sae6099 Posted January 11, 2006 Posted January 11, 2006 My husband, age 50 was diagnosed with a large pancoast tumor in December 2005. He presented with Horners Triad and still has. The tumor is Stage IIIB. It has grown arond the superior vena cava and the brachial plexus. He will receive his 4th chemo tomorrow with carboplatin and taxol. He has daily radiation treatments. I started him on a fantastic multi-vitamin program with lots of antioxidants. He also takes a mushroom capsule per day, plus another herb daily, 100 mg. CoQ10 daily and 6 gtts of an herbal formula twice a day. We won't recheck tumor status until 6 wks of chemo and radiation is completed. So far he is tolerating treatments. Checked on Sun Soup, but too expensive for us to purchase. We need lots of prayers. Thank you, Stacey Quote
cindi o'h Posted January 11, 2006 Posted January 11, 2006 welcome to you stacey and to your husband. There are a few pancoast survivors here. They will find you. My onc. said I couldn't do vitamins, supplements, etc., while going through treatment. You will find much knowledge here. And I am sure that you and DH have good info to share. Cindi o'h Quote
Ellen B. Posted January 11, 2006 Posted January 11, 2006 Welcome Stacey! Glad that you found this site! Henk also has a large pancoast, stage IIIB. Don't know about the vitamins. Henk also was taking multivitamins etc., but then his onc. told him not to use extra vitamins during (chemo) treatment. Ellen. Quote
Ry Posted January 11, 2006 Posted January 11, 2006 Welcome. I hope the radiation and chemo shrinks the tumor. My husband also has the vena cava syndrome. Make sure the onc knows about the vitamins...some can interfere with chemo working, so you may need to stop around that time. Glad you found us. Rochelle Quote
Kasey Posted January 12, 2006 Posted January 12, 2006 Welcome Stacey, I am a Pancoast tumor also. In fact, I JUST returned from NIH (National Institutes of Health)in Bethesda, MD for my 3 month checkup. I was dx in Sept/Oct '04. Had surgery in January '05. I am now 1 year since surgery, 15 months from dx and am CANCER FREE. Have faith. Read My Story in the MY STORY forum. Come back soon. Kasey Quote
sae6099 Posted January 12, 2006 Author Posted January 12, 2006 I am so happy to find this site. I have been on the internet every evening and last night was the first time I found it and I don't really recall how I found it, I'm just glad I did. I am a registered nurse and I worked Oncology for 1 year at the hospital and my sister died 20yrs ago when she was 34 yrs old of pancreatic cancer. Many advances in treatments and pain management have been made since then. I also believe in alternative medicine. Our oncologist is aware of all the supplements that I have my husband on and he just smiled as he wrote them down. I do not give Jeffrey any supplements on the day of chemo. The Taxol and Carboplatin are excreted within 24 hours. I restart all supplements the day after. Today was chemo #4 and his bloodwork remains within normal limits with no significant drops. He also has gained 5lbs. since he started the actual multi-vitamin formula. The oncologist said just don't go overboard with antioxidants, of which I don't. How else is his body going to nourishment to rebuild the cells the chemo destroys? We have nothing to lose at this point. I appreciate the warm welcome to this site and all your suggestions. Stacey Quote
Lisa O Posted January 15, 2006 Posted January 15, 2006 My onc also didn't want too many antioxidan't while on chemo, and I have heard many warnings about the mushrooms while on chemo so I am glad your doc is in the loop. I wish you the best. Lisa Quote
sae6099 Posted January 16, 2006 Author Posted January 16, 2006 The multi-vitamin with antioxidants program recommends 2 pkts per day and I only give him one pkt. Our oncologist says that some people go overboard with the antioxidants and give them numerous times per day. It's the old mindset that if one is good then 5 will work better! Usually not true. I also only give him one mushroom capsule per day whereas the bottle says 3-6 per day. I have not read anything negative about the mushrooms. What have you heard? I've done so much research on this internet that I easily could have missed some important facts. So far his bloodwork has come back within normal limits. I pray alot though, so I'm sure that is the main factor helping us through this. Praise God! Stacey Quote
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