silm0209 Posted January 25, 2012 Share Posted January 25, 2012 Not sure if this is in the right place. I've been onhere a few months ago and told you all of my friend with stage 4 lc. Well at the grand age of 36 treatment haas stopped. I just can't believe it!!! She is still outwardly well. So why can't there be more treatment? NSCLC has spread to numerous places and there are 'numerous small tumors' on the brain (again) a year ago she underwent WBR and surgery so now they say theres nothing more they can do. Just take steroids to stop the headaches. I hear of people having treatment until the end - so why can't she!!!!!!!!!!!!!!!!!!!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
jaminkw Posted January 25, 2012 Share Posted January 25, 2012 I don't know how to respond except when in doubt, get a second opinion. If that's not in the plan for your friend, you can take your question to cancergrace.org. They have drs there, among them Dr West who is considered an expert in lung cancer. They are quick to respond and at no charge. They cannot speak specifically to your friend's case be can give opinions on general standards of care for various scenarios, hopefully one closely related to that of your friend. Sorry for this news, but keep digging. Judy in KW Quote Link to comment Share on other sites More sharing options...
silm0209 Posted January 26, 2012 Author Share Posted January 26, 2012 thank you. I will go there now. I think desperation has just taken hold Quote Link to comment Share on other sites More sharing options...
Joppette Posted January 26, 2012 Share Posted January 26, 2012 Once you have whole brain radiation, it can not be done again. The radiation fries any tumors, but also brain cells. It just is not going to be an option for her. I hope cancergrace gives you some options. If the final call is that there are no further treatments that will work, then just love your friend. Go for long walks outdoors, visit the beach, take her to places she's never seen before. Be present with her and let her talk about how she feels about all of this. God Bless you. I hope you find answers for you and your friend. Judy in MI Quote Link to comment Share on other sites More sharing options...
silm0209 Posted February 11, 2012 Author Share Posted February 11, 2012 Devasated She passed away on Saturday 4th Feb x Quote Link to comment Share on other sites More sharing options...
jaminkw Posted February 11, 2012 Share Posted February 11, 2012 I am so sorry for your loss. It seems so unfair that one so young should be taken. Only time will lessen the pain you are feeling now. Come back any time for comfort if that would help you. It's a place where everyone knows your pain. Judy in KW Quote Link to comment Share on other sites More sharing options...
Joppette Posted February 11, 2012 Share Posted February 11, 2012 I am so sorry. You must be devastated. I wish I could reach through this screen and hug you. Like Judy said, do stay here if you can. We have lots of caregiver survivors here and they can attest to the support they received as they went through this. Gentle hug to you. MI Judy Quote Link to comment Share on other sites More sharing options...
ginnyde Posted February 12, 2012 Share Posted February 12, 2012 I am so sorry. No words, just not fair. Stay with us, we really do help. Quote Link to comment Share on other sites More sharing options...
RandyW Posted February 12, 2012 Share Posted February 12, 2012 My thoughts prayers and condolences Slim. I am sorry for your loss! If you need a shoulder we are all here!! Quote Link to comment Share on other sites More sharing options...
dianew Posted February 12, 2012 Share Posted February 12, 2012 My deepest sympathy. Thought and prayers are with you at this time. Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted February 13, 2012 Share Posted February 13, 2012 I'm so sorry. I'm so glad she had you!! Quote Link to comment Share on other sites More sharing options...
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