CharlieD Posted September 9, 2005 Share Posted September 9, 2005 Had 3 month CT Scan yesterday which showed progression of disease. Posted in Test Time/Results forum. Was given the option of either Taxotere or Navelbine. I see that some of you have had experience with both of these. Would love to hear your comments on both of them please. Probably won't start chemo for a couple months. Still feeling real good, walking two miles a day, fishing and playing golf. Would really appreciate any info on either drug. Thank you all and God Bless. CharlieD Quote Link to comment Share on other sites More sharing options...
Ry Posted September 9, 2005 Share Posted September 9, 2005 Can't speak about the Navelbine but John had taxotere. No problems except with that chemo he got a lot of muscle aches. He found that drinking lots of water helped-- before, during, and after treatment. Hope it works for you. Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted September 9, 2005 Share Posted September 9, 2005 Hi Charlie. I had Taxotere. I switched from Taxol, which was more harsh for me than the taxotere. I had muscle aches like John, and also bone pain starting about the 2nd or 3rd day after injection. Mouth sores. Oh, you know, regular stuff. Put me on the couch for awhile. Good luck with whatever you decide, Charlie. Cindi o'h Quote Link to comment Share on other sites More sharing options...
Patkid Posted September 9, 2005 Share Posted September 9, 2005 No insight, just want to offer support and prayers. Brat Quote Link to comment Share on other sites More sharing options...
pammie Posted September 9, 2005 Share Posted September 9, 2005 Haven't been on Taxotere but the Iressa has been wonderful for me. It does make me have very dry skin and have had nose bleeds. Sounds like you continue to be activie. Keep up the good work. praying for you. pammie Quote Link to comment Share on other sites More sharing options...
TAnn Posted September 9, 2005 Share Posted September 9, 2005 Charlie, I am so sorry to hear about your progression. I've been on Taxotere also, it was easier than the Taxol, but I also experienced the muscle aches, neuropathy, hair loss, mouth sores, all the common side effects from the "older" chemo's. However, I experience the same type of muscle aches with Alimta, but as you know everyone is different. No experience with the Navelbine, sorry. Why are they waiting to start you for a couple of months? Haven't you been off Alimta since June? Sorry you have to get back on the chemo regimine. It sucks. TAnn Quote Link to comment Share on other sites More sharing options...
shineladysue Posted September 9, 2005 Share Posted September 9, 2005 Charlie, I've been waiting for this post. I'm so sorry to hear that you have had progression. On the other hand , I'm glad to hear that you feel good. As for the choice in chemotherapy, I can give you Mike's experience in both. The taxotere made him quite fatigued , but it initially did cause shrinkage after 3 treatments . After the 3 treatments he began to experience superior vena cava syndrome due to growth of the tumor and had to have a stent put in. Overall, the doctor says the taxotere is the one that caused neuropathy in his fingers and toes also. It is a pretty strong drug, we were told. He was on Navelbine also and he felt very good during that treatment, but it wasn't effective .. there was some shrinkage in the lung , some increase in the adrenal mass. It was probably the mildest chemo drug he has taken. Hang in there, I know there are others that have taken these drugs also and don't let our experiences discourage you. You know too well that everyone reacts differently. Go grab Cindi to go fishing with you. She's feeling pretty frisky these days.. and she can keep your minnow bucket filled with rot gut. Take care Charlie and know that Mike and I are keeping you in our prayers. Love, Sue Quote Link to comment Share on other sites More sharing options...
Don Wood Posted September 9, 2005 Share Posted September 9, 2005 Lucie has experienced both. Her original chemo was Taxotere/Carboplatin. She had mets all through her bone structure, and needed immediate big guns. The combination gave her practically all the side effects listed as she progressed. Bottom line: it worked! The secomd time around she was on Navelbine alone (more bone mets and a lung met). It was milder on her and it also worked. This is really an individual thing. I have seen people on here who had no big problem with Taxotere, but did with Navelbine. I would be tempted to ask the onc what he would choose if he were in your place. He knows your history best. Don Quote Link to comment Share on other sites More sharing options...
adee Posted September 10, 2005 Share Posted September 10, 2005 I am currently on Taxotere - every 3 weeks - probably for 5 treatments. It has been worse than the Taxol/Carbo I had before. I've had almost every side effect, hair loss after the first treatment, mouth sores, eye problems, severe pain in my legs and hips, extreme fatigue. But I just tell myself that all these side effects means that the Taxotere is working! The side effects go away about a week before I start my next treatment, so there are a few good days mixed in with the awful ones. Quote Link to comment Share on other sites More sharing options...
CharlieD Posted September 10, 2005 Author Share Posted September 10, 2005 Another question I forgot to ask. Do you have to have a port for either one of these? Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted September 10, 2005 Share Posted September 10, 2005 Charlie, As several have said, everybody's different. Charlie has had both drugs. Neither worked for him. He had some severe (but rare) side-effects from the Navelbine. He did pretty well on the Taxotere. He was on a weekly infusion schedule at a lower dose for the Taxotere so he could tolerate it better. Just had fatigue. I personally believe you need to get a 2nd opinion at this point. I think one of the reasons that my Charlie has been fighting this battle for over 20 months is the doctor's aggressiveness. Every time there has been any progression, the dr. has worked quickly to get him going on the next chemo./clincial trial, radiation, etc. Praying for you! Take care. Quote Link to comment Share on other sites More sharing options...
Ry Posted September 10, 2005 Share Posted September 10, 2005 Charlie-- I don't believe you have to have a port but John was glad he had his put in. He had a problem where the chemo leaked and it was horrible. They had to inject the site about 12 times to neutralize the chemo. Quote Link to comment Share on other sites More sharing options...
Don Wood Posted September 10, 2005 Share Posted September 10, 2005 Lucie really likes having a port. She has had one for 2 1/2 years now. It makes the chemo so much easier. Don Quote Link to comment Share on other sites More sharing options...
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