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jamie

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Posts posted by jamie

    Dad with sclc

    in INTRODUCE YOURSELF!

    Posted

    Hi Star,

    My Dad has NSCLC, but I think what your looking for is advice in general. I think as long as your Dad understands the seriousness of this all, and comprehends everything explained to him, he will make the right choice for him. Make his doctors explain, and if hes not getting it.. have them explain again...and again. In the end you just have to support him, whatever his choice may be. Keep your dad infomed of what may lie ahead, and he will make his choice. The best thing for you to do, i think, is be there for him when he needs you. I dont know much about SCLC, but remember that there is always hope. No doctor can tell you how long a person will live... if you need anything feel free to PM me... Im a good listener.

    Jamie

    Defeated again...

    in NSCLC GROUP

    Posted

    Hi Jonathan,

    Yes indeed! Ive heard so many mixed stories about him. Some love him, more hate him, but it's never really about his surgical ability. Everyone mentions his additude and bedside manner. My Dad did say he seemed really doom and gloom. How did your mom's actual surgery go. I guess were really torn. I'll tell ya what though... Whether it is extreeme liking or utter distaste for this man... Everyone who has met him definitly has a strong opinion about him!!! Is he the only surgical oncologist there??

    Jamie

    My Dad's Good News

    in HOPE

    Posted

    momma L & Leandra,

    Seems to me that we have a lot in common. My Dad is also 3B, PET came back with lymph. clear last week, hopefull for surgery to remove tumor that shrunk about the same %!!!

    Only difference is.... WHERE NOT GOING ANYWHERE!!! (I'll have to take that up with him :x )

    Jamie

    It just wont get easier, Why?

    in GRIEF

    Posted

    cathy,

    I havent lost my Dad, but I have lost two close family members in 1 week. Its a rough ride. With time, you will have more control over how you feel, but hey who am i to say, im still not "over" my guys being gone either. If you ever need to talk, PM me, and I'll gladly answer. My Dad has NSCLC too. So I can imagine the road you have traveled.

    Jamie

    Question about the root of your coughs

    in GENERAL

    Posted

    Elaine,

    My Dad got radiation to his throat, and just under also, and he had a nagging painfull cough. Not sure how long, but he did say that for him Chemo was a breeze, and radiation was killing him. I know everyone is different, but thats just his story.

    Defeated again...

    in NSCLC GROUP

    Posted

    Dave & Andrea,

    Thanks for the info... Im still not clear if he wanted the CT for the tumor or the lymphs. Noone has really mentioned the tumor latley, and last we heard it was small enough and in a location where it wouldnt be a problem....that said, it must be the lymphs that they are checking with the CT. His PET was less than a month ago and all was clear. The biopsy should tell us for sure too.

    Jamie

    Defeated again...

    in NSCLC GROUP

    Posted

    Andrea,

    My dad likes to wait to get his results at an appointment so the dr. can explain stuff, maybe thats why it is taking so long. Im not sure how there doing the biopsy, but i know that they are putting him out. His surgeon must be doing it because he said he wanted to get familiar with his case so that is why they are doing it at his big hospital, instead of my dad's little one where he gets chemo.

    Why the need for the CT if the PET came back clean....dosent the PET light up for every little thing???

    Defeated again...

    in NSCLC GROUP

    Posted

    Andrea,

    He has a CT scheduled for Mon, and a Biopsy of the lyph.s, scheduled for Thurs. I guess the surgeon is pushing for the CT most importantly. I posted under TestTime/Results about what the difference is between a PET and a CT, and got some info. but still not real clear. I guess he just wants to be 100%sure. I keep feeling like if they keep digging, they are gonna find SOMETHING. But i also know that it is best to be sure.... I guess it will be like 2 weeks till we know anything for sure.... SUCH A LONG WAIT.

    Anything I should be asking before the biopsy????

    Defeated again...

    in NSCLC GROUP

    Posted

    John,

    Wish I had more info. I know the lymph.'s infected in the beginning were ones that couldn't be removed, but since they came back clean, they were going to go ahead and go through with surgery. It was only after we met with the surgeon that he brought up the initial "light up" in one lymph. on the opposite side of the tumor. They checked it at the onc. office, both the onc., and radiologist thought it to be nothing, sent him to an ear, nose and throat guy, who agreed it was nothing. They decided to give it full direct radiation along with his tumor as a "percaution". After all that, another PET scan revealed that it was completly gone, so noone including us thought anything about it after that. The surgeon brought it up and wants it checked before not during surgery, so that is what started this all... not sure what to think.

    I guess the best thing is that even though they thought it was nothing, they radiated it just in case.

    Thanks for all the good wishes

    Jamie

    Defeated again...

    in NSCLC GROUP

    Posted

    Hi everyone,

    My Dad is gonna go through with ANY tests needed to distinguish what IS going on or better yet what IS NOT going on. I just wish for my Dads sake the surgeon would have been a little easier with his words. Facts are Facts, but I think too that there is a way of speaking to soften the blow. Guess this guy is just down to business...but like chloesmom told me... the surgeon is there to make my dad cancer free, not to make him feel good. We will just have to wait and see I guess. THanks everyone again

    Jamie

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