patut
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Posts posted by patut
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Sharyn- you are in my thoughts and prayers. God bless you and your family. Hopefully all the replies you have received here will help give you strength. We are all in this together.
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I believe it and think it's wonderful.
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Welcome Sean! It is a pleasure to meet you!
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My hubbie had fluid bags under his eyes for 5 months and also what is sometimes called "stokes collar", before he was finally diagnosed. His whole face looked swollen. The diagnosis was superior vena cava syndrome which was releaved after he had his radiation treatments. Today his face looks absolutely wonderful and he remains stable while on iressa.
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My hubbie is on Iressa and has to have procrit shots and extra iron as he became very anemic which made him tired. He gets a shot every two weeks and his last blood test showed his anemia is under control.
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My hubbie craves sweet/sour coleslaw and three bean salad (a portion of each on his plate) about three times a day. I find myself making fresh batches for him every two days to keep in the refrig. Anyone else have strange food cravings? He is currently labeled at 'stable' while still on Iressa. I can't help but wonder if these two cravings are helping him to stay stable. Anyway, it's worth it to see him enjoying it so.
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Abby, Happy Birthday to you!
The closest I can get right now to how you feel is how after my mom left me I realized I would no longer be receiving my annual birthday flowers from her.
But you know, I talk to her everyday, and the more I do the more I feel she is right here with me. She is with me always and it is actually comforting to me. I bet if you try it you'll see what I mean.
Love, Cyndy
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I feel so very sad right now ,and you have made this to be as a non-fiction story. Makes me wonder what is ahead for many of us.
You are very special and I wish you the best.
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David, it's good you can vent. I agree with Cat - we all get scared and sometimes over-react. It's all just "thinking" and most of our thoughts are not always accurate. You're going to be just fine. We'll all be here thinking of you tomorrow.
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Boy Terry, you scared the heck out of me when I read your posts here. I'm glad things are better now and I sure hope it's on the up and up from here on. I remember when I thought my hubbie should be in the hospital because he was so weak and felt so miserable. The emergency room Dr. advised against it because of staff infection possibility and sent us home.
That was when he was at his worst, but he is much better now.
I'm thinking of you!
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My hubbie started Iressa June 6th and has very minimal side effects. He has a slight rash on his chest which is diminishing and the strangest part is the skin is peeling from his fingers and hands (like peeling from a sunburn). He uses skin lotion and is not at all bothered by it. His doctor thinks the Iressa is working and is keeping him on it for now. We have our fingers crossed.
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That part of yours and Jerrye's life is now over, may God watch over you and give you peace. You have been through a lot.
C.H.
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Wow Terry. I am so I am so impressed with what you are doing! We also live in the Northeast (almost on the Canadian Border) and have decided to stay with the doctors in our own region. It was a difficult decision because one of our kids kept insisting that we check out Burlington, VT which is where everyone up here goes for serious things. I really didn't want to make my husband travel unless it was truly necessary.
I do think that wherever you decided to be it is important that you can gain good trust and faith in your doctors or you will always be wondering.
For us, being close to home has been wonderful for my husband. I too have discovered by carefully reading this board that my husband IS being treated similarly to others who have the same as he does. I am truly thankful that we have the advantage of some excellent doctors way up here "in the boondocks".
My best to you and your husband from the North Country!
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Just wanted to add that my husband started Iressa three weeks ago and had absolutely no symptoms until yesterday. The skin is peeling on some of his fingers (similar to peeling sunburn) and we just noticed a rash starting on his chest. These cause him no problem and he is doing very well otherwise.
C.
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Now that I'm on vacation I've had more time to investigate this most impressive site. There is so much to research here and I am learning so much. Although I don't post too often, I check in regularly and got a little nervous when the site was 'down', as I didn't know what was happening.
I will be sending in a small donation via PayPal today - and thank you Jane Rejda for the wonderful gift you gave. Your banner is beautiful at the top of the page!
Cyndy
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My husband lost over 30 pounds during his worst time and he really disliked the ensure and other drink products we tried. His doctor put him on Megestrol - 40 mg tabs (4 taken at once) each day and amazingly his appetite did increase and he has gained back much of what he lost. Now we're wondering how to slow down his appetite because he is eating constantly. He has been reduced to two tabs a day. Wishing you and your Dad the best.
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Am pleased to share that hubby's iressa treatment is going well so far. No side effects during the two weeks he's been on it and he is more "up and around" now - even driving his truck up to 10 miles away. He was found to be slightly anemic and is getting shots plus iron pills to help with his shortness of breath. I hope he's not in the 1% on Iressa who may get interstitial lung as a side effect. Anyone have knowledge of that happening?
C.H.
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Hello Sara. We were told that the tumor sometimes grows before it shrinks and that it takes about a month before one knows. My husband's feet also swelled up, but we were blaming it on the appetite (steroid) pills he is taking. He was put on Lasix (water pill) for it and is getting relief. He has vena cava syndrome where the tumor presses against the vena cava nerve, and this causes fluid retention for him, in the 'bags' under his eyes. He has been on Iressa for a week and a half and so far is doing very well. He even drove our truck for the first time in a long time today.
So keep the faith - each day is a new day and one never knows what miracles will happen!
C.H.
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This is only my second post, but I check this forum daily and learn much from the wonderful members.
My hubby will start Iressa tomorrow and we're concerned if any side effects will set him back to the 'awful place' he just came out of. We have been having some very good days and it seems scary to think he may go back to the sad state he was in only a few weeks ago- that of a non thriving person. Anyone out there who has taken this tablet without bad side effects?
Thanks, C.H.
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Phyllis, I doubt if you have vena cava syndrome. For my husband, it was found that a tumor was near his bronchial tube causing pressure on a central nerve that runs down the front of us called the vena cava. As soon as they shrunk his tumor with radiation, the puffiness under his eyes went away and he now looks normal. I wish you the best- you have certainly come a long long ways.
C.H.
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Am coming aboard now as I'm feeling so bad for my hubby who has had his hiccup/spasm bouts return after they went away for awhile. And we just got him eating more too. He's good all day and then evening comes and it starts up again. He's on chlorpromazine 25 mg which he can take three times a day and which make him really sleepy when taken with his cough medicine. Anyone relate to these hiccups, and how to handle them? (such as what to eat and not eat?)Diagnosed with squamous cell nsclc and told it was most easily treated of all of them. First symptoms were fluid retention under eyes which turned out to be vena cava syndrome last September. Treated for allergy for 5 months before it was figured out (we live in a very small community). Has had five weeks radiation and three treatment of chemo. Dr. won't finish up his chemo until his body gets more stable again. So…that brings us back to those darn hiccups which are slowing us way down.
Reading all your posts has been encouraging to me. Thanks so much!!
Am coming aboard now as I'm feeling so bad for my hubby who has had his hiccup/spasm bouts return after they went away for awhile. And we just got him eating more too. He's good all day and then evening comes and it starts up again. He's on chlorpromazine 25 mg which he can take three times a day and which make him really sleepy when taken with his cough medicine. Anyone relate to these hiccups, and how to handle them? (such as what to eat and not eat?)
bowel obstruction/liver mets
in NSCLC GROUP
Posted
Hubbie had an emergency operation last night for small intestine obstruction which Dr. thinks is unrelated to his cancer. He came through fine, but the Dr. told me he found some mets to the liver. Being new to this I don't know how this affects him, I have read on this board several others also have mets to the liver and seem to be doing well. I sure hope so. Life sure is full of surprises, and thank God for this board!