Sam'swifeShirley Posted March 22, 2003 Share Posted March 22, 2003 Hi everyone, I just wanted to let you know that I'm still here and lurking mostly. I've read the good news and celebrate with you and I've read the bad and continue to pray for you. I continue to fight what appears to be an atypical case of radiaiton pneumonitis. Atypical in that it just doesn't want to respond to steroids and the steroids seem to be causing more side effects than they are worth. My pulmonologist says to taper them. My breathing is worse and I'm on oxygen 24/7 now. I'm pretty much stuck at home. My "early delayed radiation encelopathy" from the PCI that I had in December seems to be slowly improving. I'm only sleeping about 12 hours per day now, down from 16 or so. My esophageal ulcer seems to be slightly better and I seem to be getting a little fuzz on my head. My wife and family and friends continue to be extremely supportive and I continue to fight even though my docs seem to be all clueless. I'm here and plan to stay. God bless us all. Quote Link to comment Share on other sites More sharing options...
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