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cindi o'h

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Posts posted by cindi o'h

    Update and Hall Pass needed

    in GENERAL

    Posted

    Hey Betty!

    Good news.

    Good news.

    And more good news... boy was THAT fun!!

    I am not authorized to grant any "hall passes", but I will slip a yellow one under the door for you, just in case you get stopped by the hall monitor...

    Enjoy your trip...you definitely have earned it.

    Cindi o'h

    reply to Ginnie's question:

    in GENERAL

    Posted

    Curtis,

    Even though this post does not concern me personally, I just want to say that you are truly a god-send to the people on this board and I want to nominate that you have a paid position! :) AND, I think that you have one of the biggest hearts of any guy ever. AND if I were a young purdy thing, I would come down there and scoop you off your saddle. But, alak and alas, this is not quite the case...

    I do wish you well and that you will find another love in your life.

    I do want to share experience as that is pretty much all I have. My SIL was widowed twice. Once in her first marriage with the love of her life who was killed in his twenties in a car accident. And with the second love of her life, my brother who died from lung cancer when he was 37 years old. She said to me, at my brother's funeral, that she felt that even though these terrible things had happened to her, that she was grateful. Grateful to be loved not by one good man but by two good men. She added, "How many people can say that?"

    Curtis, I wish for you to be loved by two good women...

    God bless.

    Cindi o'h

    My Test Results????

    in GENERAL

    Posted

    Dang, Buddy, You and I are feeling about the same level of fear today, I am thinkin'. Who wants to hear that kind of crap... gives me the willies how easily "we" get spooked, huh? Tell you what, you pray for me and I will pray for you and we will call it even...'kay? I am shudderin' over here. Why don't you look in your medicine cabinet and see if you have any leftover somethin' or 'nothers in there?

    Good thing it's a Monday and not a Friday that you got that news...that's all I can say...

    Hang in there...

    Cindi o'h

    Question for Oncodoc re: study?

    in GENERAL

    Posted

    Thanks Joe,

    Still would like to show Dr. Penny W., (on the cover of the last Twin Cities "Top Docs".) She was very concerned about the info. you presented...

    I am a fortunate person in that I can choose pretty much any participating physician in the Medica network. Under my COBRA plan, I do not require referrals to any specialist and as far as I know, it is a pretty good plan. In keeping with my personality of liking to have control over my life and my situations, I tend to go "all over the place". The U., Southdale, independent physicians for all my "ailments" mostly in the Allina/Abbott networks. I have had my good care and not so good care like everyone else. And I am fortunate that I can continue to jump around if something doesn't strike me right. When I was a student at the U...grad '82...a few years before you, :D , my favorite all time prof. was Dr. Wm. O'Brien, an oncologist and public health doc....did you have him or remember him?

    Anyway, he said to find the best health care provider "before" you need health care. Easier said than done. You just don't know until you get in there and get the experience of the physician and office under your belt.

    I didn't start with Arak, but he is the man now. In fact, I just got back from a PFT over there and another CT. Of course, I am nervous. I didn't do very well on the PFT and now I wait until Thurs. to see the oncologist. The last CT showed lots of new stuff and he wanted a VATS, but because of my recent stent placement and Plavix , the surgeon declined the procedure and deemed it as being too risky. Bummer. Not even a thoracentesis.

    So, I am holdin' onto my seat while I ride this ride. I got out to the Arboretum though one day last week when the sky was a deep blue and opened the top of the cruiser while we gaped at all of the colors...so that was good. Still living and definitely still kickin'...

    Thanks, Joe...You are a good doc, I can tell. (Still, I would like to have something tangilble to show Penny, though)

    Cindi o'h

    Question for Oncodoc re: study?

    in GENERAL

    Posted

    First of all, Joe, thank you so much for all of your good, kind help and support here. We all appreciate your time and exptertise.

    I was at a good doctor visit today with a specialist whom is admired and thought of very highly in the medical community here and most especially by me. She is not an oncologist. I have been a pt. of record of hers for close to twenty years, so we had a bit of talking to do regarding the changes in my health. I cited your statistics to her regarding the occurrence of lung cancers after a person has stopped smoking. You made these comments under a post by LisaRN in Sept. This M.D. said that she has never heard of that and made me promise to collect data to bring back to show her. So, Dr. Joe, would you be so kind as to tell me where you got that information? I know that you didn't pull it out of thin air...specialists don't do that. What study was it, and where can I get ahold of it?

    Thanks again.

    Cindi o'h

    Dave is in a real funk

    in GENERAL

    Posted

    Hey Karen,

    I've enjoyed getting to "know" you and Dave in the short time that I have been coming here. So I know that this is unlike Dave's usual behavior. It is a helpless feeling not to be able to be able to help a sick spouse, family member or friend. I think sometimes it takes more out of someone watching someone be sick than it is being sick themself....(yeah, right). I don't mean for this to be a dissertation, but only if it some use to you and David...

    When I was going through chemo and rad myself, I say I had the luxury of being sick all by myself too. In other words, I didn't have to entertain anyone, or take care of anyone. I could just lay on the couch and BE sick. And no one had to worry about me. I could be quiet, which is what I wanted. My sister's golden retriever was sick at the same time. She was a real integral part of their family when she was well and a big tail wagger. When she got sick, she left the goings on of the family, and stayed in a corner with her head and tail down. That's what she needed. Rest. Even her tail needed to rest. I could relate to how Kula felt exactly. My tail wasn't waggin' either. A nice pet every once in a while was nice for her and it was nice for me too. But I just wanted to get through it one day at a time and just let myself be miserable because that is honestly how I felt.

    I hope this makes sense to you. And I hope that if it fits, you can use it. If it doesn't fit then just know that there are alot of people rooting for you both, including me.

    Cindi o'h

    My Dad Passed Away - 10/15/04

    in GENERAL

    Posted

    Dear Angie, so very sorry to hear your sad news. I am so glad that your mom was there with him in love and that neither he nor she were alone. I pray that the faith that you have gives you comfort in this time of sorrow.

    God Bless you and your family.

    Deepest sympathy.

    Cindi o'h

    21 Lymph Nodes Positive

    in GENERAL

    Posted

    Wendy,

    this was not my experience. I had a mediastinoscopy and "enough dirty" lymph nodes and placement of dirty lympy nodes were enough for the surgeon to stop right there and not remove my lung.

    Geez..this must be a frightening time for you. What is the treatment plan from here? Anything I can do, let me know...I am right over the river from you...

    Cindi o'h

    I Rang the Bell!

    in NSCLC GROUP

    Posted

    TAnn, So glad to hear from you and that you accomplished your treatments. That is cute....ringing the bell. I am glad that you had good techs. I did too. They all gave me a "diploma" signifying the end of treatment. They all signed it with well wishes and encouragement to come back for a visit. I went back at the end of my one year, and got a big hug from everyone including the biggest from the rad onc doc...sweet.

    I will keep praying for you, TAnn, that this rad will give you swift and complete recovery.

    Cindi o'h

    Mom back in hospital

    in CAREGIVER RESOURCE CENTER

    Posted

    Ris, hi

    First of all, I want to say how sorry I am that your mom has had a set-back. I have had some personal experience with pleural effusions so I will share what I know or can remember..

    lung cancer is definitely one of the causes of an effusion. So can be continued radiation changes. A more remote cause of an effusion, considering your mom's cancer history, would be congestive heart failure.

    After that 1600cc of fluid was drained, no doubt, the surgeon sent it to pathology to try to determine the cell make up. It is my understanding that though cancer cells may be present in the fluid, that they will be detected just 50% of the time. The fluid will also be screened for bacteria, for fungus, and for autoimmune factors, if I remember correctly.

    I am hoping though, that this is associated with the radiation changes. Please keep us posted.. it is so difficult to be away from your family at this time..I am sorry for that.

    Cindi o'h

    Looking for support

    in CAREGIVER RESOURCE CENTER

    Posted

    Val,

    As difficult as this is for you, I am sure that you are on the right track. Keeping the focus on the day at hand is a big help and a great attitude. After all, that is our gift. Everyone of us. Today.

    I am sure that you are a big help and comfort for your mom and for Bill. Come here often for whatever you need. I am sure that there will be someone here who can help to lighten your burden.

    I admire your willingness to stand behind your family and jump in and do what is necessary. You are a courageous woman.

    Cindi o'h

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