brm1949
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Posts posted by brm1949
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I too have joined in the prayers for your brother, may God bless you and him with his unfailing love.
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Be the friend you always have been, you joked around a lot before, then by all means joke around still. If self pity is evident, don't help it along. When first diagnosed, its devastating. But your friend and his wife will find they are much stronger than they could ever imagine. I truly understand the helplesness you feel but all you can really do is be that friend you always were. Listening to them and not telling them how they should feel is most important. They will need to vent and have someone to listen is extremely important. of course this will not be easy on you either. This is a tough disease and it wears both physically and emotionally. It is as many here have said, a rollercoaster from hell, but there is hope, many of us have survived longer than we expected. Just be a friend, you couldn't give anything greater than that.
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I'm sorry you are here but I'm glad you found us. There is much support here. I had the same combination of chemo and radiation for 7 weeks and yes it does knock you down. She is almost done with it and it will get better. Nothing about this disease is easy but there is difinitely hope. All I can really suggest is try to be a positive force for her and encourage her as much as possible although it will not always be easy. If possible get her on to this website and see for herself that there are many others dealing with the same thing and are improving. You will find that you are stronger than you ever could believe it possible. And you and your mother are not alone, we are here to give you both support and encouragement.
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Diagnosed and still breathing, survior.
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Welcome Mary, sorry we had to meet this way, this is a great group of people, you'll find plenty of support here.
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Expecting a good report from you BJ, its all normal to be out of sorts with this thing, but we do learn to cope and overcome. Keep us updated.
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Welcome to the family Debbie, you will find much encouragement here.
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Thanks Shelly, they set up the surgery for May 11th. If you can fit me in before that, let's go for it, can't stand this wait.
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I'm not familiar with the chemo you mentioned but welome to the group, unfortunately. You will find tons of support here, keep us posted about developements.
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Unbelieveable! I would not let him off the hook, send all these responses. And look for another Dr. Thats just my advise, this should not have happened. I feel for you, we don't need that kind of callous disregard from the so called professionals.
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Thanks Gail, now all I got to do is wait for the appt. I hate the wait.
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Saw the Dr today about surgery. First he wants to biopsy. He said he would be going in at the lower end of my ribs and inserting scope and cutting tool to the top of my lung apex. After biopsy we will see if he will take the whole upper lobe. Has anyone had this type of biopsy and if so what can I expect health wise after concerning healing and down time.
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Hang in there Mo, its not over till its over. Just chalk it up as a bad day and forget about it and see what tomorrow brings. There is always hope.
I know how difficult it is but we really have no choice but to battle it out. I know this for sure, God will never leave nor forsake you but through it all He will be there to strengthen you and comfort you. Trust Him, He is our salvation.
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Hang in there Debbie, we are here for support if you need us. Whenever you feel the pressure and are finding it hard to cope, come to us, we will try to help.
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Thanks everyone for such a warm welcome, I believe I have found a home here. Will keep you all updated.
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Hello Bev, statistics is the wrong way to look at this. Make the best of the time you have with your sister, it could be many years, you will only grow closer and stronger. It's surprizing how strong we actually are when hard tests come. Never give up hope.
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Well, Dr said pet scan was negative but the ct scan showed a new growth that he is convinced is malignant. So I will see the surgeon on thursday to set up biopsy and possible removal of upper lode. My onocologist believes I'm stage 4 advanced. He says the only reason he is even considering surgery is because I young and relatively healthy. He also said if it proves positive, they probably won't do chemo again. I quess he is suggesting pallitive care. I have to see what the dr says thursday. I'll keep you posted.
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My name's Bruce, from the Buffalo NY area. Was first DX with head and neck squamous cell carcinoma May 2,2002. Had right tonsilectomy which proved to be primary site. Had right radical neck dissection with removal of 33 lymph nodes, 3 tested positive for SCC. In September 2003 lymph node on left side of neck tested positive for SCC. This node was located near the collarbone. They were unable to locate primary for this node but from what I was told, this node involment pointed toward lung cancer. This time no surgery but 7 weeks of chemo, taxol and carboplatin along with 7 weeks radiation, once a day. First ct scan afterward came back negative and also pet scan came back negative. Second ct scan came back positve but the pet scan came back negative. Since the ct scan shows a growth in the left lung apex, I am being set up for a biopsy and possible removal of upper lode. On thursday I will see the surgeon.
Now that's what brought me here. Although I have been fighting this disease for a couple of years, I found that there is always hope. I have learned to live in the moment.
I'm glad that this site exists. It has already given me support even though I've only been here a couple of times. I thank you all for that.
I was a truck driver before all this developed, I'm now pursuing nature photography since I'm on SSD. Was going to go back on the road but I need to be near home for all the doctor appt. and scans and follow-ups.
That's my story, I'm glad your all here, although my prayer would ask that it wasn't necessary for you to be here.
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You have my permission to use mine also.
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SCC, Squamous cell carcinoma. I was DXed with it in may 2002, right tonsil and 3 of 33 lymph nodes which they took out in june 2002. Then in Septmber of 2003, Dxed with SCC on left side of neck in lymph node close to collarbone, but no primary was found, Dr said this lymph node normally points to lung cancer but at the time none was detected, now they believe growth they found in ct scan is probably the primary, but the pet scan came up negative so I really don't know where I stand now. Waiting to see Dr on Monday.
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I can relate with all of you. Before cancer I was a pretty active guy and never really thought to much about these kind of things. Then the DX came and it hit like a ton of bricks and life as I use to know it ended. My family and friends treat me differently and it's as though I'm on another planet. Even though it's been 2 years and surgery and chemo and rad, I still feel out of touch with the so called normal world. But I have learned to live in the moment to the best of my ability. I have a deep faith in God but this disease has even shaken that. But as time goes on, I find my faith in God has only increased. I hate this disease.
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Thanks everyone for your support. Now I had my pet scan yesterday and from what they saw and showed me, there is nothing to report. The scan came back negative. Just to be sure, they did another one of the area that the ct scan showed positive. Still came back negative. Will see my onocolist on Monday, but I believe I am still clear and that maybe the ct scan picked up scar tissue from the radiation I got for lymph node which was positive just above my collarbone. The ups and downs this disease causes with every little developement can wear one down. I'm elated that the pet scan shows nothing, but what ever the ct scan shows I guess they will go in and biopsy anyway. That's just a guess, won't know until Monday what direction they will suggest. Thank you again for your support and if I can be of assitance to anyone, I will try my best to help.
By the way, my onocologist diagnosed me with stage 4 SCC with unkown primary. That was for the second occurance after the tonsil SCC.
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Well, I was a head and neck cancer survivor, I now have become a lung cancer survivor. Just got the results of my last ct scan and have a mass in my upper left lung apex. Next going to get pet scan to see if any other tumors. From there we will discuss options. For me this is round three of this fight.
Was told if no other mets than I will have surgery then chemo, if other mets found than pallitive care. After two years of this battle, I'm not totally devastated as I was when first DX.
Coming here to this board for support and to give any if possible.
Please Help - Need you
in GENERAL
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Prayers sent, let us know what's happening.