan, exposed at various facilities and read by various radiologists, seemed to have a great variance in measurements at 3 month intervals. When I asked the oncologist for an explanation, he said that the tumor can appear to change even from day to day and cited inflammation/fluid as an example of what can change the appearance of the tumour on a film. He said that there is a normal variance that is acceptable to him. He cited the numbers to me. I think, if I remember correctly, it was anything under 1cm. But, don't qoute me on that.

    Good luck.

    Cindi o'h

    Moms doc appt toady

    in GENERAL

    Posted

    Sorry to hear of your mom's feelings of hopelessness. Like the doc said, it may be the treatment and once the swelling is down, she may feel up to resuming finding the joys in her life. Sounds like her grandchild is a boost for her. I am praying for you and your mom. Cindi o'h

    a taxi driver and a preacher go to heaven ...

    in JUST FOR FUN

    Posted

    okdebi..........

    that is funny. Was that professionalism, as a dedicated taxi driver,

    an angel just helping the Big Man and His Cause

    a little girl driving a big car in a big city who wanted a tip

    or just a little passive/aggressive behavior?

    By the way, I have been hearing about that noodlin' they have going on down there in Oklahoma...have you heard of that, yet?

    Cindi o'h

    mom in hospital

    in HOPE

    Posted

    MJ

    Thank you so much for the update...your mom has been blessed to have you around to see to things. I am glad to hear of her progress. The poor thing is probably all wore out from all those tests too...what a brave girl she has been! Hopefully, she will regain her strength so that she can tolerate more treatments. I know I am praying for her (and you) and that you both will continue to find solace in the arms of Our Dear Lord...

    Blessings. Cindi

    Am new here

    in INTRODUCE YOURSELF!

    Posted

    Well, hi there, Diane..

    So glad that you made it to the board. Hope that you are feeling okay and getting your strength back after the chemo business. I will be looking forward to hearing some good results in a few weeks.

    Blessings to you and to your family. I live in S. Mpls. You can PM me if we turn out close by. Heck. You can PM me anyway....

    Good to meet you....Cindi o'h

    ps...you can find so much wisdom here...it's good for us.

    Vioxx pulled from market

    in GENERAL

    Posted

    Hey Hey...I'm a heart attack kid! Had a heart attack just about at the 18 month mark...a stent then and another stent a couple weeks ago. Cardiovascular disease... if the cancer don't kill me, trying to keep it away will!!!

    Down the toilet with the vioxx...I am going back to Naproxen.

    See ya in court!

    (not really, lawyers bug me)

    Am new to this group

    in INTRODUCE YOURSELF!

    Posted

    YeeeeeeeeeeeeHaaaaaaaaaaaaaaw!!! another Texan Whoooooooooeeeeeeeeee! Y'all sure are welcome here!

    Looks like you been through hell to get your attitude adjusted that significantly...both sorry and congratulations seem to be in order...personally, I think you had a choice and you chose the wise path there young man!

    Glad to have your spunk and witty charm. Hope to see lots more of you!

    Cindi

    SOB short of breath

    in GENERAL

    Posted

    thanks everyone.

    congrats to you and Lucie, Don

    Katha thanks. Nothing better than a couple of giggling little girls around...

    I WOULD like to borrow that little one that dominated the sleepover though...the sassy bossy little dictator. I would like to take her to all of my medical appt's with me! Everyone has a gift!

    SOB short of breath

    in GENERAL

    Posted

    I am short of breath. I register 97% on that thingy they put on your finger in the clinic. I am not talking at rest. I am talking about being SOB on exertion.

    example:

    I was running behind (as usual) last week and I was supposed to pick up my adopted Mom at her house to take her with me. I didn't have time to come home to shower, so I asked her if I could shower at her house and we go from there. Running late and trying to move this old body as fast as I could so that we could get there on time, I found myself really huffing and puffing through the whole thing: the shower, the drying off, the dressing, grabbing up my dirty clothes and stuff and running out the door. It took me quite awhile to find some nice, easy breathing once we got driving. (We were late by 15 minutes)

    My adopted Mom didn't say anything at the time. When I talked to her on the telephone tonight, she mentioned to me about being short of breath. I didn't know what she was talking about. :?: She reminded me about the shower incident. I didn't think a thing of it at the time. I am so used to being short of breath. However, after she brought it to my attention, then I did think about it. I notice SOB with stairs here at home, for sure. With sometimes getting up to answer the phone. With putting clothes from the washer to the dryer. With unloading the dishwasher. Sometimes my breathing is more difficult than others. Since the beginning of treatment, it has never been good. Treatment: lots of radiation and concurrent chemo and more chemo to a pretty good sized field. Still radiation changes every 3 months on my CT scans.

    I haven't been exercising. I have bad knees and I don't like not being able to walk a block any faster than a snail. (excuses) I don't talk to my doctors about this.

    At home, I have learned to move S-L-O-W-L-Y. If I move too fast, I have to sit down right away and recover..

    Am I alone on this one....can anyone offer some genuine feedback? (My little friend, Mary, passed away from SCLC last April. She had brain Mets and she didn't want treatment. She was SOB too. But that didn't stop her. Her nieces would come to her house to clean for her and she would go behind them and redo what they had done because it wasn't good enough. I would complain to her that it would take me all day to try to strip just one wall of paper. Our upbringing similar, with each having strict Irish mothers, she says, "Oh, Cindi, just get the lead out of your *ss and get moving!!!" :evil::o:shock::lol::lol: Coming from anyone else, I would have been hurt. From Mary, it is one of the most endearing things that I can remember her saying to me. Reminded me of my Mom... Made me bust up laughing...)

    I have pleural and pericardial effusions now. I had a heart attack due to a blockage in an artery. I had a stent there and another one again a couple weeks ago. I think the stent helped a little. But, I am still SOB>...

    Am I alone here...Or is this common? Is it my heart, the fluid, cancer back, scar tissue...what?

    Thanks. Cindi o'h

    Two Whole Years

    in GENERAL

    Posted

    Don and Lucie,

    That is the best news that I have heard all day!!!

    Congratulations to you both for working hard and believing in miracles!

    All my best to you. What an inspiration you two are.

    Cindi o'h

    Sven and Ole and the Odoriferous Cow

    in JUST FOR FUN

    Posted

    Ole and Sven are neighbors in Southern Manitoba. Ole is in need of a new milk cow. He hears about a nice one for sale over the border in Minnesota. He drives down to Minnesota, looks at the cow, and reaches under to see if she gives milk. When he grabs the teat and pulls, the cow breaks wind. Ole is very surprised, looks at the farmer who is selling the cow, and reaches under the cow to try again. He reaches under and grabs a different teat and the cow farts again. Milk does not come out, so after some discussion, Ole decides to buy the cow anyway and haul her back home to Manitoba.

    He calls his neighbor,Sven, and says, "Come over here and take a look at dis here new cow I just bought. Pull her teat and see what happens." Sven reaches under and pulls. The cow farts. Sven looks at Ole and says, "You bought dis here cow in Minnesota, yah?" Ole is very surprised, and says, "Yah, dats right, how did you know, then?" Sven says, "My wife is from Minnesota."

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