SDianneB Posted October 27, 2004 Share Posted October 27, 2004 That's my new motto for the Oncology practice where I've been going - aka Keystone Kops. So, I go in this a.m. to get results of a) follow-up ultrasound to thyroid (looks good, 2 nodules exactly the same as the 1st ultrasound, and same dimensions as when first seen in the scan) CT of chest/abdomen and pelvis I had last week. Do I get results? No way. I get what I usually get from those people -- equivocation. The wheeze I've had from radiation and the scarring I've had on my right, also from radiation, show up on a chest x-ray, and the CT scan. So, the says it's a "fuzzy" place, could be scarring, could be pneumonia, except I don't have any symtoms of pneumonia, and my lungs sound good otherwise, and it's really hard to tell from chest x-ray, and the scan just shows a little restricted place on that side that is probably the scarring, yada, yada, yada. So, do, is there CANCER THERE? Hello?? Well, it's a fuzzy place on the right, could be scarring, (rerun tape from above). She goes out to call the Rad. Onc. to get his take on this, and while she's gone, I'm preparing a list of questions to ask and pin her down on, but it finally occurs to me that I have my expectations set WAY too high for these people. They don't ever see the actual x-rays and scans, they just read the reports. On Nov. 11th, I see one of 2 docs who has, from the beginning, been straight up with me, and 100% accurate each and every time -- the Pulmonologist. He actually looks at the films from the scans (gasp - what a concept!) and then tells me what it is. He is, after all, the lung expert. What really frosted me this morning is that the Rad. Onc. is the one who sent me back to her and had to call them several times before they got the message that there is a window of time in which the PCI will do me some good. I see her this morning, expecting to be referred back to him, and instead, she calls him and tells him that she wants to do another PET scan in late November before we consider the PCI, and he goes along with it! One more time -- they tell me one thing, and then I hear something completely different from them when they talk to each other or when I see another one. I went ahead and made the late November appointments - one PET scan, and appt. to see the Oncologist again, this time insisting on (and getting) it done where I want it to be done, which is not their imaging center. They'll have to do without that money this time, so sorry. Depending on what the Pulmonologist thinks on Nov. 11th, I'm thinking it's time to just move on and leave those people to their befuddlement. I think they are more into their research and breast cancer anyway, and would probably just as soon have me go elsewhere anyway, except the insurance $$ they get from seeing me is really, really tempting. So, more waiting and more scans. I guess if there is any good news it is that there is no cancer, or at least no obvious cancer, in my chest, and what they are haggling over is probably just what the Pulmonologist said it was all along -- the scarring from radiation. (Also interesting to note that the only treatment the Oncologist has offered me for the wheeze so far is to send me to a GI specialist and have them put a tube down my throat and expand it. No thanks.) My Thanksgiving this year will be about being thankful to still have my life, assuming I still do !! And, thankful that there are choices in this world! Di Quote Link to comment Share on other sites More sharing options...
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