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brm1949

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Posts posted by brm1949

  1. Thanks to everyone for your support, still haven't heard from my insurance for approval but will hopefully hear soon and get this battle with the beast on and defeat and set it back again. Hopefully they will find the primary this time so we can cut it off at its head.

    Sorry for not getting a hall pass, will be sure to follow the rules from now on.

  2. Its been awhile since I posted last and I know I should keep up with this site but I just didn't want to deal with cancer anymore. I know that's not a good attitude and close to denial but I got my wake up call yesterday after my routine ct scan. I wasn't home 2 hrs before my Dr pushed my next appointment up a week and started schedualing pet/ct scan for next week. apparently lymph nodes on my right side have shown up worrisome and prompt the tests. He didn't want to elaborate on what he thought until he gets results from the pet/ct scan. This is the first time they used this machine on me. They said the test only takes about 30-40 minutes and the combined results give better information. I'm a little confused because I had 33 lymph nodes taken out with 3 positive on the right with the radical neck dissection. I thought they took them all. I quess there are more than 33. There is no doubt that this cancer is a rollercoaster from hell. I will get up in the morning ready to battle again, right now I just don't want to deal with it. Sorry for staying away for so long.

  3. For me the thought of chemo was worse than the actual effects. They gave me anti nausea drugs which worked fine for me. Fatique was my major complaint but that was probably more from the radiation than the chemo. When you understand the nature of this beast, all other concerns about temporary side effects diminish. Kill it with every thing avaible. It needs no encouragement by our fears of treatment. You found a good place for support and info. Keep us updated.

  4. Slow down Cat, its not over and your still breathing. I know this must have hit you like a ton of bricks but there is always hope. Take it one day at a time and live each moment. Easier said than done but can be done. My prayers are with you that the Drs. come up with the treatment plan that suits you and is successful. God Bless.

  5. Had lung wedge resection May 11, mine was minor compared to others that have posted. I agree that you have to stay ahead of the pain. Almost 3 weeks post surgery and feel pretty good now. Some numbness and slight pain in breast area, other than that seems OK. Praying that they get it all first time in. Sorry you have to post here but you'll find plenty of support and info.

  6. Had lung wedge resection on May 11. Here's gross description:

    Specimen consists of a fragment of lung measuring 5.5 x 2.5 x2 cm with the margin of resection closed by metal staples. The free margin has already been cut into and shows a yellowish slightly firm area measuring 1.1 x 0.5 cm. The remainder of the lung parenchyma is pinkish and appears normal.

    This time it came back negative which I have to say is good news, but I still have an unknown primary somewhere. I know I should be glad but actually I feel like I'm in limbo and still waiting for the hammer to fall. If this was the primary, maybe they would have gotten it all and I would have felt some relief, but now I feel dread of what's to come. Until they find a primary for the lymph nodes that came back positive in my lower neck I feel like a dead man walking. I hate this disease. Please forgive me for venting. This thing works my mind and normally I can beat it back, I'm just so frustrated.

  7. Wecome, I woundn't dwell on what chances are or are not. You are not a Statistic. There are many here who were written off but have beat the so called odds. Check out all the forums here and see that there is always hope and there is always good support here. I'm sorry you have come here but you'll find it is a great place for us to vent, ask questions and get meaningful support.

  8. Sorry you have found us but glad you did. I agree with what already has been posted. Tackle this thing early. Its not fun when it gets advanced. Thats all I can add. Keep coming back, this is a great place for support and information.

  9. Welcome,

    You have found a good place to be considering your present problems, this site is more informative and supportive than anyone I have come in contact with since my DX. That includes my doctors. You will be on an emotional rollercoaster so please come back and let us be of whatever help we can. Sorry you had to find us.

  10. Well, I just got out of the hospital after the wedge resection. It wasn't that bad. I won't have results for the biopsy until 2 weeks. Dr thinks its not malignant from what he could see but final results will come later. If its not than I still have an unknown primary. I quess I want it to be malignant, to be primary which he believes he got it all. Its hard to know what is good news with this and what isn't. Will keep everyone updated.

  11. My prayers are with you and your mother for strength and courage as you go through this process. Its not easy but there is always hope, many of us have outlived the prognosis we were given and continue to do well. It is a hard road but you will gain strength. The people here are great and do understand where you are at and will give you much needed support. Please keep coming back and keep us updated. I've learned that statistics do not encourage or help anyone. Take each day moment by moment and try not to dwell on the future. That does nothing for the present and is a waste of precious time that you have with your mother. Your role as a caregiver is not easy but do your best to be supportive to her as now she needs you to be strong as does your daughter. I am truly sorry that you had to find out about us this way, but when you need to vent, ask questions and a shoulder to cry on, we are here. It is what it is, but there is difinitely hope and God gives much grace to bear the burden that comes with it. He has never left me nor forsaken me but has always given me the strength to deal with it one day at a time. His mercy is renewed every morning. He is an ever present help in time of need. Trust in Him to bear you up.

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