Elaineec Posted March 14, 2016 Share Posted March 14, 2016 Hi! I'm new here and soooo glad I found you all! Even though none of us really wants to have to be here. I am scheduled for a lobectomy in less than 2 weeks. Originally the surgeon thought he'd have to remove my entire right lung but after an MRI he now thinks he can save the inferior lobe. Quite honestly, I'm terrified of this surgery (open lobectomy with removal of tumor in mediastinum) because everything I've read talks about 1. how painful it is and 2. how long and difficult recovery is. I would appreciate if anyone would care to share their lobectomy recovery story. I just need to know the unvarnished truth - should I prepare myself for a lot of pain? Can I sleep on my back? Will coughing be horribly painful or mostly tolerable? How long did drain(s) stay in? How long were you in hospital? Any complications? When did you feel like your old self again? Are you out of breath all the time? Thank you for taking time to read this and, I hope, to answer. Elaine in CT (I go to Dana Farber in Boston so surgery will be at Brigham & Women's) Road bum 1 Quote Link to comment Share on other sites More sharing options...
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