bart ziggie ( Greg ) Posted October 23, 2003 Share Posted October 23, 2003 Hello everybody, Thanks to everyone that responded to my post. John i briefly looked at the 2 clinicals and upon first glance i think i meet the criteria.My docs and i are going to have to make some major descicions and i for one am not ruling out a clinical. Karen i actually live right across the mighty mississippi from St. Louis. I live in illinois its just easier to say St. louis than it is wood river illinois. Well to the best of my knowledge heres what is going on. I was pretty much right when i posted mon. I was admitted mon. to saint louis university. I met with my doc and his team. We briefly discussed the ct scan from fri. and he indicated there was a 6 mm nodule in the upper right lobe. It didnt appear to them to be impacting the ribs, however he said there was "something" there. Had a pet scan done tues afternoon. Seen Doc today and it showed several hot spots. I am trying to keep this straight as possible but my thinking right now is a little wobbly ! Please bear with me. He said it showed activity in both lungs,my lymph nodes,ribs,right shoulder area,bronchi,trachea,and several on my liver. I think there were more but im not sure. Since my breathing is somewhat stable i was able to get discharged. I didnt speak at length with the doc today. I have alot of confidence i have made the right move with this new team of docs. We agreed that i go ahead and be discharged and i come back tues morning with a good picture of how we are going to proceed. After i met with him today he felt we needed to go ahead with a ct scan of abdomine/ pelvis and a mri of my trachea,bronchi etc.... i think ! I really need all the input i can get on this my friends. Like i said i am very open to a clinical. I would love to be sitting here in a few months typing away after having A TOTAL RESPONSE from a clinical trial. Wow i think its possible for me to get a partial or complete response. I can hope for it anyways. I appolgize if i have rattled on i should have waited till my head was a little clearer but i may be waiting awhile. What surprises me so much is how fast this cancer moves. In 3 weeks time it has really grabbed ahold of me. The pain is bad and i am taking a strong dose of oxycontin wich i hate already. But i have to take it. The pain just in the last 4 or 5 days has gotten really bad. If anyone has anything to share about recurrent SCLC i need your help i will digest all the info i can get my hands on. I am glad not to have to make these descicions until tues. Oh yea also i asked about biopsy etc. doc indicated we would be biopsying the liver for sure and we would discuss at length all treatment plans etc. tues. This doc is very good and has got a quality team as well. Geeeez i have to go lay down i didnt sleep much last night. Ill see you all tomm. Greg Quote Link to comment Share on other sites More sharing options...
bluebayou Posted October 23, 2003 Share Posted October 23, 2003 I'm so sorry Greg that you've had all of this thrown at you at same time. You must be overwhelmed. I hope you have a good night's sleep and awake feeling charged up and ready to do battle!!! There is hope Greg...please don't ever doubt that. We are here for you, Quote Link to comment Share on other sites More sharing options...
ginnyde Posted October 23, 2003 Share Posted October 23, 2003 Dear Greg, Please know that all of us here are hoping and praying for a successful treatment plan for you. We are fighting the NSCLC battle with has recurred, so I don't have any info for you. Ginny Quote Link to comment Share on other sites More sharing options...
Remembering Dave Posted October 23, 2003 Share Posted October 23, 2003 Hey Buddy, Listen tyo your Doctors and ask lots of questions and write it all down. Remember we are all here for you to help you FIGHT. Let us know what you find out about those trials. My prayers are with you. David C Quote Link to comment Share on other sites More sharing options...
mittlers Posted October 24, 2003 Share Posted October 24, 2003 Hi Greg, I also live outside the St. Louis area (Washington, MO on the opposite side of the Mississippi than you are) SLU is a great teaching hospital and I'm sure that you have the best of the best working for you. My mother has been battling recurrent SCLC for a while now. I do know that the cancer moves very fast so do not delay on any treatments. Her last chemo taxotere did seem to hold the cancer from growing for 2 months. I have faith that you will be able to find a clinical trial that will work for you. Take care of yourself and get some rest. Your body will need all the energy it can get to fight this terrible thing. I will keep you in my prayers. Lots of Hugs, Susan M. Quote Link to comment Share on other sites More sharing options...
norme Posted October 25, 2003 Share Posted October 25, 2003 Greg, I hope by today you are feeling a little better. Hopefully by Tues they will have it all planned out for your next treatments. I hope the chemo plays havic on that darn cancer.....will be praying hard for you... Quote Link to comment Share on other sites More sharing options...
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